855-323-6744 (English)        503-931-8930 (Español)   

The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs to navigate the complex health care systems.  Staffed entirely by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and the professionals who serve them.   This website houses hundreds of resources for parents, grandparents, teens, and young adults. 

We do our best to keep this website current, but please let us know if you find any broken or outdated links.

To speak to an OR F2F HIC Parent Partner

Email us at orf2fhic@ohsu.edu for a response within two business days.  Or to reach a specific parent partner directly for help, ideas, support, or information:

--Use this Referral form or Formulario de invitación hablar con un padre socio.

--Call us at 855-323-6744 or 503-931-8930 (Spanish)

To find our current events and trainings, as well as other health care topics for children and youth with disabilities or special health needs, visit the Oregon F2FHIC Facebook page

Oregon Family to Family HIC newsletter, news and resources you can use.

December Newsletter  Parent Spotlight, Who ya gonna call?, Get kids moving, Move to Oregon, Insurance help.

November Newsletter Parent Spotlight, Service dogs, Smoothing Transition to Adult Healthcare, Join OR Commission on ASD, Supporting Siblings

October Newsletter Parent spotlight, Right wheelchair tips, Resources for rare diseases, Right support for your young adult.

September Newsletter Healthcare goals for IEP, Take care of yourself, coordinating your coordinators, Family Organization spotlight.

August Newsletter Resources for every "condition", Family organization spotlight, Study of Oregon youth with complex medical conditions, Child tax credit.

July Newsletter  Moving from Pediatric to Adult Health Care, Parent spotlight, Oregon Kinship Navigator, Input to improve PT for children with cerebral palsy.

June Newsletter  Safe summer activities, Parent spotlight, Parent advocacy training, LEND fellowship, Emergency broadband program

May Newsletter Successful hospital stays, Parent spotlight ,Table Talk, I/DD state council, Help with insurance premiums

April Newsletter  Covid Vaccines, Help for medical bills, Parent spotlight, Table Talks, Parents as paid, in-home providers, Legislative session

Please let us know if you would like to be on our mailing list   for periodic newsletters

Helpful videos from our partners at Western States Genetic Alliance. www.westernstatesgenetics.org

Learn how to get the most out of your telehealth visit from home. A video from Western States Genetics Alliance.
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