The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs to navigate the complex health care systems. Staffed entirely by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and the professionals who serve them. This website houses hundreds of resources for parents, grandparents, teens, and young adults.
We do our best to keep this website current, but please let us know if you find any broken or outdated links.
What you will find here
Family Resources by Age Group: educational, recreational, mental health-related, and many other resources
Oregon Special Health Needs Essentials: a collection of the key systems, organizations and agencies used by children and youth with special health needs. Information about insurance
Financial Help: funding sources for families of all incomes
Newborn Screening and Birth Anomalies: Resource sheets for dozens of specific birth anomalies. Information about Oregon's newborn screening programs
Crisis-Trauma-Emergencies-Safety: resources for challenging situations
Moving to or from Oregon: what families need to know when moving with a child with special health needs
To speak to an OR F2F HIC Parent Partner
Email us at firstname.lastname@example.org for a response within two business days. Or to reach a specific parent partner directly for help, ideas, support, or information:
- Ana Brooks, bi-lingual Spanish
- Tami Martin
- Margaret Maes, bi-lingual Spanish
- Chuck Smith
- Lydia Dennehy
- Tamara Bakewell
To find our current events and trainings, as well as other health care topics for children and youth with disabilities or special health needs, visit the Oregon F2FHIC Facebook page
Oregon Family to Family HIC newsletter, news and resources you can use.
December Newsletter Parent Spotlight, Who ya gonna call?, Get kids moving, Move to Oregon, Insurance help.
November Newsletter Parent Spotlight, Service dogs, Smoothing Transition to Adult Healthcare, Join OR Commission on ASD, Supporting Siblings
October Newsletter Parent spotlight, Right wheelchair tips, Resources for rare diseases, Right support for your young adult.
September Newsletter Healthcare goals for IEP, Take care of yourself, coordinating your coordinators, Family Organization spotlight.
August Newsletter Resources for every "condition", Family organization spotlight, Study of Oregon youth with complex medical conditions, Child tax credit.
July Newsletter Moving from Pediatric to Adult Health Care, Parent spotlight, Oregon Kinship Navigator, Input to improve PT for children with cerebral palsy.
June Newsletter Safe summer activities, Parent spotlight, Parent advocacy training, LEND fellowship, Emergency broadband program
May Newsletter Successful hospital stays, Parent spotlight ,Table Talk, I/DD state council, Help with insurance premiums
April Newsletter Covid Vaccines, Help for medical bills, Parent spotlight, Table Talks, Parents as paid, in-home providers, Legislative session
Please let us know if you would like to be on our mailing list for periodic newsletters