Parents tell us...
"I love my support group. It keeps me going. The kids are happy to see each other too."
"Whenever I have a problem, I ask my support group. Someone always has an idea worth trying."
"We do fun things together. I can relax and know they will understand. We might need to leave early due to a melt-down or eat something special and it is okay."
"I feel closer to some of my group friends than I do to my own family."
Oregon Family Networks
Family-led support organizations. They serve all disabilities to help families achieve full inclusion by advocating, problem solving, building connections, and creating fun family events.
Specialized support organizations (partial list)
Grandparents: Grandparents raising children
Grandparents: Grandfamilies support and information
Latino Families: Padres en Accion
Support for Black Parents in Oregon: Black Parent Initiative
Legal help for refugees applying for disability benefits: Refugee and Immigrant Support and Empowerment (RISE)
Support for all Islamic families in Oregon: Islamic Social Services of Oregon State
The Sick Chicks: Support group of chronically ill young women
Support for LBGQT families
Among Friends: Social sexual support services
PFLAG: Offers support and groups to LGBQT families and individuals around the country. Find a PFLAG chapter near you
Suggest an organization by emailing us.
These organizations provide focused help and support. They are advocates, many raise money for research and treatments. (Partial list)
Advocacy, support, and services for children and adults and their families with Intellectual and Developmental Disabilities: The Arc of Oregon
Support and Information for families with Cerebral Palsy: United Cerebral Palsy (and similar conditions)
Support for individuals and families affected by Autism: Autism Society of Oregon
Many Oregon counties have both crisis and regular Mental Health programs: Mental health programs by county
Support for families of children with Mental or Behavioral Health Concerns: OFSN
Support for individuals and families affected by Mental Health Issues: NAMI
Support for families affected by Epilepsy: Epilepsy Foundation NW
Information and support for families affected by FAS: Fetal Alcohol Syndrome
Support for families affected by ADHD: Children and Adults with Attention Deficit Hyperactivity Disorder (CHADD)
Support and information about Down Syndrome: NW Down Syndrome Association and
Support for families affected by Charcot Marie Tooth: Charcot Marie Tooth
Support for families with a child who is Deaf/Hearing Impaired: Hands and Voices
Support for those families and individuals affected by Spina Bifida: Spina Bifida
Support and information for families affected by Hemophilia: Hemophilia Foundation of Oregon
Peer support network of young women and girls with Scoliosis: Scoliosis Curvy Girls
Support and information for families whose children have Kidney Issues: NW Kidney Kids
Support for families whose children have been diagnosed with Sickle Cell Anemia: Sickle Cell Anemia Foundation
Support for families affected by Prader Willi Syndrome: PWSA
Support and research for families affected by Juvenile Diabetes: Oregon/SW Washington JDRF