Welcome
The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs when navigating complex health care systems. Staffed by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and professionals who serve them. This website houses hundreds of resources for parents, grandparents, and youth.
We do our best to keep this website current, but please let us know if you find any broken or outdated links.
To speak to an OR F2F HIC Parent Partner
--Call 855-323-6744 (English) o 833-990-9930 (español)
--Email us at contact@oregonfamilytofamily.org .
--Or to reach a specific parent partner directly:
- Ana Brooks, bi-lingual Spanish 503-494-6763
- Beth Leverich 503-494-9980
- Chuck Smith 855-323-6744
- Lydia Dennehy 503-494-2765
- Tamara Bakewell 503-494-0865
- Yesenia Causor-Mendoza, bi-lingual Spanish 503-418-1196
--Use our:
- Referral form for families (English)
- Referral form for families (español)
- Referral form for professionals
To sign up for our periodic newsletters fill out this form.
Oregon Family to Family HIC newsletter, news and resources you can use
We have a new on-line newsletter format. Please sign up for our periodic newsletters by filling out this form.
February 2024 Youth Spotlight, Youth leadership, Tall or Small, New rules for OHP, lets connect
January 2024 Tools you can use, ADRC, Grandparent spotlight, medical genetics services event.
November 2023 Preparing your child for events, Adoption Month, Parent Spotlight, Gas Fireplace safety
October 2023 Parent Spotlight, Sharing diagnosis with child and others, Northwest PANDAS/PANS,
September 2023 Caring for yourself while caring for others, Youth Spotlight, New state policies- No shortened days, medical necessity for OHP ages 0-21
July 2023 Gearing Up for Healthy School Year, Parent Spotlight, Genetics Resource, Guide to Genetic Referrals,
June 2023 Genetics Journey, Parent Spotlight, Outdoor tips, Screen time tips, upcoming events
May 2023 Medical Stress, Parent Spotlight, cartoon, pool safety, upcoming events
September 2022 Cartoon, Equity for black youth, HERO- kids, Transition video, School health plans
July 2022 Oregon Kinship Navigator, ADA is 32, Healthier Oregon, Avoid summer sunburns
June 2022 Parent Spotlight, Paid family caregivers, Surprise medical bills being outlawed, Seizure study, Financial beginnings classes for youth
April 2022 Parent Spotlight, Neurology visit tool, Car seat selection, tube feeding risk, Assistive tech. lemon law
February 2022 Parent Spotlight, Table Talks, Internet discounts, AAP family blog, Community Partners Council
December 2021 Parent Spotlight, Who ya gonna call?, Get kids moving, Move to Oregon, Insurance help.
November 2021 Parent Spotlight, Service dogs, Smoothing Transition to Adult Healthcare, Join OR Commission on ASD, Supporting Siblings
October 2021 Parent spotlight, Right wheelchair tips, Resources for rare diseases, Right support for your young adult.
September 2021 Healthcare goals for IEP, Take care of yourself, coordinating your coordinators, Family Organization spotlight.
August 2021 Resources for every "condition", Family organization spotlight, Study of Oregon youth with complex medical conditions, Child tax credit.
July 2021 Moving from Pediatric to Adult Health Care, Parent spotlight, Oregon Kinship Navigator, Input to improve PT for children with cerebral palsy.
June 2021 Safe summer activities, Parent spotlight, Parent advocacy training, LEND fellowship, Emergency broadband program
May 2021 Successful hospital stays, Parent spotlight ,Table Talk, I/DD state council, Help with insurance premiums
April 20211 Covid Vaccines, Help for medical bills, Parent spotlight, Table Talks, Parents as paid, in-home providers, Legislative session
Please let us know if you would like to be on our mailing list for periodic newsletters
Noticias y recursos por familias
Hemos cambiado a un nuevo formato en línea para nuestro boletín. Suscríbete a nuestro boletín llenando este formulario
Table Talks/ Charla de Mesas and events/eventos by month
Oregon's New YSHCN Program: Expanding Health Care for Young Adults with Special Health Care Needs
Nov. 7, 2024 from 6:00-7:00pm
Jueves, 7 de Nov 2024 de 6:00 -7 :00 pm
While you are on the waitlist: Creating Supports and gathering information Aug. 21, 2024
Creating the Structure Your Child Needs July 24, 2024
Cómo crear la estructura que su hijo necesita 24 Julio 2024
Poison Prevention for Caregivers March 21, 2024
Prevención de intoxicaciones para cuidadores 21 de marzo
Table Talk: Injury Prevention March 19, 2024
Table Talk: Tall and Small Feb. 28, 2024
Charla de Mesa: Alto o pequeño 28 feb 2024
Is your child/youth getting the health care services they need? Feb. 20, 2024
¿Su niño/joven está recibiendo toda la atención médica que necesita? 20 de febrero, 2024
Resources and More Feb. 16, 2024 (NE PDX)
Galeria de Recursos 16 de febrero 2025 (NE PDX)
Resources and More Feb. 13, 2024 (Newberg)