Finding Resources and Emotional Support

Parents tell us...

"I love my support group.  It keeps me going. The kids are happy to see each other too."

"Whenever I have a problem, I ask my support group. Someone always has an idea worth trying." 

"We do fun things together. I can relax and know they will understand.  We might need to leave early due to a melt-down or eat something special and it is okay."

"I feel closer to some of my group friends than I do to my own family." 

Oregon Family Networks    I Specialized support    I Condition specific support

Oregon Family Networks

Family-led support organizations. They serve all disabilities to help families achieve full inclusion by advocating, problem solving, building connections, and creating fun family events.

Metro/North Coast: FACT Oregon

Southern Oregon: Bridging Communities

Central Oregon: Central Oregon Disability Support Network (CODSN)

Eastern Oregon: Special Needs Families Connect

Willamette Valley: Creating Opportunities

Lane County: Families Connected

Douglas County: Families Engaging and Thriving Together (FEAT)

Specialized support organizations (partial list)

Complex Child: Monthly magazine written by parents and self advocates

Grandparents: Grandparents raising children

Grandparents: Grandfamilies support and information

Adoption and foster care support

Latino Families: Padres en Accion

NAYA: Native American Youth and Family Center

(NIPIC): Native American Families w/ special health needs

Support for Black Parents in Oregon: Black Parent Initiative

Legal help for refugees applying for disability benefits: Refugee and Immigrant Support and Empowerment (RISE)

Support for all Islamic families in Oregon: Islamic Social Services of Oregon State

The Sick Chicks: Support group of chronically ill young women

Support for LBGQT families

Among Friends: Social sexual support services 

Q Center: Resources and referrals for the LBGQT community

PFLAG: Offers support and groups to LGBQT families and individuals around the country.  Find a PFLAG chapter near you

Suggest an organization by emailing us.

Condition-specific organizations

These organizations provide focused help and support. They are advocates, many raise money for research and treatments.  (Partial list)

Advocacy, support, and services for children and adults and their families with Intellectual and Developmental Disabilities: The Arc of Oregon 

Support and Information for families with Cerebral Palsy: United Cerebral Palsy (and similar conditions)

Support for individuals and families affected by Autism: Autism Society of Oregon 

Many Oregon counties have both crisis and regular Mental Health programs: Mental health programs by county

Support for families of children with Mental or Behavioral Health Concerns: OFSN 

Support for individuals and families affected by Mental Health Issues: NAMI     

Support for families affected by EpilepsyEpilepsy Foundation NW  

Information and support for families affected by FAS: Fetal Alcohol Syndrome

Support for families affected by ADHD: Children and Adults with Attention Deficit Hyperactivity Disorder (CHADD)    

Support and information about Down Syndrome: NW Down Syndrome Association and

D.S. Local

Support for families affected by Charcot Marie ToothCharcot Marie Tooth 

Support for families with a child who is Deaf/Hearing ImpairedHands and Voices 

Support for families and individuals who are Deaf/Blind or have Usher Syndrome

Support for those families and individuals affected by Spina Bifida: Spina Bifida

Support and information for families affected by Hemophilia: Hemophilia Foundation of Oregon

Peer support network of young women and girls with Scoliosis: Scoliosis Curvy Girls

Support and information for families whose children have Kidney Issues: NW Kidney Kids

Support for families whose children have been diagnosed with Sickle Cell Anemia: Sickle Cell Anemia Foundation

Support for families affected by Prader Willi Syndrome: PWSA

Support and research for families affected by Juvenile Diabetes: Oregon/SW Washington JDRF

Support for families of children with serious Heart Conditions: Mended Little Hearts, Sisters by Heart