OHSU Adult Cystic Fibrosis Program

A Team-Based Approach

OHSU's accredited Adult Cystic Fibrosis Program is part of a comprehensive Cystic Fibrosis Care Center that provides high-quality, specialized care for those with CF and their families.  

Managing cystic fibrosis can take a village, and excellent CF care requires a multidisciplinary approach. Our team-based practice model includes clinicians, nurses, fellows, social workers, dieticians, pharmacists, researchers, other specialists, and, of course, you! 

Our Commitment to You

We pledge to...

•    Offer the most up-to-date care based on the latest CF research and our experience
•    Learn about you and your CF so we may deliver the individualized care
•    Involve you in your care, also known as “shared decision making”
•    Ensure access to our clinic by various means (e.g. clinic visits, phone calls, MyChart)
•    Provide updates on the latest advances in cystic fibrosis care
•    Offer you the opportunity to participate in clinical trials which you may qualify for
•    Make efforts to continuously improve our center and to involve our patients in that process

Clinicians

Our clinician team is comprised of Medical Doctors and Nurse Practitioners. We are a team-based practice, and patients may not see the same provider every time. We communicate regularly with each other to ensure we are up to do date on our patients' issues. 

Gopal Allada, MD
Gopal Allada, MD

Gopal Allada, MD

Associate Professor of Medicine - Director of the Adult Cystic Fibrosis Center

Dr. Allada is an associate professor of medicine and the Director of the Adult Cystic Fibrosis program. He has served as the program director at OHSU since 2005. He actively participates in clinical research trials for CF therapies as an investigator for the CF Therapeutic Development Network (TDN). He also serves on the national CF Foundation (CFF) center committee which assesses CF centers across the country for accreditation. He serves on the national CFF patient education committee and volunteers on the Oregon Chapter of the CFF board of directors. In his spare time, he enjoys spending time outdoors, hiking and all things related to University of Michigan sports.

Jeff Gold, MD
Jeff Gold, MD

Jeffrey Gold, MD

Professor of Medicine - Associate Director of Adult Cystic Fibrosis Center

Dr. Gold is a professor of Medicine and Associate Director of the OHSU Adult Cystic Fibrosis Center since 2010. He is a recipient of a CF PACE award and has been actively involved in both basic science and quality improvement research for Cystic Fibrosis patients. He currently serves as the Interim Chair for the Division of Pulmonary and Critical Care Medicine and has an active research group focused on safe and effective use of computerized medical records in health care. On a personal note, he is an avid road cyclist and loves all things Blazers!

Aaron Trimble, MD
Aaron Trimble, MD

Aaron Trimble, MD

Assistant Professor of Medicine 

Dr. Trimble grew up near Anchorage, Alaska, and then headed across the country to attend college in Virginia. After finishing medical school and residency at the University of Virginia, he moved to Chapel Hill, North Carolina for fellowship, with a particular interest in cystic fibrosis. Afterward, Dr. Trimble spent an additional year at UNC dedicated to CF clinical research and care. His desire to move back to the Pacific Northwest brought him to OHSU in August 2018. He enjoys cycling, cooking, and spending time with his wife and three young boys.

Virginia Satcher, ANP
Virginia Satcher, ANP

Virginia Satcher, ANP 

Instructor of Medicine

Since graduating from the University of Portland in 2008, Virginia has served the CF community as an Adult Nurse Practitioner (ANP). She see patients both in clinic and in the hospital. She is also involved in medication needs, sick calls, clinical research, and all aspects of CF care. Virginia enjoys taking long walks, working in her garden, and spending time with her family, dog and cat.

Nursing

The Program Coordinator/Nurse Care Manager is your main contact for advice, sick calls, and coordination of care across healthcare settings including hospital admissions.

picture of Ash Swift, BSN, RN, CCM
Ash Swift, RN

Ash Swift, BSN, RN, CCM

Adult Cystic Fibrosis Program Coordinator/Nurse Care Manager

Ash joined our team in the Summer of 2020. She carries a Bachelor of Science in Nursing, and is nationally certified in Medical Case Management. She is passionate about public health and preparedness, and she volunteers her time to disaster response efforts with the Medical Reserve Corps. She is also a native Oregonian. Her favorite activities include road trips to the coast, hiking, gardening, and spending time with her family and two dogs. 

