Research (all studies are IRB approved)

• Little Duck Learning Project (Portland Preschool)
• Family's genetic journey: share your story of receiving medical genetics care and how it could be trauma informed (Parent/caregiver of a child under 18 with a genetic condition.) Interested in participating?  
• What adult providers should know about caring for people with childhood onset complex conditions (Caregivers and adults living with complex childhood onset conditions) 

Advisory or Advocacy

• Beneficiary Advisory Council (BAC) If you are a current or past user of Medicaid or the caregiver or family member of someone who uses Medicaid (OHP), you can use your lived experience and ideas to advise the Medicaid Advisory Committee and Oregon Health Authority (OHA).  
• State Advisory Council for Special Education (ODE: parent representative various regions) Eng Spa
• State Interagency Coordinating Council (Governor: Early intervention parent representative statewide) Eng Spa
• Applications are open for Disability Rights Oregon’s (DRO) Partners in Policymaking (PIP) Leadership Series. Applications are due August 31st.
• DRO also has an open survey to drive their annual goals. You are invited to complete it by August 31st.
  • Spanish Survey
  • English Survey

Statewide youth leadership opportunities 

University Center for Excellence in Developmental Disabilities/LEND

• Transition to Adulthood Council (TAC) Paid Community Advisory board for young adults ages 18-26 with disabilities
• Photovoice Research Project for young adults to take photos and then talk about their experiences moving from pediatric to adult care.

Oregon Department of Education

View the complete list of ODE youth leadership opportunities and access applications here. Youth may apply for multiple opportunities; there is no application limit.