Support for Families

Raising a child is challenging enough-without throwing in extra difficulties from special health needs.  Thankfully, there is help.  Find an experienced parent who has a child similar to yours.

Family Support Organizations

Family-led, these support organizations serve all disabilities.  They help families achieve full inclusion by advocating, problem solving, building connections, offering trainings, and creating fun family events.

Jackson and Josephine counties: Bridging Communities

Clatsop,Deschutes Crook and Jefferson counties: Central Oregon Disability Support Network

Columbia, Lincoln counties: COAAST Network

Yamhill, Polk and Marion counties: Creating Opportunities

Clackamas, Multnomah, and Washington counties: FACT Oregon

Lane County: Families Connected/The Arc

Douglas County: Families Engaging and Thriving Together

Klamath County: Family Advocacy & Support Network

Statewide for all families with parenting concerns:  Reach Out Oregon

A Life-limiting illness: Coping with a Child's Death or Life-limiting Illness

ADHD: Children and Adults with Attention Deficit Hyperactivity Disorder (CHADD)  

Autism: Autism Society of Oregon 

Behavioral or parenting concerns:  Reach Out Oregon

Cerebral Palsy and similar conditions: United Cerebral Palsy  and CP Toolkit from CP NOW

Charcot Marie ToothCharcot Marie Tooth Association 

Deafblind or have Usher Syndrome:  Oregon Deafblind Project

Deaf/Hard of HearingHands and Voices of Oregon

Down syndrome: NW Down Syndrome Association and GiGi's Playhouse

EpilepsyEpilepsy Foundation Oregon 

Fetal Alcohol Syndrome: FASD United and FASD Collaborative Project

Heart conditions: Mended Little Hearts, Sisters by Heart

Hemophilia and other bleeding disorders: Pacific Northwest Bleeding Disorders

Juvenile Diabetes (Type 1): Oregon/SW Washington Juvenile Diabetes Research Foundation

Kidney disease: NW Kidney Kids

Medically complex children: Complex Child Newsletter 

Mental or behavioral health concerns: Oregon Family Support Network

Mental illness: National Alliance Mental Illness    

Prader Willi Syndrome: PWSA

Scoliosis: Scoliosis Curvy Girls

Sickle Cell Anemia: Sickle Cell Anemia Foundation of Oregon

Tourette Syndrome: Tourette Association of America

Service Dogs and Emotional Support Animals

Service and support animals can be a gateway to independence.  These resources can help you decide if an animal is right for your family.

Information about service animals.

Best Mobility Aids Guides:  How to Get a Service Dog

Domesti-pups infographic: Is that a real service dog?

University of Michigan FAQs on Service and Assistance Animals in Housing 

Guide Dogs for the Blind, self-screening: Am I Ready for a Guide Dog? 

Atlas Assistance Dogs: Resources for training your own service dog

Autism Speaks: Resource page about assistance dogs 

Autism Society of Oregon (ASO): Listing of assistance dog organizations 

Canines for Disabled Kids: Technical and financial support for getting a service dog for children under age 18

Dogs for Better Lives: Hearing, and autism service dogs in Oregon

Canine Companions for Independence: Service dogs for Deaf and hard of hearing adults, and those with physical disabilities.

Assistance Dogs International: Certified service dog training in Oregon.

Americans with Disabilities Act: Section on service animals.

Autism Anchoring Dogs: Information about autism anchoring dogs

When considering an emotional support animal, be aware that:

Emotional support animals may be exempt from landlord rules about pet deposits, size or breed limits, or increased rent.  However many rules still apply.  Get more information about laws that apply to fair housing, service dogs, emotional support animals and disabilities. 

Any type of animal can qualify as an emotional support animal, but laws around exotic or dangerous animals still apply.  If you want a letter to show your landlord you will need to get an Oregon licensed mental health professional, or primary care provider, who has worked with you for at least 6 months to write/sign the letter.  There are free template letters on the internet that you can print out and ask them to fill out for you.

Some emotional support animals can fly with you, but you must let the airline know at least 48 hours in advance and there are special conditions for flying with an emotional support animal.  These regulations change so make sure to check before booking a flight.  Different airlines may have different rules.

Workshops, Seminars, and Parenting Classes

Many families find they need extra information to get them through problems or issues.  Find trainings and workshops to help with your family life, child's condition, or health care.  You will also find opportunities to inform Oregon laws and policies, advocate, and share your family's experience.

Oregon Family to Family Health Information Center: Sign up for our newsletter or our Facebook page for current trainings.

Autism Society of Oregon

Central Oregon Disability Support Network

Creating Opportunities

Early Learning Hubs offer home visiting and parenting classes regionally

FACT Oregon

Oregon Council on Developmental Disabilities

ORPARC Oregon Post Adoption Resource Center

OSU Extension Service parenting support 

Parenting Now (Birth to Three)

Swindell's Resource Center

For Court Mandated Parenting Classes for Divorce look up "Parenting classes (your) county."

Several organizations offer roles for parents on boards and advisory councils.  Here is a partial listing.  Contact us if you would like to get involved on a committee, council, or advisory board.

Disclaimer

Inclusion of resources on our site does not imply endorsement nor does exclusion mean we do not think it is valuable. We work to keep our list of resources current and relevant but it is not exhaustive.

Contact Us

tel: 855-323-6744 (English) or 833-990-9930 (español) contact@familytofamily.org