Resources for Children and Youth with Special Health Care Needs (CYSHCN)

Supporting families

Partnering with Families during a terminal illness

5 part video series demonstrating partnership between family and pediatrician for a child with Tay-Sach's disease.  

1.) Opening    2.) Diagnosis   3.) Anticipatory Guidance   4.) Care Goals and Values   5.) Transitioning to End of Life 

Peer support and navigation assistance

OR F2F HIC: English/Spanish referral form 

Oregon Family Organizations: Family support organizations

OR F2F HIC: Birth anomaly resource sheets

Vaccine hesitancy

Boost Oregon: Counseling vaccine hesitant parents

Trauma

Resources related to trauma's effects on children   

Workshops, seminars, and parenting classes for families

OR F2F HIC clearinghouse of training opportunities for families of CYSHCN

Supporting LGBTQ children and youth

SAMHSA: A practitioner's resource guide: "Helping Families Support their LGBT Children"

OHSU:  Transgender Health Program

Supporting immigrant families in Getting Services

Childcare worker reading to children on the couch

Disclaimer

Inclusion of resources on our site does not imply endorsement nor does exclusion mean we do not think it is valuable. We work to keep our list of resources current and relevant but it is not exhaustive.

Contact us: 855-323-6744 (English) 503-931-8930 (Spanish) contact@familytofamily.org