OR F2F HIC

Transition to Adult Health Care

Young adults tell us...

celebrating travel acheivment youth in wheelchair
Young black woman in red coat cheering outside office doors. She is sitting in a wheelchair and her arms are outstreched.

"I was happy I had a family doctor when I turned 18. I had to change a lot of specialists, so having one office that already knew me and my history was helpful."

"I was used to having my mom along for my appointments.  I had to ask more questions, and get the doctor to explain anything I didn't understand."

"I did not realize how much I did not know until I tried to get my insurance to pay for additional Occupational Therapy."

Parents tell us...

"I have been so involved in her health care that it was a shock when she turned 18 and I wasn't included."

"We had been teaching him to set up appointments, carry his insurance card, and to write down questions ahead of time.  We were really proud of him the first time he went to the doctor on his own."

"I knew she needed an adult doctor when she told me she had a serious boyfriend."

General Transition Information

What you Need to Know to Prepare for Transition to Adult Healthcare

Helpful general resources

Being in charge of your own health care can be empowering but also a little overwhelming.  These resources can help.

Got Transition.org

OHSU IDD Transition Guide

Guidebook from Rutgers University: Being a Healthy Adult: How to Advocate for Your Health and Healthcare  

The ARC of New Jersey: Personal and family medical history form

National Center for Self Determination: My Health, My Choice, My responsibility curriculum and app 

Tools you can use to prepare for transition to adult healthcare

What is Health Care Transition? HCT 101 This video was created in collaboration with young adults from Wisconsin's PATCH program.

Transition checklists and tools

Condition-specific transition materials

American college of physicians: Condition-specific transition materials (General Internal Medicine, Cardiology, Endocrinology, Gastroenterology, Hematology, Nephrology, and Rheumatology)

"Duchenne Muscular Dystrophy Transition Toolkit"

An article on how to use the Duchenne muscular dystrophy toolkit from Pediatrics by the authors.

Neurology Transition Toolkit (English)  From Child Neurology Foundation           

Neurology Transition Toolkit (Spanish) From Child Neurology Foundation

Disclaimer

Inclusion of resources on our site does not imply endorsement nor does exclusion mean we do not think it is valuable. We work to keep our list of resources current and relevant but it is not exhaustive.

If you have any questions call or email us tel. 855-323-6744 (English) o 833-990-9930 (español) contact@oregonfamilytofamily.org