Hereditary Hemorrhagic Telangiectasia (HHT) Center
Find exceptional care for HHT and blood vessel disorders
- A caring team of experts with deep experience in HHT
- A designated HHT Center of Excellence and the largest HHT program in Oregon
- Advanced, minimally invasive therapies to relieve HHT and bleeding symptoms
What is HHT?
Also known as Osler-Weber-Rendu syndrome, HHT is an inherited disorder that causes blood vessels to bleed. It can affect people of any age, race or gender.
Normally blood vessels called capillaries connect arteries and veins and help blood flow smoothly through the body. In HHT, some blood vessels don’t form normally. This creates vessels that can break easily and cause bleeding.
There is no cure for HHT, but early diagnosis and treatment can help manage symptoms and prevent complications.
HHT-related conditions we treat include:
- Abnormal blood vessels
- Bleeding disorders
- Brain vascular disorders
- Epistaxis (frequent nosebleeds)
- Iron-deficiency anemia
- Liver vascular malformations
- Pulmonary arteriovenous malformations (PAVMs)
- Vascular disorders
How to get care
You’ll need a referral from your doctor or specialist to get care at our HHT clinic. If you have questions, please call 503-494-7660
Meet our team
Our specialists are some of the nation’s most experienced HHT experts. Our multidisciplinary team coordinates care for your symptoms. You may see specialists in interventional radiology, cardiology, ENT (ear, nose and throat), lung health, neurology, genetics and other fields.
Mark S. Chesnutt, M.D., is the HHT program director and a professor in the Division of Pulmonary and Critical Care Medicine, Department of Medicine.
-
-
Appointments and titles
- Professor of Medicine, Division of Pulmonary, Allergy and Critical Care Medicine, School of Medicine
-
Areas of interest
- HHT
- Pulmonary arteriovenous fistula (PAVF)
- Pulmonary arteriovenous malformation (PAVM)
-
Claire Kaufman, M.D., is the HHT program associate director and an associate professor in the Department of Interventional Radiology.
-
-
Appointments and titles
- Associate Professor of Interventional Radiology, School of Medicine
-
Areas of interest
- Vascular Malformations
- Hereditary Hemorrhagic Telangiectasia
- Prostate Interventions
- Women's Interventions
- Portal Hypertension
-
Cardiology
-
-
Appointments and titles
- Associate Professor of Medicine, Division of Cardiovascular Medicine, School of Medicine
-
Dermatology
-
-
Appointments and titles
- Associate Professor of Dermatology, School of Medicine
-
Gastroenterology and hepatology
-
-
Appointments and titles
- Associate Professor of Medicine, Division of Gastroenterology and Hepatology, School of Medicine
-
Hematology
-
-
Appointments and titles
- Associate Professor of Medicine, Division of Hematology/Medical Oncology, School of Medicine
-
Areas of interest
- Bleeding in hemophilia carriers
- Bleeding and thrombosis in pregnancy
- Abnormal uterine bleeding in anticoagulated women
- Diagnosis and treatment of bleeding disorders
-
-
-
Appointments and titles
- Professor of Medicine, School of Medicine
-
-
-
Appointments and titles
- Associate Professor of Medicine, Division of Hematology/Medical Oncology, School of Medicine
-
Areas of interest
- Venous and arterial thrombosis
- Hemophilia
- Von Willebrand disease
-
-
-
Appointments and titles
- Adjunct Assistant Professor of Medicine, School of Medicine
-
-
-
Appointments and titles
- Associate Professor of Biomedical Engineering, School of Medicine
-
Pediatric HHT and hematology
-
-
Appointments and titles
- Associate Professor of Pediatrics, Division of Hematology and Oncology, School of Medicine
-
Areas of interest
- Bleeding disorders such as Hemophilia, von Willebrand Disease, and platelet function disorders
- Immune Thrombocytopenia
- Venous Thromboembolism
- Heavy Menstrual Bleeding evaluation and management
