Transition to Adult Health Care

Young adults tell us...

doctor discussing brain scan images with patient

"I was used to having my mom along for my appointments.  I had to ask more questions, and have my doctor explain anything I didn't understand." 

"I was happy I had a family doctor when I turned 18. I had to change a lot of specialists, so having one office that already knew me and my history was helpful."

"I didn't realize how much I didn't know until I tried to get my insurance to pay for Occupational Therapy."

Parents tell us...

Young woman in a wheelchair having her leg mobility tested by a therapist

"I have been so involved in her health care that it was a shock when she turned 18 and I wasn't included."

"We had been teaching him to set up appointments, carry his insurance card, and to write down questions ahead of time.  We were really proud of him the first time he went to the doctor on his own."

"I knew she needed an adult doctor when she told me she had a serious boyfriend."

General transition information

Being in charge of your own health care can be empowering but also a little overwhelming.  These resources can help.

Got Transition.org

OHSU IDD Transition Guide

Guidebook from Rutgers University: Being a Healthy Adult: How to Advocate for Your Health and Healthcare  

The ARC of New Jersey: Personal and family medical history form 

State of Oregon: Teen's Rights for Access to Healthcare and confidentiality

National Center for Self Determination: My Health, My Choice, My responsibility curriculum and app