Families' Tips for Challenging Situations

Parents tell us...

"There were parts of our lives that were hard to talk about, I knew that I needed help."

"At first, I was embarrassed, but our doctor really understood and had some good suggestions."

Behaviors: Fecal smearing, pica (eating non-foods), head banging

Contact your child's doctor and/or case manager and request a behavioral evaluation.  

Read about managing behaviors in Autism Speaks toolkits 

Constipation, impaction, diarrhea, vomiting and other digestion issues

Diapers for older children, teens, and young adults

Contact the Intensive Care Manager or Exceptional Needs Care Coordinator at your health plan to request financial assistance for diapers and supplies. Read our tip sheet: Getting to know your ENCC

Preparing your youth/child for contact with police or paramedics

This can be especially important for children, who have life-threatening medical conditions, wander, or whose behaviors become extreme when they are under stress.

Consider self-disclosing cards and teach your child how to use them. 

Medical ID bracelets can be lifesavers.  Many insurance companies pay for ID bracelets with a prescription.  Some organizations organizations offer them for free, or at a reduced cost. 

Autism Speaks offers social stories about safety  You can order printed copies or use them as templates for creating your own social stories. Learn more in this webinar, "Teaching Safety Skills to Individuals with Autism"

This Emergency room planning sheet was written by parents, for parents to prepare for trips to the emergency room.