Family Support

Parents tell us...

"I love that I can talk about embarrassing things with other parents and not feel judged."

"Talking to someone who really understands is nice.  People with similar experience give reassurance, ideas, and a hug- real or virtual."

"I need people who can celebrate milestones or cry with us."

Raising a child is challenging enough, without throwing in extra difficulties from special health needs.  Thankfully, there is help.  Find an experienced parent who has a child similar to yours.

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Many families find they need extra information to get them through problems or issues. Find trainings and workshops to help with your family life, child's condition, or health care.

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Families share tips for daily life.  Sometimes called 'playground knowledge'.  Families share tips similar to these, which get them through their days.  

"We watched this video before we went for a haircut." 

"I have a stash of traveling only toys that keeps them fresh."

"We look at the menu on-line ahead of time so that we know what we want to order when we get there."

Families share tips for challenging situations

Some topics are more challenging than others are.  We have collected resources for some of the more challenging situations families face.  For all medical and safety concerns, talk to your provider first.

More tip sheets and toolkits

A collection of miscellaneous tools from families and trusted organizations.