Welcome
The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs when navigating complex health care systems. Staffed by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and professionals who serve them. This website houses hundreds of resources for parents, grandparents, and youth.
We do our best to keep this website current, but please let us know if you find any broken or outdated links.
Upcoming Events - Próximos Eventos
We hope that you will join us
- Martes, 9 de Junio 2026 | 6:00-7:00pm Flyer for:Creciendo juntos: Ayudar a su hijo con necesidades especiales de salud a prosperar Registration link for: Creciendo juntos regístrese
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Wednesday June 10th, 2026 | 12:00-1:00 Flyer for: Growing together: Helping Your Child with Special Health Needs Thrive link for Growing together registration
- Martes 14 de Julio, 2026 | 6-7pm: Flyer for: Alto o pequeño: Apoyar a su hijo para que sean si mismo, sin importar su edad o tamaño link for: Alto o pequeño regístrese
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Wednesday July 15, 2026 | 6-7pm: Tall or small: Supporting your child to be themselves, no matter their age or size link for: Tall or small registration
- Martes 18 de Agosto 2026 6:00-7:00pm Charla de Mesa Recomenzando la Rutina: Planeando el Nuevo Año Escolar Link for Recomenzando la Rutina Regístrese
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Thursday August 20th, 2026 12-1:00pm Table Talk Resetting the Routine: Planning for the New School Year Link for: Resetting the Routine registration
To speak to an OR F2F HIC Parent Partner
--Call 855-323-6744 (English) o 833-990-9930 (español)
--Email us at contact@oregonfamilytofamily.org .
--Reach a specific parent partner directly:
- Alicia Riddle
- Ana Brooks, bi-lingual Spanish
- Beth Leverich
- Chuck Smith
- Lydia Dennehy
- Yesenia Causor-Mendoza, bi-lingual Spanish
To sign up for our periodic newsletters fill out this form.
Newsletters/Noticias y recursos por familias
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Please sign up for our periodic newsletters by filling out this form.
Hemos cambiado a un nuevo formato en línea para nuestro boletín. Suscríbete a nuestro boletín llenando este formulario
Popular pages and topics on our site
Research and Opportunities / Investigaciones y Oportunidades
Research, leadership, and advocacy opportunities for caregivers/parents
Research
- Little Duck Learning Project (Portland Preschool)
- What adult providers should know about caring for people with childhood onset complex conditions (Caregivers and adults living with complex childhood onset conditions)
Advisory or Advocacy
- State Advisory Council for Special Education (ODE: parent representative various regions) Eng Spa
- State Interagency Coordinating Council (Governor: Early intervention parent representative statewide) Eng Spa
- LEND self Advocate position 2026 Paid Sept-May fellowship for interdisciplinary studies at OHSU 18+
- Give input on rules that support new state laws around people with intellectual and developmental disabilities getting mental health and substance use disorder services and treatment when they need it. Opportunities to share your input: Wednesday, June 10, 3 – 4 p.m. Zoom meeting link Meeting ID: 165 235 5179 Passcode: 171874 or Thursday, June 18, 4 – 5 p.m. Zoom meeting link Meeting ID: 165 358 6160 Passcode: 578273 If you would like to see the draft rules email Hilary Harrison hilary.harrison@oha.oregon.gov and request Draft Rule Language_IDD and Discrimination
Statewide youth leadership opportunities
University Center for Excellence in Developmental Disabilities/LEND
- Transition to Adulthood Council (TAC) Paid Community Advisory board for young adults ages 18-26 with disabilities
- Photovoice Research Project for young adults to take photos and then talk about their experiences moving from pediatric to adult care.
Oregon Department of Education
- The State Board of Education (SBE) and ODE's Ongoing Rules Community Advisory (ORCA) - Apply by: June 19, 2026
- LGBTQ2SIA+ Student Success Advisory Group - Apply by: June 30, 2026
View the complete list of ODE youth leadership opportunities and access applications here. Youth may apply for multiple opportunities; there is no application limit.