Tip Sheets and Toolkits

Check out our resources

Parents tell us...

"I am so glad we have that durable medical equipment tip sheet.  I have used it several times."

"At first I had no idea what I was doing, I reinvented the wheel every day." 

"There are so many smart parents out there!  I am so glad they are willing to share their tips." 

"I love things written by other parents; they are so much easier to read.  They talk about things that I relate to."  

Almost every one of the resources on this page was written by parents of children with special physical, developmental, or behavioral health needs.  There is a lot of wisdom here, but remember that you must always do your own research.  What worked for someone else may not work for you.   


Resources and workbooks about topics so complex they need more than one page. 

Grandparents' toolkits

Sexuality and Puberty toolkits

Vanderbilt Kennedy Center: Healthy Bodies Guidebooks, for Boys with Disabilities and Girls with Disabilities.  Translations available on this page as well.

American Academy of Child and Adolecsent Psychology

Facts Sheets for Families: Social Emotional Health

Condition-specific toolkits

Autism Speaks: Autism toolkits

Autism Speaks: Sleep tool kit for teens

Autism Speaks: Haircut tips

Autism Speaks: Medication decisions

Autism Speaks: A better visit with the dentist

Autism Speaks: Making a blood draw easier

Autism Speaks: Puberty and adolescence resource guide

Autism Speaks: Traveling with autism

United Cerebral Palsy: Cerebral palsy toolkit

Juvenile Diabetes Research Foundation: T D 1 Informational Guides

NW Down Syndrome Association:

National Eating Disorders: NEDA Parent Toolkit

NW Epilepsy Foundation: Epilepsy and My Child

Feeding tube awareness: A Parent's Introduction to Tube Feeding

Foster Care: Foster Care & Disability: A Toolkit for Foster Parents

Guidebook for Caregivers of Children with Rare and/or Serious Illnesses

Global Genes, allies in rare disease: RARE diseases toolkits on many topics

Medically complex children and teens:  Complex Child E-Zine

Sensory Integration/Autism: Recipes for DIY Sensory Tools

Developmental Disabilities/Vision or Hearing Impaired: Toilet training with special needs

Transition to Adulthood and Adult Health Care

Institute on Development and Disability: Transition Guide 

Oregon Center for Developmental Disabilities: Support for different stages of life

Autism Speaks: Transition toolkit

American College of Physicians: Condition-specific transition toolkits

Transition to Adult Health Care

FACT Oregon Preparing for Adulthood on their resource hub


Inclusion of resources on our site does not imply endorsement nor does exclusion mean we do not think it is valuable.  We work to keep our list of resources current and relevant but it is not exhaustive. If you have any questions or would like help call 855-323-6744 (English) o 833-990-9930 (español)