OHSU Adult Cystic Fibrosis Program

A Team-Based Approach

OHSU's accredited Adult Cystic Fibrosis Program is part of a comprehensive Cystic Fibrosis Care Center that provides high-quality, specialized care for those with CF and their families.  

Managing cystic fibrosis can take a village, and excellent CF care requires a multidisciplinary approach. Our team-based practice model includes clinicians, nurses, fellows, social workers, dieticians, pharmacists, researchers, other specialists, and, of course, you! 

Our Commitment to You

We pledge to...

•    Offer the most up-to-date care based on the latest CF research and our experience
•    Learn about you and your CF so we may deliver the individualized care
•    Involve you in your care, also known as “shared decision making”
•    Ensure access to our clinic by various means (e.g. clinic visits, phone calls, MyChart)
•    Provide updates on the latest advances in cystic fibrosis care
•    Offer you the opportunity to participate in clinical trials which you may qualify for
•    Make efforts to continuously improve our center and to involve our patients in that process

OHSU Adult CF News

picture of OHSU Adult CF Town Hall
OHSU Adult CF Town Hall June 24, 2021

OHSU Adult CF Town Hall  - June 24, 2021

Watch the replay here!

CRFI 34th National Cystic Fibrosis Education Conference
CFRI' 34th National Cystic Fibrosis Education Conference

CFRI’s 34th Virtual National CF Education Conference: Illuminating the CF Journey

July 30 – August 1, 2021 (Fri – Sun)

OHSU Assistant Professor and Adult CF Team Member, Angela Garinis, PhD, CCC-A will be giving a talk on Hearing Health in Persons with Cystic Fibrosis during this year's CFRI National Cystsic Fibrosis Education Conference! Registration is free. Click here to register.

Articles & Publications: OHSU Adult CF team members as authors and/or citations

Antos, NJ, Savant, AP. Cystic fibrosis year in review 2020: Section 2 pulmonary disease, infections, and inflammation. Pediatr Pulmonol. 2021; 1- 14. https://doi.org/10.1002/ppul.25459

Muirhead, CA, Palmrose, W, Condren, M, et al. A clinician survey of use assessment, documentation, and education about cannabis in persons with cystic fibrosis. Pediatr Pulmonol. 2021; 1- 9. https://doi.org/10.1002/ppul.25563

COVID-19 Information and Resources

Please visit the CFF COVID-19 Community Questions & Answers page for frequently updated information specific to people living with CF.

CDC Vaccine information page 

OHSU COVID-19 Resources and Information