Welcome

The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs when navigating complex health care systems.  Staffed by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and professionals who serve them.   This website houses hundreds of resources for parents, grandparents, and youth. 

We do our best to keep this website current, but please let us know if you find any broken or outdated links.

Upcoming Events - Próximos Eventos

Flyer inviting families to talk about dignaty of risk Eng and Spa
Flyer in Spanish and English inviting families to talk about encouraging child's growth and development while keeping them safe. Click on image to register or follow the QR code.

We hope that you will join us

 

To speak to an OR F2F HIC Parent Partner

--Call 855-323-6744 (English)  o 833-990-9930 (español)   

--Email us at contact@oregonfamilytofamily.org . 

--Reach a specific parent partner directly:

To sign up for our periodic newsletters fill out this form.

Newsletters/Noticias y recursos por familias

Please sign up for our periodic newsletters by filling out this form.  

Hemos cambiado a un nuevo formato en línea para nuestro boletín.  Suscríbete a nuestro boletín llenando este formulario 

Popular pages and topics on our site

Tip Sheets and Toolkits
Health insurance basics
Early intervention and special education
Service dogs and emotional support animals
Developmental disability supports and services

Research and Opportunities / Investigaciones y Oportunidades

playgroup of moms and toddlers inside with toys
Parents talking and young children playing on the floor in a semi-circle

Research, leadership, and advocacy opportunities for caregivers/parents

Research

Advisory or Advocacy

  • State Advisory Council for Special Education (ODE: parent representative various regions) Eng Spa
  • State Interagency Coordinating Council (Governor: Early intervention parent representative statewide) Eng Spa
  • LEND self Advocate position 2026 Paid Sept-May fellowship for interdisciplinary studies at OHSU 18+
  • Give input on rules that support new state laws around people with intellectual and developmental disabilities getting mental health and substance use disorder services and treatment when they need it. Opportunities to share your input: Wednesday, June 10, 3 – 4 p.m.   Zoom meeting link Meeting ID: 165 235 5179 Passcode: 171874   or  Thursday, June 18, 4 – 5 p.m.  Zoom meeting link Meeting ID: 165 358 6160 Passcode: 578273  If you would like to see the draft rules email Hilary Harrison hilary.harrison@oha.oregon.gov and request Draft Rule Language_IDD and Discrimination
  • OHP Open Card Lived Experience Advisory Panel (LEAP) is Recruiting. The Oregon Health Plan Open Card Lived Experience Advisory Panel (LEAP) is seeking applicants.LEAP is a virtual advisory group made up of people with experience using Open Card and helping others use Open Card. Together they use their experiences to improve health care services for all Open Card members. Apply by June 28, 2026
  • Fill out the English application here or the Spanish application here

Statewide youth leadership opportunities 

University Center for Excellence in Developmental Disabilities/LEND

Oregon Department of Education

View the complete list of ODE youth leadership opportunities and access applications here. Youth may apply for multiple opportunities; there is no application limit.