If you or a loved one has recently been diagnosed with Alzheimer’s disease, it can seem overwhelming. The first step is to learn more about the condition so you can be prepared. Here, you’ll find resources to help, including:
- A newsletter you can sign up for
- Actions you can take in the early stages
- Support groups and a workshop
- Information about brain health and Alzheimer’s research
- Reliable websites with practical tips and information
Find additional OHSU Brain Institute patient and family resources.
Alzheimer’s Update newsletter
Our Alzheimer’s Update newsletter offers information on brain health, OHSU research programs and other topics.
What you can do now
If you or someone you know is in the early stages of Alzheimer’s disease or other dementia, you can steps now. The following can help you enjoy life and prepare for changes ahead.
Stay healthy: Keep healthy habits. A nutritious diet and exercise can maintain your physical health. Seeing providers regularly for medical, dental and vision care is also important for overall wellness.
Be social: Spend time with your family and friends doing activities you enjoy. Research shows that staying socially connected can delay memory loss.
Talk about dementia: Share your diagnosis with those close to you. Be honest about your feelings and the support you need.
Prepare for change: Expect Alzheimer’s disease to cause changes in your life over time. It can be frustrating to struggle with tasks that used to be easy. Give yourself time to do things, and get help from others when things become difficult.
Connect with organizations: Join a group such as the Alzheimer’s Association, which can help you and your family adjust. Groups familiar with your condition can help you make life more comfortable and support your independence.
The ACTNOW research project collects information from voluntary participants to promote research. Participants receive research updates and invitations to events and opportunities. The project was started by the Layton Aging and Alzheimer’s Disease Center.
Learn more about OHSU research on aging, Alzheimer’s and other dementias.
Workshop, support groups and clinic
“Getting Started: Living With Memory Concerns” is a free workshop led by OHSU nurses Gillian Devereux, RN, and Allison Bianchi, M.P.H, M.S.N., RN. It’s for patients, family members and care partners who are new to Alzheimer’s disease and related dementia. The workshop is presented in partnership with the Alzheimer’s Association.
Topics: This one-visit workshop covers living with memory concerns related to Alzheimer’s disease, including:
- Care for the person with a memory disorder
- Support for the caregiver
- Introduction to Alzheimer’s Association programs
- Community resources
When: 3 to 4:30 p.m. on the first Thursday of every month
OHSU Center for Health & Healing Building 1
Neurology clinic, eighth floor
3303 S.W. Bond Ave.
Portland, OR 97239
Map and directions
Register: Call the Alzheimer’s Association at 800-272-3900
- Call 503-494-7615
- Email AlzheimersRN@ohsu.edu
- Download the Getting Started: Living With Memory Concerns workshop flyer
HOPE Dementia Support: Support groups in the Portland area and in Clark County, Washington.
ALZConnected: Online community, sponsored by the Alzheimer’s Association, with forums for caregivers and people with dementia.
Kathy Wild, Ph.D., leads a monthly support group for caregivers of people with frontotemporal dementia (FTD) and related disorders.
These conditions often cause challenging behavior and personality changes that can lead to caregiver stress and exhaustion. The group gives caregivers a chance to receive emotional support while sharing strategies and solutions.
The group is open to families of someone who has received care at the Layton Aging and Alzheimer’s Disease Center. Contact Dr. Wild at 503-494-6975 for more information.
360 Clinic: Our team provides end-of-life guidance for patients and families dealing with Alzheimer’s or another dementia. In our 360 Clinic, we guide patients through a comprehensive 360-degree view of their journey. Using interviews, we review their life goals and refer them to the resources they need to accomplish these goals.
OHSU video library
Genetic Risk and Prevention of Alzheimer’s Disease
Dr. Aimee Pierce
Feb. 4, 2019
23 and Me … And You; Should You Test Yourself for Alzheimer’s and Parkinson’s Genes?
Dr. Joseph Quinn
Nov. 9, 2017
Dietary Fats and Healthy Brain Aging
Dr. Lynne Shinto
October 15, 2019
Talking About Brain Health in a Culturally Responsive Way
June 12, 2019
Supporting Brain Health with Cognitive Rehabilitation
Kristin Knight, M.S., CCC-SLP
Haley Landau, M.S., CCC-SLP
April 26, 2018
The ‘New Normal’ or the New Abnormal: Making Sense of Cognitive Changes Over Time
Allison Lindauer, Ph.D.
April 17, 2017
- Alzheimer’s and Related Dementias Education and Referral Center (ADEAR), with information on support for caregivers
- Aging and Disability Resource Connection of Oregon, including caregiving information; 855-673-2372
- Alzheimer’s Association, with a 24/7 help line at 800-272-3900
- Alzheimer’s Foundation of America, with a help line at 866-232-8484
- Eldercare locator
- Alzheimer’s and Dementia Caregiver Center, Alzheimer’s Association
- Alzheimer’s Caregiving, National Institute on Aging
- Alzheimer’s Caregiving: Caring for Yourself, National Institute on Aging
- Relieving Stress & Anxiety: Resources for Alzheimer’s Caregivers, National Institute on Aging
- Caregiver Action Network
- Family Caregiver Alliance
Download helpful information and resources about Alzheimer’s disease as PDFs that you can print or share with others:
- Downloadable Resources, Alzheimer’s Association
- Family Caregiver Handbook, Oregon Department of Human Services
- Family Caregiver Handbook, Washington State Department of Social and Health Services
- Basics of Alzheimer’s Disease, Alzheimer’s Association
- Understanding Alzheimer’s disease: What you need to know, National Institute on Aging
- Referral: To become a patient, please ask your doctor for a referral.
- Questions: For questions about arranging a referral or to make a follow-up appointment, call 503-494-7772.
- Nurse line: To talk with a nurse about questions or concerns, call 503-494-7615.
Parking is free for patients and their visitors.
Center for Health & Healing Building 1, eighth floor
3303 S.W. Bond Ave.
Portland, OR 97239
Map and directions
Refer a patient
- Refer your patient to OHSU.
- Call 503-494-4567 to seek provider-to-provider advice.
‘There are tears, but also laughing’
Meet Kate, who joined OHSU’s support group for caregivers after her husband was diagnosed with frontotemporal dementia (FTD). “We talk to each other, make suggestions, share what's worked, and what hasn't,” Kate says.