Parents tell us...
"There were parts of our lives that were hard to talk about, I knew that I needed help."
"At first, I was embarrassed, but our doctor really understood and had some good suggestions."
Behaviors: Pica (eating non-foods), head banging etc.
Contact your child's doctor and/or case manager and request a behavioral evaluation. Read about managing behaviors in Autism Speaks toolkits
Constipation, impaction, diarrhea, vomiting and other digestion issues
Contact your child's doctor. Digestion issues are included in the Autism Speaks toolkits
Diapers for older children, teens, and young adults
Contact the Intensive Care Manager or Exceptional Needs Care Coordinator at your health plan to request financial assistance for diapers and supplies. Read our tip sheet: Getting to know your ENCC
Preparing your youth/child for contact with police or paramedics
This can be especially important for children who have life-threatening medical conditions, wander, or whose behaviors become extreme when they are under stress.
Medical ID bracelets can be lifesavers. Many insurance companies pay for ID bracelets with a prescription. Some organizations offer them for free, or at a reduced cost.
Autism Speaks offers social stories about safety. You can order printed copies or use them as templates for creating your own. Learn more in this webinar, "Teaching Safety Skills to Individuals with Autism".
This emergency room planning sheet was written by parents and professionals together, to prepare for trips to the emergency room or riding in an emergency vehicle.
Immigration Law Resource Center: One page sheets outlining immigration options for undocumented children.
Oregon Health Authority: Mental health support and information for new moms
Extreme or dangerous behaviors
Oregon Community Developmental Disabilities Program: Stabilization and Crisis Unit for emergency residential care
Financial, food, or medical debt, crisis
Bedbugs, lice, and other infestations
Dealing with a difficult diagnosis
Seattle Children's Hospital: How to handle a difficult prenatal diagnosis
The Conversation Project: "Having the Conversation with Your Seriously Ill Child"
Global Genes: "Parenting a Child with a Life Limiting Illness"
5 part video series demonstrating partnership between family and pediatrician during a child's terminal illness. 1.) Opening 2.) Diagnosis 3.) Anticipatory Guidance 4.) Care Goals and Values 5.) Transitioning to End of Life
Parent incarceration and criminal justice issues
Sesame Street: Tips, videos, and activities
University of Minnesota: "The Justice System and People with Intellectual and Developmental Disabilities."
Autistic Self-Advocacy Network: Autism and safety toolkit
Oregon Department of Corrections: Friends and Family Handbook
Inclusion of resources on our site does not imply endorsement nor does exclusion mean we do not think it is valuable. We work to keep our list of resources current and relevant but it is not exhaustive.