OHSU Doernbecher has Oregon’s only pediatric neuromuscular program, with teams of specialists to treat disorders such as muscular dystrophy, periodic paralysis and myasthenia gravis. We offer:
- First-rate doctors who completed their training at top U.S. children's hospitals.
- A team-based approach, with experts in neuromuscular, spine, congenital and other disorders working together to tailor treatments to your child's specific needs.
- Doctors who are also scientists leading clinical trials and pursuing breakthroughs in the lab to improve patient care.
We evaluate children and teens for neuromuscular disorders when they show symptoms such as developmental delays, muscle weakness and movement abnormalities. Assessments include a complete review of your child’s medical history and a thorough physical exam. Our diagnostic services include laboratory testing, muscle and skin biopsy, and electrodiagnostic testing.
Our specialists work together to diagnose, treat and manage your child’s condition. When needed, they have direct access to OHSU Doernbecher Children's Hospital specialists in genetic counseling, cardiology, pulmonary medicine and orthopaedics. Your child receives complete care all in one place.
For patients with muscular dystrophy and other disorders, Doernbecher specialists work collaboratively with Shriners Hospital for Children. Like Doernbecher, Shriners is on Marquam Hill.
Conditions we treat
- Muscular dystrophy
- Neuromuscular junction disorders, such as myasthenia gravis, and congenital and acquired neuropathies
- Periodic paralysis
- Peripheral neuropathy
- Spinal muscular atrophy
Research and clinical trials
Doernbecher doctors have done extensive research on neuromuscular disorders, including clinical trials to test next-generation medications. Doernbecher and Shriners scientists are also working together on muscular dystrophy research funded by the National Institutes of Health.
- Muscular Dystrophy Association, with information about many neuromuscular disorders
- Muscular Dystrophy Information Page, National Institute of Neurological Disorders and Stroke
- Myasthenia Gravis Information Page, National Institute of Neurological Disorders and Stroke
- Hereditary Neuropathies Information Page, National Institute of Neurological Disorders and Stroke
- Familial Periodic Paralyses Information Page, National Institute of Neurological Disorders and Stroke
- Spinal Muscular Atrophy Information Page, National Institute of Neurological Disorders and Stroke
Call 503-346-0640 to:
- Request an appointment.
- Seek a second opinion.
- Ask questions.
Parking is free for patients and their visitors.
Doernbecher Children’s Hospital
700 S.W. Campus Drive
Portland, OR 97239
Map and directions
Refer a patient
- Refer your patient to OHSU Doernbecher.
- Call 503-346-0644 to seek provider-to-provider advice.