Welcome
855-323-6744 (English) 503-931-8930 (Español)
The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs to navigate the complex health care systems. Staffed entirely by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and the professionals who serve them. This website houses hundreds of resources for parents, grandparents, teens, and young adults.
We do our best to keep this website current, but please let us know if you find any broken or outdated links.
What you will find here
Family Support: programs, support groups, and hundreds of tips for parents and caregivers
Family Resources by Age Group: educational, recreational, mental health-related, and many other resources
Oregon Special Health Needs Essentials: a collection of the key systems, organizations and agencies used by children and youth with special health needs. Information about insurance
Financial Help: funding sources for families of all incomes
Newborn Screening and Birth Anomalies: Resource sheets for dozens of specific birth anomalies. Information about Oregon's newborn screening programs
Crisis-Trauma-Emergencies-Safety: resources for challenging situations
Moving to or from Oregon: what families need to know when moving with a child with special health needs
To speak to an OR F2F HIC Parent Partner
dennehy@ohsu.edu--Email us at contact@Oregonfamilytofamily.org for a response within two business days. Or to reach a specific parent partner directly for help, ideas, support, or information:
- Tami Martin
- Margaret Maes, bi-lingual Spanish
- Chuck Smith
- Lydia Dennehy
- Tamara Bakewell
- Ariana Barajas, bi-lingual Spanish
--Use this Referral form English or Formulario de invitación hablar con un padre socio.
--Call us at 855-323-6744 or 503-931-8930 (Spanish)
To find our current events and trainings, as well as other health care topics for children and youth with disabilities or special health needs, visit the Oregon F2FHIC Facebook page
Have a youth age 12-21? Not sure how to start supported decision making?
Contact Parent Partners: Charles Smith or Lydia Dennehy for one on one consultation and support.