Welcome

The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs when navigating complex health care systems.  Staffed by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and professionals who serve them.   This website houses hundreds of resources for parents, grandparents, and youth. 

We do our best to keep this website current, but please let us know if you find any broken or outdated links.

To speak to an OR F2F HIC Parent Partner

Newsletters / Noticias y recursos por familias

Newsletters/Noticias y recursos por familias Aug. 2024-present/presente

Please sign up for our periodic newsletters by filling out this form.  

Hemos cambiado a un nuevo formato en línea para nuestro boletín.  Suscríbete a nuestro boletín llenando este formulario 

Each newsletter contains Upcoming events, News you can use and a Spotlight. Próximos Eventos, Noticias Útiles, Enfoque de Padres

Upcoming events-Próximos eventos

Part-time parent leadership and training

The OHSU LEND program is recruiting the parent of a child or youth with a special health care need related to I/DD to be a family trainee for the 25-26 school year.  Please read the brochure about the program and application process.  Contact Lydia Dennehy dennehy@ohsu.edu if you have any questions.  Deadline to apply is June 15th.

New Resources

Video: Families Navigate Oregon's Broken Systems

Video, panel discussion "Families Navigate Oregon's Broken Systems"

This powerful town hall conversation explores the systems barriers faced by Black families in Oregon navigating health care and other systems. We explore how to improve the experience and outcomes for all families and providers working with children and youth with special health needs.