Nutrition

Dietitians are responsible for tracking patients' growth and development and care-planning to ensure optimal health. They are highly-trained to detect nutritional issues – such as diabetes, malabsorption, or feeding issues – that will impact the health of people with CF.

Daniella Gardner, RD
Daniella Gardner, RD, LD

Daniella Gardner, RD, LD

Daniella graduated from Cal Poly, San Luis Obispo in 2008 and completed her Dietetic Internship at OHSU. She has spent most of her career working as an inpatient Dietitian, obtaining a wide range of experience with many different medical conditions.  She hopes to provide clear and consistent nutrition guidance in both clinic visits and hospital admissions. Daniella loves to spend her free time hiking with her family and dog and eating her way through the Portland food scene.

picture of Carly Michelz, RD
Carly Michelz, RD, LD

Carly Michelz, RD, LD

Carly graduated from Mount Mary University in Milwaukee, WI in 2017 with a degree in Dietetics. Carly had always had a desire to live on the west coast, which is what brought her to OHSU. Before joining the CF team in 2019, she has spent most of her career working as an inpatient dietitian. Carly enjoys traveling, watching/playing sports and spending time with family and friends.

Medication Management

Pharmacists keep track of each patient's medication profile and ensure dosages are correct, interactions are accounted for, and patients' needs are being met. The pharmacist works closely with the team in optimizing our knowledge of the latest CF therapies.

Cori Muirhead, PharmD
Cori Muirhead, PharmD

Cori Muirhead, PharmD

Dr. Muirhead graduated from pharmacy school at University of Washington in 2007. After working as a pediatric hospital pharmacist for 5 years, Cori joined the CF team in 2012. She was supports both the pediatric and adult CF teams at Doernbecher and OHSU. Cori enjoys crafting, playing soccer, going on walks and gardening with her family.

Respiratory Therapy

The Respiratory Therapist (RT) performs pulmonary function tests to track lung health. They also provide important education on the use and care of home respiratory equipment and training on proper methods to clear out the sticky mucus that lines the airways. 

Kim Keeling Loop, RRT
Kim Keeling, RRT

Kim Keeling, RRT 

Kim has been a Respiratory Therapist at OHSU since September 1993. She moved her practice to the Pediatric Pulmonary Function Lab in 2006 and helped develop the respiratory care Special Diagnostics group.  She has participated in development of educational models and protocols for people with cystic fibrosis. She is married and lives in Columbia County.  She loves camping, cooking, and most of all, being a Nana to her grandchildren.

Social Work

Our Clinical social worker provides support for people with CF as they strive to live a normal life while balancing the demands of CF care. She is a licensed professional and her job is to help reduce any social, psychological or financial stressors that can impact quality of life. Doing so by assisting with coping strategies, advocacy, coordinating community and financial resources, addressing college and employment issues. 

picture of Wendy Palmrose, LCSW
Wendy Palmrose, LCSW

Wendy Palmrose, LCSW

Adult Cystic Fibrosis Social Worker

Wendy has been dedicated to helping people with CF and their families for more than 30 years. She has a master's degree from School of Social Work at Portland State University. Prior to this she attended University of California, Santa Barbara and received a post-graduate counseling certification. She enjoys creating art, roller skating, and travelling.

Mental Health Coordination

Mental health coordinators (MHC) provide mental health screenings per the Cystic Fibrosis Foundation guidelines. In addition to screenings, the MHC provides mental health education, counseling referrals to individual therapists and community agencies/programs, helps to problem solve barriers to accessing mental health care, including funding, brief crisis intervention, and safety planning for patients and their families.

picture of Colleen Turner, MSW
Colleen Turner, MSW

Colleen Turner, MSW

Mental Health Coordinator

Colleen joined our team in Fall of 2020. Originally from Texas, she has called the beautiful state of Oregon home for many years. She carries a Bachelor’s in Psychology from the University of Texas at Arlington, and earned a Master’s in Social Work from the University of South Dakota in 2019. She has served in the fields of social service, non-profit, and healthcare, collaborating with diverse and underserved individuals, families and communities across the life-span. In her down time, she loves spending time with her husband, their cat (who thinks she’s a dog), friends, and family. She also enjoys being active outdoors, hiking, running, or capturing the moment through photography.    

