Tip Sheets and Toolkits
Parents tell us...
"I am so glad we have that durable medical equipment tip sheet. I have used it several times."
"At first I had no idea what I was doing, I reinvented the wheel every day."
"There are so many smart parents out there! I am so glad they are willing to share their tips."
"I love things written by other parents; they are so much easier to read. They talk about things that I relate to."
Almost every one of the resources on this page was written by parents of children with special physical, developmental, or behavioral health needs. There is a lot of wisdom here, but remember that you must always do your own research. What worked for someone else may not work for you.
Tip sheets A-Z
A variety of tips BY families FOR families.
Exceptional Needs Care Coordinator
Insurance Problems Tracking Sheet
Is My Child Eligible for Developmental Disability Services?
Make the Best of Your Appointment
Patient-Centered Primary Care Homes
Starting or Joining a Support Group
Transition-Finding an Adult Health Care Provider
Education toolkits
Resources and workbooks about topics so complex they need more than one page.
Education
FACT Oregon: Special education toolkits
Disability Rights Oregon: Short School Day Parent toolkit
CADRE: Steps to Success: Communicating Well With Your Child's School
Grandparents' toolkits
Generations United: Grand Resources
Oregon.gov Grandparents' legal rights
Sexuality and Puberty toolkits
Vanderbilt Kennedy Center: Healthy Bodies for Boys with Disabilities
Vanderbilt Kennedy Center: Healthy Bodies for Girls with Disabilities
Transition toolkits
Institute on Development and Disability: Transition Guide
FACT Oregon: LAUNCH
Oregon Center for Developmental Disabilities: Support for different stages of life
Autism Speaks: Transition toolkit
American College of Physicians: Condition-specific transition toolkits
Condition-specific toolkits
Autism Speaks: Autism toolkits
Autism Speaks: Sleep tool kit for teens
Autism Speaks: Haircut tips
Autism Speaks: Medication decisions
Autism Speaks: A better visit with the dentist
Autism Speaks: Making a blood draw easier
Autism Speaks: Puberty and adolescence resource guide
Autism Speaks: Traveling with autism
Oregon Commission on Autism Spectrum Disorder:
Autism navigation Cascades map
Autism navigation Mid-Valley map
Autism navigation Portland Metro map
Autism navigation Southern OR map
United Cerebral Palsy: Cerebral palsy toolkit
Juvenile Diabetes Research Foundation: T D 1 Informational Guides
NW Down Syndrome Association:
National Eating Disorders: NEDA Parent Toolkit
NW Epilepsy Foundation: Epilepsy and My Child
Feeding tube awareness: A Parent's Introduction to Tube Feeding
Global Genes, allies in rare disease: RARE diseases toolkits on many topics
Medically complex children and teens: Complex Child E-Zine
Sensory Integration/Autism: Recipes for DIY Sensory Tools
Developmental Disabilities/Vision or Hearing Impaired: Toilet training with special needs