-
-
-
Appointments and titles
- Professor of Pediatrics, School of Medicine
-
Areas of interest
- Hemoglobinopathies, including sickle cell disease and thalassemia
- Pediatric transfusion Medicine/blood banking
- Bleeding and clotting disorders in children
- Unconscious bias and health disparities
-
-
-
Appointments and titles
- Assistant Professor of Pediatrics, Division of Hematology and Oncology, School of Medicine
-
Interventional radiology
-
-
Appointments and titles
- Professor of Interventional Radiology, School of Medicine
-
Pediatric neurology
-
-
Appointments and titles
- Associate Professor of Pediatrics, Division of Neurology, School of Medicine
-
Areas of interest
- Pediatric stroke
- Pediatric movement disorders
- Cerebral palsy
- Spasticity and tone management
- Neurodevelopment
- Neurogenetics
-
Neurosurgery
-
-
Appointments and titles
- Professor of Neurological Surgery, Division of Skull Base and Cerebrovascular, School of Medicine
-
-
-
Appointments and titles
- Assistant Professor of Neurological Surgery, Division of Skull Base and Cerebrovascular, School of Medicine
- Assistant Professor of Interventional Radiology, School of Medicine
-
-
-
Appointments and titles
- Assistant Professor of Neurological Surgery, School of Medicine
-
Areas of interest
- Skull base tumors
- Brain tumors
-
Pediatric neurosurgery
-
-
Appointments and titles
- Assistant Professor of Neurological Surgery, Division of Pediatric Neurosurgery, School of Medicine
-
Areas of interest
- Epilepsy
- Skull base and other complex tumors
- Endoscopic surgery
- General pediatric neurosurgery
-
-
-
Appointments and titles
- Professor of Neurological Surgery, School of Medicine
-
Areas of interest
- Pediatric epilepsy, Cranial Synostosis, Chiari Malformation, Tethered Spinal Cord, Neurosurgical Education
-
-
-
Appointments and titles
- Associate Professor of Neurological Surgery, School of Medicine
-
Areas of interest
- Pediatric neurosurgery
- Neuro-oncology
- Congenital neurological malformations
- Neurovascular disorders
- Hydrocephalus
-
Otolaryngology
-
-
Appointments and titles
- Associate Professor of Otolaryngology - Head and Neck Surgery, Division of Rhinology and Sinus Surgery, School of Medicine
-
-
-
Appointments and titles
- Associate Professor of Otolaryngology - Head and Neck Surgery, Division of Rhinology and Sinus Surgery, School of Medicine
-
Areas of interest
- Special focus on benign and malignant tumors of the nose and sinuses, sinusitis, nasal polyps and skull base surgery
-
-
-
Appointments and titles
- Professor of Otolaryngology - Head and Neck Surgery, Division of Rhinology and Sinus Surgery, School of Medicine
- Professor of Otolaryngology - Head and Neck Surgery, School of Medicine
-
Areas of interest
- Outcomes Research
- Quality of Life in Sinus Disease and Management
- Clinical Trials Research
-
-
-
Appointments and titles
- Instructor of Otolaryngology - Head and Neck Surgery, Division of Rhinology and Sinus Surgery, School of Medicine
-
Pediatric otolaryngology
-
-
Appointments and titles
- Instructor of Otolaryngology - Head and Neck Surgery, Division of Pediatric Otolaryngology, School of Medicine
- Instructor of Otolaryngology - Head and Neck Surgery, School of Medicine
-
Pulmonary hypertension
-
-
Appointments and titles
- Associate Professor of Medicine, Division of Pulmonary, Allergy and Critical Care Medicine, School of Medicine
-
Areas of interest
- Pulmonary arterial hypertension
- Chronic thromboembolic pulmonary hypertension
- Pulmonary embolism
- Care of the critically ill
- High altitude medicine
-
For families
Call 503-494-7660 to:
- Request an appointment
- Seek a second opinion
- Ask a question
Weekdays, 8 a.m. - 4 p.m.
Location
Parking is free for patients and their visitors.
OHSU Hospital
Oregon Health & Sciences University
3181 SW Sam Jackson Park Road
Portland, OR 97239-3011