Non-clinical Team Members

Medical Assistants (MA) help both during and outside of clinic. These staff will take vital signs, collect sputum cultures, do throat swabs, give vaccines and can assist in scheduling your follow-up visits. Outside of clinic, these staff can assist with patient letters, refills and will gather information for sick calls.
 

Patient Access Specialist (PAS) staff help schedule and coordinate appointments, manage incoming calls, and get messages to our staff. The PAS staff also assist with prior authorizations and working with insurance companies to get certain testing ordered.

Research Coordinators

Research is a vital part of CF care in order to find new therapies and treatments. Our research team works with the CF Foundation to implement research protocols to better the lives of people with CF. You may see our coordinators in clinic to inform you on our CF clinical research program and possibly invite you to participate in a trial you qualify for!

picture of Brendan Klein, MPH, CCRP
Brendan Klein, MPH, CCRP

Brendan Klein, MPH, CCRP

Brendan was born and raised in St. Louis, Missouri. He received his undergraduate degree in Exercise Science from the University of Michigan before attending graduate school at Oregon State University. After completing his Master of Public Health degree, he worked as research faculty at OSU on a community health grant funded by the USDA. Brendan joined the CF team at OHSU in July 2014 and loves working with CF patients and their families to find new and better treatments. In his free time he enjoys traveling, trying new restaurants, and relaxing with his wife, two children, and dog.

picture of Jenna Bucher, CCRC
Jenna Bucher, CCRC

Jenna Bucher, CCRC

Jenna attended the University of Oregon where she majored in Human Physiology. As an undergrad, she volunteered in the Cardiopulmonary and Respiratory lab and has had an interest in working in research ever since. Prior to joining the CF Clinical Trials team at OHSU, Jenna had 4 years of clinical trial experience. In her free time she enjoys cooking, reading and following interior design blogs.

picture of Pierce Nubaum, BS
Pierce Nubaum, BS

Pierce Nusbaum, BS

Pierce was born and raised in Portland, Oregon. He attended Portland State University where he received his Bachelor of Science in Community Health Education. Prior to joining the CF team, Pierce had two years of experience working as a research coordinator at OHSU in Pediatric Hematology Oncology. Pierce loves working as a coordinator and having the opportunity to work with patients. In his free time he enjoys the outdoors, playing soccer and spending time with family.

picture of Annie Hanson, CCRC
Annie Hanson, CCRC

Annie Hanson, CCRC

Annie was raised in Davis, California. She attended the University of Oregon where she majored in Environmental Science and Public Health. Prior to joining the CF Clinical Trials team, Annie had 3 years of clinical trial experience working in oncology at OHSU. She loves working as a Research Coordinator and is thrilled to be a part of the CF team and tight-knit community. In her free time she enjoys rock climbing, practicing Spanish, and cooking for friends.

Non-Pulmonary CF Clinicians

Gastroenterologists are specialists in gastrointestinal (GI) diseases. If there are issues involving your GI symptoms such as nausea, vomiting, belly pain, changes in your bowel habits, etc, we may refer you to see a gastroenterologist. There are also GI specialists called hepatologists who focus on liver problems.

Endocrinologists are physicians specialized in diabetes care and conditions of the endocrine system. We may refer you to an endocrinologist for diabetes care or bone health issues.  

Physical Therapists are specialists to help improve your strength, flexibility and mobility.

Pulmonary Rehabilitation teams specialize in working with patients with more advanced lung disease suffering from ongoing breathing issues. 

Infectious disease specialists are familiar with the treatment of a variety of bacteria of fungi. If you have a more unusual infection, we may refer you to an infectious disease specialist.

Otolaryngologists are specialists who help with ear, nose, sinus and throat issues. If you have chronic issues in these areas that are not improving with medical treatments, we may refer you to their clinic.

