Welcome

The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs when navigating complex health care systems.  Staffed by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and professionals who serve them.   This website houses hundreds of resources for parents, grandparents, and youth. 

We do our best to keep this website current, but please let us know if you find any broken or outdated links.

To speak to an OR F2F HIC Parent Partner

--Call 855-323-6744 (English)  o 833-990-9930 (español)   

--Email us at contact@oregonfamilytofamily.org

--Or to reach a specific parent partner directly:

--Use our:

To find our current activities and trainings, as well as other health care topics for children and youth with disabilities or special health needs, visit the Oregon F2FHIC Facebook page.

To sign up for our periodic newsletters fill out this form.

Oregon Family to Family HIC newsletter, news and resources you can use

September 2022 Cartoon, Equity for black youth, HERO- kids, Transition video, School health plans

July 2022 Oregon Kinship Navigator, ADA is 32, Healthier Oregon, Avoid summer sunburns

June 2022  Parent Spotlight, Paid family caregivers, Surprise medical bills being outlawed, Seizure study, Financial beginnings classes for youth

April 2022  Parent Spotlight, Neurology visit tool, Car seat selection, tube feeding risk, Assistive tech. lemon law

February 2022  Parent Spotlight, Table Talks, Internet discounts, AAP family blog, Community Partners Council

December 2021  Parent Spotlight, Who ya gonna call?, Get kids moving, Move to Oregon, Insurance help.

November 2021  Parent Spotlight, Service dogs, Smoothing Transition to Adult Healthcare, Join OR Commission on ASD, Supporting Siblings

October 2021 Parent spotlight, Right wheelchair tips, Resources for rare diseases, Right support for your young adult.

September 2021 Healthcare goals for IEP, Take care of yourself, coordinating your coordinators, Family Organization spotlight.

August 2021 Resources for every "condition", Family organization spotlight, Study of Oregon youth with complex medical conditions, Child tax credit.

July 2021  Moving from Pediatric to Adult Health Care, Parent spotlight, Oregon Kinship Navigator, Input to improve PT for children with cerebral palsy.

June 2021  Safe summer activities, Parent spotlight, Parent advocacy training, LEND fellowship, Emergency broadband program

May 2021 Successful hospital stays, Parent spotlight ,Table Talk, I/DD state council, Help with insurance premiums

April 20211  Covid Vaccines, Help for medical bills, Parent spotlight, Table Talks, Parents as paid, in-home providers, Legislative session

Please let us know if you would like to be on our mailing list   for periodic newsletters

Upcoming events ...

Introduction to HERO Kids (Eng)  Sept 22, 6-7 pm or Sept 23, 12-1 pm

Introduction to HERO Kids (esp.)  Sept. 22, 6-7 pm o Sept. 23, 12-1pm

Our newest video

This colorful, 5-minute animated video, "Moving to Adult Health Care at Age 18: What Families Need to Know", offers parents and youth simple tips to make the process easier. You will see an example of how one family starts the planning conversation with their doctor, and learn five simple questions to ask to get the information you need. This video is aimed specifically at families whose youth experience special health care needs, but is applicable to all.