Tip Sheets and Toolkits

Check out our resources

Parents tell us...

"I am so glad we have that durable medical equipment tip sheet.  I have used it several times."

"At first I had no idea what I was doing, I reinvented the wheel every day." 

"There are so many smart parents out there!  I am so glad they are willing to share their tips." 

"I love things written by other parents; they are so much easier to read.  They talk about things that I relate to."  

Almost every one of the resources on this page was written by parents of children with special physical, developmental, or behavioral health needs.  There is a lot of wisdom here, but remember that you must always do your own research.  What worked for someone else may not work for you.   

Education toolkits

Resources and workbooks about topics so complex they need more than one page. 

Education

FACT Oregon: Special education toolkits

Disability Rights Oregon: Short School Day Parent toolkit

CADRE: Steps to Success: Communicating Well With Your Child's School

Grandparents' toolkits

Generations United: Grand Resources

Oregon.gov Grandparents' legal rights

Sexuality and Puberty toolkits

Transition toolkits

Institute on Development and Disability: Transition Guide 

FACT Oregon: LAUNCH

Oregon Center for Developmental Disabilities: Support for different stages of life

Autism Speaks: Transition toolkit

American College of Physicians: Condition-specific transition toolkits

American Academy of Child and Adolecsent Psychology

Facts Sheets for Families: Social Emotional Health

Condition-specific toolkits

Autism Speaks: Autism toolkits

Autism Speaks: Sleep tool kit for teens

Autism Speaks: Haircut tips

Autism Speaks: Medication decisions

Autism Speaks: A better visit with the dentist

Autism Speaks: Making a blood draw easier

Autism Speaks: Puberty and adolescence resource guide

Autism Speaks: Traveling with autism

Oregon Commission on Autism Spectrum Disorder:

Autism navigation Cascades map

Autism navigation Mid-Valley map

Autism navigation Portland Metro map

Autism navigation Southern OR map

United Cerebral Palsy: Cerebral palsy toolkit

Juvenile Diabetes Research Foundation: T D 1 Informational Guides

NW Down Syndrome Association:

National Eating Disorders: NEDA Parent Toolkit

NW Epilepsy Foundation: Epilepsy and My Child

Feeding tube awareness: A Parent's Introduction to Tube Feeding

Global Genes, allies in rare disease: RARE diseases toolkits on many topics

Medically complex children and teens:  Complex Child E-Zine

Sensory Integration/Autism: Recipes for DIY Sensory Tools

Developmental Disabilities/Vision or Hearing Impaired: Toilet training with special needs

Disclaimer

Inclusion of resources on our site does not imply endorsement nor does exclusion mean we do not think it is valuable.  We work to keep our list of resources current and relevant but it is not exhaustive.

Disclaimer

Inclusion of resources on our site does not imply endorsement nor does exclusion mean we do not think it is valuable.  We work to keep our list of resources current and relevant but it is not exhaustive.