Hereditary Hemorrhagic Telangiectasia (HHT) Center
Find exceptional care for HHT and blood vessel disorders
Our highly skilled specialists work together to help you manage hereditary hemorrhagic telangiectasia (HHT) and live normally. You will find:
- A caring team of experts with deep experience in HHT
- A designated HHT Center of Excellence and the largest HHT program in Oregon
- Advanced, minimally invasive therapies to relieve HHT and bleeding symptoms
What is HHT?
Also known as Osler-Weber-Rendu syndrome, HHT is an inherited disorder that causes blood vessels to bleed. It can affect people of any age, race or gender.
Normally blood vessels called capillaries connect arteries and veins and help blood flow smoothly through the body. In HHT, some blood vessels don’t form normally. This creates vessels that can break easily and cause bleeding.
There is no cure for HHT, but early diagnosis and treatment can help manage symptoms and prevent complications.
HHT-related conditions we treat
- Abnormal blood vessels
- Bleeding disorders
- Brain vascular disorders
- Epistaxis (frequent nosebleeds)
- Iron-deficiency anemia
- Liver vascular malformations
- Pulmonary arteriovenous malformations (PAVMs)
- Vascular disorders
How to get care
You’ll need a referral from your doctor or specialist to get care at our HHT clinic. If you have questions, please call 503-494-7660
Meet our team
Our specialists are some of the nation’s most experienced HHT experts. Our multidisciplinary team coordinates care for your symptoms. You may see specialists in interventional radiology, cardiology, ENT (ear, nose and throat), lung health, neurology, genetics and other fields.
Program director
Program associate director
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- Claire Kaufman, M.D.
- Accepting new patients
Cardiology
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- S. Albert Camacho, M.D.
- Accepting new patients
Dermatology
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- Heather Onoday, FNP-C, DCNP (she/her)
- Accepting new patients
Gastroenterology and hepatology
Hematology
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- Bethany Samuelson Bannow, M.D., M.C.R. (she/her)
- Accepting new patients
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- Thomas G. DeLoughery, M.D., M.A.C.P., FAWM
- Accepting new patients
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- Sven Olson, M.D.
- Accepting new patients
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- Merav Sendowski, M.D.
- Accepting new patients
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- Joseph Shatzel, M.D., M.C.R.
- Accepting new patients
Pediatric HHT and hematology
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- Kristina M. Haley, D.O., M.C.R.
- Accepting new patients
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- Trisha E. Wong, M.D., M.S.
- Accepting new patients
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- Melinda Wu, M.D., M.C.R.
- Accepting new patients
Interventional radiology
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- John A. Kaufman, M.D., M.S.
- Accepting new patients
Pediatric neurology
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- Jenny L. Wilson, M.D. (she/her)
- Accepting new patients
Neurosurgery
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- Aclan Dogan, M.D.
- Accepting new patients
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- Jesse J. Liu, M.D.
- Accepting new patients
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- Olabisi Sanusi, M.D.
- Accepting new patients
Pediatric neurosurgery
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- Kelly L. Collins, M.D.
- Accepting new patients
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- Jesse L. Winer, M.D., FAANS
- Accepting new patients
Otolaryngology
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- Kara Y. Detwiller, M.D.
- Accepting new patients
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- Mathew Geltzeiler, M.D.
- Accepting new patients
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- Timothy L. Smith, M.D., M.P.H., F.A.C.S.
- Accepting new patients
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- Lindsay E. Wyant, M.S., P.A.-C.
- Accepting new patients
Pediatric otolaryngology
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- Monica Deshpande, F.N.P.
- Accepting new patients
Pulmonary hypertension
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- Jeffrey Robinson, M.D.
- Accepting new patients
For families
Call 503-494-7660 to:
- Request an appointment
- Seek a second opinion
- Ask a question
Weekdays, 8 a.m. - 4 p.m.
Location
3181 SW Sam Jackson Park Road
Portland, OR 97239-3011
Free parking for patients and visitors
Refer a patient
- Refer your patient to OHSU.
- Call 503-494-4567 to seek provider-to-provider advice.