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Outpatient Care

  • If you are visiting our clinic for the first time, please make sure your previous team has provided you with enough medications to last through your first appointment with us
  • Complete the Pre-Visit Planning questionnaire sent to your MyChart account the week before your appointment.
  • Come early, but not too early. Please show up to the clinic no more than 20 minutes earlier than your given a arrival time. Unfortunately, the appointment time we give you does not account for checking in or the initial medical assistant evaluation which takes 15-20 minutes. Following this timeline will allow us to get you home sooner, prevent delays for other patients, and helps us in our infection prevention efforts.
  • Ask questions. We do our best to educate and treat you, but our first priority is making sure that we serve your needs.
  • Honesty is the best policy. We are not here to judge you. We want to offer treatments that will not only give you the best chance to keep you healthy, but also fit best with your lifestyle. We do like to be proactive in treating your CF, but you have the final say in your treatments. Help us help you.
  • Schedule your follow up appointment before leaving clinic. It is critical that we see patients at least 4 times per year to catch any issues early and respond quickly. 
  • Keep us updated on your progress when you are home. MyChart is a convenient way to convey non-urgent communications. Please keep in mind that your messages are a part of your medical record and can take a few days for a response.
  • Get established with a primary care provider (PCP) to assist with your non-CF medical issues. We are not experts in the majority of non-CF issues, but we are happy to coordinate care with your PCP.
  • Be prepared. Be aware that the average amount of time we attend to your CF needs is 90 minutes. Bring a snack and hydration. Bring a list of your medications and current medical providers to every visit. 

Call Us

If you are in need of immediate medical attention, please call 9-1-1 and/or proceed to your nearest emergency room. However, please contact us as soon as you can. If you are sick, have an urgent issue needing same day response, or need to schedule an appointment for follow up or a new issue please call us:
Weekdays 8 am -5 pm: 503-494-1620 
After hours/weekends/holidays: 503-494-8311 (Urgent medical advice only. Ask for the adult lung doctor on call)

Patient Portal: MyChart (non-urgent messaging)

We strongly encourage you to sign up for MyChart which is a service provided to patients for free. This allows patients to access their medical record as well as send non-urgent messages to the CF team. We usually respond to MyChart messages quickly, however it can take up to 3 days. For more urgent matters, like medical advice or requests for antibiotics, please call.  

Click here if you are interested in signing up for an OHSU MyChart account. If you need help with accessing an existing account, please let us know when you check-in or give us a call.  

Medication Refills

Refill requests should come directly from your pharmacy. Please contact your pharmacy 7 days prior to being out of your medication (10 days prior for mail order). 

Patient and Family E-mail List serv

We regularly send out information through a patient and family e-mail list serv. This is a way our office can communicate with you about our center, clinic information, policy reminders, education spotlights, research opportunities, new therapy developments and more! Please let us know if you would like to be on the list. We will need your e-mail address. 

The Cystic Fibrosis Foundation and the OHSU CF Center generally recommend quarterly visits to your CF center with one visit each year with an MD. We encourage at least one in-clinic appointment yearly as well. Your visit frequency may differ depending on your individual case. 

If you are in need of immediate medical attention, please call 911 and/or proceed to your nearest emergency room. However, please contact us as soon as you can.  This will allow us to assist your local healthcare team in providing you the best care. If you are being seen by providers outside the OHSU system, please have them contact us.

All visits are by appointment only. If you have any urgent problems or need to schedule an appointment, please call us at 503-494-1620.

Clinic Visit Options

Due to physical distancing guidelines, we are currently only offering Hybrid or Telehealth appointments on Wednesday and Friday mornings. Telehealth visits are covered by most insurance plans, but it is a good idea to check with yours ahead of your visit.

Hybrid (In-person/Telehealth)

  • You will come to the clinic to see a CF provider and the CF nurse. Depending on the treatment plan, you will be asked to complete a PFT (either in-clinic or phone/video appointment), labs, and/or imaging while on campus.
  • Other team members will see you either in-person or via phone/video appointments (see below for video appointment requirements).
  • It is recommended you come to the clinic physically at least once yearly. 

