Parents tell us...
"It is not so much knowing everything, as it is knowing, where to find information and how to keep it organized. Tip sheets and toolkits help make life work."
"There are so many smart parents out there! I am glad they are willing to share their tips."
Almost every one of the resources on this page was written by parents of children with special physical, developmental, or behavioral health needs. There is a lot of wisdom here, but remember that you must always do your own research. What worked for someone else may not work for you.
Tip sheets and toolkits
Family life and safety
Tools for keeping organized
Moving from pediatric to adult healthcare
- Intellectual/Developmental Disabilities
- Physical Disabilities
- Congenital Heart Disease
- Type 1 Diabetes
- Turner Syndrome
- Growth Hormone Deficiency
- General Hematology
- Sickle Cell Disease
- End Stage Renal Disease
- Young Adults with Neurologic Disorders
- Juvenile Idiopathic Arthritis
- Systemic Lupus Erythematosus
- Duchenne Muscular Dystrophy
Other transition topics
Meeting medical challenges
Emergency Preparedness Resources and Checklists
This list of resources is not exhaustive. Inclusion of resources on our site does not imply endorsement nor does exclusion mean we do not think it is valuable.