The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs when navigating complex health care systems. Staffed by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and professionals who serve them. This website houses hundreds of resources for parents, grandparents, and youth.
We do our best to keep this website current, but please let us know if you find any broken or outdated links.
To speak to an OR F2F HIC Parent Partner
--Email us at firstname.lastname@example.org .
--Or to reach a specific parent partner directly:
- Ana Brooks, bi-lingual Spanish
- Margaret Maes, bi-lingual Spanish
- Chuck Smith
- Lydia Dennehy
- Tamara Bakewell
- Referral form for families (English)
- Referral form for families (español)
- Referral form for professionals
To find our current activities and trainings, as well as other health care topics for children and youth with disabilities or special health needs, visit the Oregon F2FHIC Facebook page.
To sign up for our periodic newsletters fill out this form.
Oregon Family to Family HIC newsletter, news and resources you can use
September 2022 Cartoon, Equity for black youth, HERO- kids, Transition video, School health plans
July 2022 Oregon Kinship Navigator, ADA is 32, Healthier Oregon, Avoid summer sunburns
June 2022 Parent Spotlight, Paid family caregivers, Surprise medical bills being outlawed, Seizure study, Financial beginnings classes for youth
April 2022 Parent Spotlight, Neurology visit tool, Car seat selection, tube feeding risk, Assistive tech. lemon law
February 2022 Parent Spotlight, Table Talks, Internet discounts, AAP family blog, Community Partners Council
December 2021 Parent Spotlight, Who ya gonna call?, Get kids moving, Move to Oregon, Insurance help.
November 2021 Parent Spotlight, Service dogs, Smoothing Transition to Adult Healthcare, Join OR Commission on ASD, Supporting Siblings
October 2021 Parent spotlight, Right wheelchair tips, Resources for rare diseases, Right support for your young adult.
September 2021 Healthcare goals for IEP, Take care of yourself, coordinating your coordinators, Family Organization spotlight.
August 2021 Resources for every "condition", Family organization spotlight, Study of Oregon youth with complex medical conditions, Child tax credit.
July 2021 Moving from Pediatric to Adult Health Care, Parent spotlight, Oregon Kinship Navigator, Input to improve PT for children with cerebral palsy.
June 2021 Safe summer activities, Parent spotlight, Parent advocacy training, LEND fellowship, Emergency broadband program
May 2021 Successful hospital stays, Parent spotlight ,Table Talk, I/DD state council, Help with insurance premiums
Please let us know if you would like to be on our mailing list for periodic newsletters