Alzheimer's Disease: Resources for Patients and Families

A mother and daughter smiling and embracing

An Alzheimer’s disease diagnosis for you or a family member can feel overwhelming. The first step is to learn more so you can be prepared. We offer resources including: 

  • A newsletter
  • Actions you can take in the early stages 
  • Support groups and a workshop 
  • Information about brain health and Alzheimer’s research 
  • Reliable websites with practical tips and information 

Find more patient and family resources.

Newsletter

Our Alzheimer’s Update newsletter offers information on brain health, OHSU research programs and other topics.

What you can do now

If you or someone you know is in the early stages of Alzheimer’s disease or other dementia, you can take steps now.   

Stay healthy: A nutritious diet and exercise can protect your health. It's also important to get regular medical, dental and vision care. 

Be social: Spend time with family and friends doing things you enjoy. Research shows that staying socially connected can delay memory loss.  

Talk about dementia: Share your diagnosis with those close to you. Be honest about your feelings and the support you need. 

Prepare for change: Expect Alzheimer’s disease to cause changes in your life over time. It can be frustrating to struggle with tasks that used to be easy. Give yourself time to do things, and get help from others when things become difficult. 

Connect with organizations: Join a group such as the Alzheimer’s Association, which can help you and your family adjust. Groups familiar with your condition can help you make life more comfortable and support your independence.

The ACTNOW research registry matches voluntary participants with a research study or clinical trial. Participants also receive newsletter updates about study opportunities. The registry was started by the Layton Aging and Alzheimer’s Disease Center.

Learn more about OHSU research on aging, Alzheimer’s and other dementias.

Workshops and support groups

“Getting Started: Living With Memory Concerns” is a free online workshop led by OHSU's Gillian Devereux, RN. It’s for patients, family members and care partners who are new to Alzheimer’s disease and related dementia. The workshop is presented in partnership with the Alzheimer’s Association.  

Topics: This onetime workshop covers living with memory concerns related to Alzheimer’s disease, including: 

  • Care for the person with a memory disorder 
  • Support for the caregiver 
  • Introduction to Alzheimer’s Association programs 
  • Community resources 

When: 3 to 4:30 p.m. on the first Thursday of each month. 

Where: Online; you'll receive a web link when you register. 

Register: Call the Alzheimer’s Association at 800-272-3900

More information: 

Alzheimer’s Association support groups:

HOPE Dementia Support: Support groups in the Portland area and in Clark County, Washington. 

ALZConnected: Online community, sponsored by the Alzheimer’s Association, with forums for caregivers and people with dementia.  

 

Allison Lindauer, Ph.D., NP, leads a monthly support group for caregivers of people with frontotemporal dementia (FTD) and related disorders. 

These conditions often cause challenging behavior and personality changes that can lead to caregiver stress and exhaustion. The group gives caregivers a chance to receive emotional support while sharing strategies and solutions.  

The group is open to families of someone who has received care at the Layton Aging and Alzheimer’s Disease Center. Contact Dr. Lindauer at 503-494-6976 or emailadoutreach@ohsu.edu for more information.

Videos from our Brain TLC lecture series

The Layton Center hosts the Brain TLC lecture series. We invite experts to talk about brain health, and the latest in dementia and aging research. Email us at ADoutreach@ohsu.edu to receive email notifications of Brain TLC events.

The Science of Supplements for Brain Health

Dr. Andrew Natonson

March 22, 2023

Unraveling the Mysterious Role of Sleep in Brain Neurodegeneration

Dr. Miranda Lim

March 15, 2022

Understanding Lewy Body Dementia

Kathy Teyler Jarrett

Oct. 15, 2021

Dietary Fats and Healthy Brain Aging

Dr. Lynne Shinto

Oct. 15, 2019

Talking About Brain Health in a Culturally Responsive Way 

Juell Towns 

June 12, 2019 

Supporting Brain Health with Cognitive Rehabilitation

Kristin Knight, M.S., CCC-SLP

Haley Landau, M.S., CCC-SLP

April 26, 2018 

The "New Normal" or the New Abnormal: Making Sense of Cognitive Changes Over Time

Allison Lindauer, Ph.D. 

April 17, 2017

Using Technology to Advance Aging, Alzheimer's Disease and Caregiver Research

Dr. Zach Beattie

Oct. 5, 2020

Aging and Financial Capacity

Dr. Kathy Wild

Jan. 22, 2020

Improving Diagnosis of Alzheimer’s Disease and Lewy Body Dementia

Dr. Joseph Quinn 

March 2021

Dementia and Vision

Dr. William Hills 

Oct. 13, 2016

For caregivers

For patients

  • Referral: To become a patient, please ask your doctor for a referral. 
  • Questions: For referrals or follow-up appointments, call 503-494-7772.
  • Nurse line: To talk with a nurse, call 503-494-7615.

Location

Center for Health & Healing Building 1, eighth floor

3303 S. Bond Ave.

Portland, OR 97239



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