Telehealth (Video/Phone outside of clinic)

  • Telehealth visit options are available for our patients who are physically in Oregon or Washington at the time of the visit. Telehealth visits offer a safe, convenient way to connect with your CF Center team. You will meet with the CF team through a video chat or via phone call.
  • If you have a home spirometer, you may be scheduled for a home PFT on or near your appointment date.

For video visits you will need:

  • An OHSU MyChart account, and
  • Access to a smartphone or computer with a working camera, and microphone
  • Phone visits are available for those who do not have access to reliable internet with a camera and microphone.

Spirometry (PFT) provides an important measure of your lung health. In 2020, the CF Foundation provided funding to support home spirometers for our patients. Please let us know if you are interested in receiving one at no cost to you.   

You are an important member of your CF Care Team! In an effort to make the most of your visits with us, you will receive a MyChart message sent the week prior to your appointment with a series of questions. Your responses are shared with the team prior to your scheduled appointment. We ask that you respond even if you have no questions or concerns.

Inpatient Care

  • Be available for your treatments. We want to get you better as best and as quickly as possible. This cannot be done unless we can provide you with standard of CF care.
  • Let us know how you are doing. What’s working? What’s not working? We know we are not perfect and if there is a way we can get better, we will look into it!
  • Be active! It may seem like being in the hospital is like being in jail, it does not have to be! When you are not doing your treatments, we encourage our patients to walk around. Please let your nurse know your plans to make sure you won’t miss any treatments or any providers who need to see you.
  • If you leave your room, make sure you wash your hands, wear clean clothing and wear a mask to prevent transmission of bugs to other CF patients who may roaming the hospital. CF patients should not be within 6 feet of one another and should always abide by infection control practices in any common area at OHSU.
  • Keep your nurse updated. You will see many different providers in the hospital, but your nurse will have the closest relationship to you. He or she can be a voice for all the other team members seeing you.

Your inpatient room typically includes:

  • Bed, pillow, sheets and blanket
  • A bathroom
  • Closet, storage space for personal belongings
  • A rolling table
  • Wireless internet connection
  • Climate control
  • Phone (for local calls)

What to pack for your stay (these are only suggestions, not necessary):

  • Comfy clothes
  • Personal blanket and/or pillow
  • Slippers or skid-proof socks
  • Pajamas
  • Sneakers for walks/exercise in and out of your room
  • Toiletries
  • Headphones, Laptop, iPad, books for entertainment
  • Earplugs and/or eye mask-Personal snacks
  • Insurance cards
  • Photos of yourself/support persons to lift your spirits
  • If you are taking a CF modulator, (i.e. Kalydeco, Orkambi, Symdeko,or Trikafta), please bring this medicine with you.

Get To Know Me (PDF)

You can expect to complete a CF Get to Know Me form during your admission process. We created this form with our CF Advisory Council. We hope it lowers any stress surrounding your inpatient stay and gives your care team a small glimpse into getting to know you! Once you have filled this out together, the inpatient team should place this form on the wall above the head of your bed.

Inpatient Team

OHSU is a teaching hospital. In addition to your primary team and consultants, you may have residents, fellows, and students from various disciplines participating in your care.

  • Primary Team - This team is known as the primary team which means they write all the orders for your care, are the first responders to your questions and arrange for your discharge. They can also direct care of non-CF issues.
    • If you do not have an OHSU Primary Care Provider (PCP) the Hospitalist service will be the primary team for your stay. These are physicians who specialize in inpatient general medical care. 
    • If you have an OHSU Primary Care Provider (PCP) you will likely be followed by Family Medicine instead of the hospitalists.
  • Consultants - With their experience with treating CF, the consulting team reviews all aspects of CF care during your hospitalization.
    • The pulmonary team will see CF patients everyday as consultants. This may be one of our CF clinicians one of our non-CF clinic pulmonologists who have experience managing CF care in the hospital.
    • The pulmonary team also has pulmonary fellows, internal medicine residents (finished medical school and are doing further training) and sometimes students.
  • The outpatient CF clinic care team works closely with the inpatient team throughout your stay.
  • A discharge planner will assist with getting any equipment you need for when you leave the hospital. 

Volunteering and Cystic Fibrosis Event Opportunities