Alzheimer's Disease: Resources for Patients and Families
If you or a family member has recently been diagnosed with Alzheimer’s disease, it can seem overwhelming. The first step is to learn more about the condition so you can be prepared. Here, you’ll find resources to help, including:
- A newsletter you can sign up for
- Actions you can take in the early stages
- Support groups and a workshop
- Information about brain health and Alzheimer’s research
- Reliable websites with practical tips and information
Find additional OHSU Brain Institute patient and family resources.
Alzheimer’s Update newsletter
Our Alzheimer’s Update newsletter offers information on brain health, OHSU research programs and other topics.
What you can do now
If you or someone you know is in the early stages of Alzheimer’s disease or other dementia, you can steps now. The following can help you enjoy life and prepare for changes ahead.
Stay healthy: Keep healthy habits. A nutritious diet and exercise can maintain your physical health. Seeing providers regularly for medical, dental and vision care is also important for overall wellness.
Be social: Spend time with your family and friends doing activities you enjoy. Research shows that staying socially connected can delay memory loss.
Talk about dementia: Share your diagnosis with those close to you. Be honest about your feelings and the support you need.
Prepare for change: Expect Alzheimer’s disease to cause changes in your life over time. It can be frustrating to struggle with tasks that used to be easy. Give yourself time to do things, and get help from others when things become difficult.
Connect with organizations: Join a group such as the Alzheimer’s Association, which can help you and your family adjust. Groups familiar with your condition can help you make life more comfortable and support your independence.
The ACTNOW research project collects information from voluntary participants to promote research. Participants receive research updates and invitations to events and opportunities. The project was started by the Layton Aging and Alzheimer’s Disease Center.
Learn more about OHSU research on aging, Alzheimer’s and other dementias.
Workshops and support groups
“Getting Started: Living With Memory Concerns” is a free online workshop led by OHSU's Gillian Devereux, RN. It’s for patients, family members and care partners who are new to Alzheimer’s disease and related dementia. The workshop is presented in partnership with the Alzheimer’s Association.
Topics: This one-visit workshop covers living with memory concerns related to Alzheimer’s disease, including:
- Care for the person with a memory disorder
- Support for the caregiver
- Introduction to Alzheimer’s Association programs
- Community resources
When: 3 to 4:30 p.m. on the first Thursday of every month
Where: Online; you'll receive a web link when you register.
Register: Call the Alzheimer’s Association at 800-272-3900.
- Call 503-494-7615
- Email AlzheimersRN@ohsu.edu
- Download the Getting Started: Living With Memory Concerns workshop flyer
Alzheimer’s Association support groups in Oregon and southwest Washington, in Washington state and northern Idaho, and in greater Idaho.
HOPE Dementia Support: Support groups in the Portland area and in Clark County, Washington.
ALZConnected: Online community, sponsored by the Alzheimer’s Association, with forums for caregivers and people with dementia.
Allison Lindauer, Ph.D., NP, leads a monthly support group for caregivers of people with frontotemporal dementia (FTD) and related disorders.
These conditions often cause challenging behavior and personality changes that can lead to caregiver stress and exhaustion. The group gives caregivers a chance to receive emotional support while sharing strategies and solutions.
The group is open to families of someone who has received care at the Layton Aging and Alzheimer’s Disease Center. Contact Dr. Lindauer at 503-494-6976 for more information.
CeleBRAINtion is a town hall about brain health and dementia research, hosted by the Layton Center. At this quarterly event, attendees can:
- Speak directly with Layton Center leaders during a Q&A.
- Learn about Layton Center clinical trials and research studies.
- Connect with others invested in dementia research.
Interested in joining the next event? Email our team at ADoutreach@ohsu.edu.
Videos from our Brain TLC lecture series
The Layton Center hosts the Brain TLC lecture series. We invite experts to talk about brain health, and the latest in dementia and aging research. Email us at ADoutreach@ohsu.edu to receive email notifications of Brain TLC events.
Is Prevention of Alzheimer's Disease Possible?
Dr. Aimee Pierce
June 16, 2020
Genetic Risk and Prevention of Alzheimer’s Disease
Dr. Aimee Pierce
Feb. 4, 2019
23 and Me … And You; Should You Test Yourself for Alzheimer’s and Parkinson’s Genes?
Dr. Joseph Quinn
Nov. 9, 2017
Unraveling the mysterious role of sleep in brain neurodegeneration
Dr. Miranda Lim
March 15, 2022
Understanding Lewy Body dementia
Kathy Teyler Jarrett
Oct. 15, 2021
Dietary Fats and Healthy Brain Aging
Dr. Lynne Shinto
Oct. 15, 2019
Talking About Brain Health in a Culturally Responsive Way
June 12, 2019
Supporting Brain Health with Cognitive Rehabilitation
Kristin Knight, M.S., CCC-SLP
Haley Landau, M.S., CCC-SLP
April 26, 2018
The ‘New Normal’ or the New Abnormal: Making Sense of Cognitive Changes Over Time
Allison Lindauer, Ph.D.
April 17, 2017
Using technology to advance aging, Alzheimer's disease and caregiver research
Dr. Zach Beattie
Oct. 5, 2020
Aging and Financial Capacity
Dr. Kathy Wild
Jan. 22, 2020
Improving Diagnosis of Alzheimer’s Disease and Lewy Body Dementia
Dr. Joseph Quinn
Dementia and Vision
Dr. William Hills
Oct. 13, 2016
- Alzheimer’s and Related Dementias Education and Referral Center (ADEAR), with information on support for caregivers
- Aging and Disability Resource Connection of Oregon, including caregiving information; 855-673-2372
- Alzheimer’s Association, with a 24/7 help line at 800-272-3900
- Alzheimer’s Foundation of America, with a help line at 866-232-8484
- Eldercare locator
- Alzheimer’s and Dementia Caregiver Center, Alzheimer’s Association
- Alzheimer’s Caregiving, National Institute on Aging
- Alzheimer’s Caregiving: Caring for Yourself, National Institute on Aging
- Relieving Stress & Anxiety: Resources for Alzheimer’s Caregivers, National Institute on Aging
- Caregiver Action Network
- Family Caregiver Alliance
Download helpful information and resources about Alzheimer’s disease as PDFs that you can print or share with others:
- Downloadable Resources, Alzheimer’s Association
- Family Caregiver Handbook, Oregon Department of Human Services
- Family Caregiver Handbook, Washington State Department of Social and Health Services
- Basics of Alzheimer’s Disease, Alzheimer’s Association
- Understanding Alzheimer’s disease: What you need to know, National Institute on Aging
- Referral: To become a patient, please ask your doctor for a referral.
- Questions: For questions about arranging a referral or to make a follow-up appointment, call 503-494-7772.
- Nurse line: To talk with a nurse about questions or concerns, call 503-494-7615.
Parking is free for patients and their visitors.
Center for Health & Healing Building 1, eighth floor
3303 S. Bond Ave.
Portland, OR 97239
Map and directions
Refer a patient
- Refer your patient to OHSU.
- Call 503-494-4567 to seek provider-to-provider advice.
- Resources for patients and families
- Patient and caregiver stories
- Research and clinical trials
- Learn about current research opportunities: 503-494-7647 or email@example.com