Doernbecher Cancer Survivorship Program

Here to help you live the best life possible after childhood cancer

We provide care and support to childhood, adolescent and young adult cancer survivors. As the most comprehensive survivorship program in the state of Oregon, our multi-disciplinary team offers a holistic approach to supporting the patient after treatment ends. 

What we do:

At appointments our multi-disciplinary team reviews our patients’ needs and helps them understand any ongoing effects of cancer or cancer treatment. 

  • Manage medical, social, emotional and educational issues related to cancer and treatment.
  • Provide education regarding potential health issues that may be related to surviving childhood cancer
  • Living with the long-term effects of cancer treatment 
  • Fertility concerns
  • Educational support
  • Social and emotional support
  • Cognitive function 
  • Information and resources for healthy living  
  • Employment 
  • Navigating systems and transitions

A visit to the Cancer Survivorship program will provide you with: 

  • Information about your exposures to chemotherapy, radiation therapy or surgery and how those modalities might impact your future health. 
  • A written summary of your past treatment, to give future health care providers a better understanding of your individual needs. 
  • A personalized roadmap for recommended screening, based on your exposures.

    Most patients experience late effects of pediatric cancer

    Childhood cancer survivors are at risk for physical and psychological issues related to the cancer and its therapy. Your risks depend on your specific exposures.  

    Possible late effects include: 

    • Cardiopulmonary (heart abnormalities, reduced lung function) 
    • Musculoskeletal (decreased bone density, joint damage, scoliosis, post surgical changes) 
    • Dental (short roots, weakened enamel, missing teeth) 
    • Eyes (cataracts) 
    • Endocrine (growth failure, thyroid problems, infertility) 
    • Neurocognitive (learning disabilities, memory loss, poor concentration) 
    • Social or emotional concerns
    • Second cancers/tumors, benign or malignant

    The news in the childhood cancer world continues to improve:

    Through clinical trials, pediatric oncologists have discovered treatments that can now cure 80 percent of children who are diagnosed with cancer. There are over 350,000 long term childhood cancer survivors in the US under 40.

    We call the period of time between the completion of treatment and your first survivorship clinic visit Early Survivorship.  The end of treatment is a joyful time for childhood, adolescent and young adult cancer or bone marrow transplant patients and their families. However, this time of transition can also be a period of uncertainty and anxiety about next steps. 

    A lot of what the Early Survivorship period entails is adjusting to life after treatment. It is not only physically adjusting, but also the emotional and practical components for returning to school, relationships, jobs or activities.  This transition looks different for everyone. For some, this transition may be short, and for other people it can be longer. So much of this depends on the individual and their family’s particular cancer experience and various factors during that time (length of time in treatment, type of cancer, the emotional or physical impacts of the cancer, and the supports and resources you had during the experience). There is no one way that individuals or their family members respond after treatment or bone marrow transplant and whatever you experience after treatment is valid.

    Consider the following tips to help the ease the transition:

    1. Write down a list of questions and concerns to ask your child’s/your medical team. Question Suggestions 
    2. Discuss any school, work, financial or emotional concerns you might have with your child’s/your oncology team. Let your team know if you would like to meet with a hospital schoolteacher, pediatric neuropsychologist or oncology social worker for further support.
    3. Re-establish a relationship with your child’s pediatrician/your primary care provider (PCP). Talk with your child’s pediatrician/your PCP about issues such as routine immunizations and general medical care and health needs. PCPs are the experts at day-to-day health care.
    4. Attend one of the Doernbecher Transitioning off Treatment Information Sessions. Led by an oncology nurse and social worker who specialize in survivorship care, these group sessions will cover a variety of topics to help you through the next chapter of survivorship. 

    Early Survivorship Webinar Flyer

    **View the 2-23-2021 webinar recording here**

     

    Scheduling Options

    We see patients at 2 physical locations and we now offer Virtual Visits. 

    • Doernbecher Children's Hospital, Portland, OR  
    • Doernbecher Outreach Clinic- Salem, OR (at Salem Health Hospital)
    • Virtual Visits - During the Covid-19 pandemic we began offering comprehensive, multi-disciplinary virtual visits.  We plan to continue to offering virtual appointments indefinitely.

    Maps and Directions

    Your treating physician may refer you to the Survivorship Program or you can call us and make an appointment @ 503-494-0200.

    Billing and Insurance

    Our clinic bills as an “outpatient facility.” Our site is considered “a clinic in a hospital setting” because we have an infusion center in our clinic. Some insurance companies pay for “outpatient facility” visits differently than they pay for office visits with a specialist or a primary care provider. Please check with your insurance company before your visit to see how this might affect your responsibility for payment. For some patients, this type of visit may not be paid until the annual deductible has been met.

    Please call our registration department if you have not already spoken with them, or if your insurance changes before your appointment 503 494-8505 or toll free at 888 222-6478. If your insurance requires you to make a co-pay, please bring it to your appointment. We accept Visa, MasterCard, check and cash.

    If you do not have insurance at this time, you are responsible for payment of services provided to you or your child. We can refer you to an OHSU financial specialist to help you find out if you meet the qualifications to receive financial assistance.

    Researching the late effects of childhood cancer

    Pediatric oncology researchers at OHSU Doernbecher and around the world are investigating many aspects of survivorship. Ongoing survivorship research will help us understand how the many treatments used in the past and present will impact future survivors – as well as improve the lives of cancer survivors.

    The Childhood Cancer Survivorship Program at Doernbecher Children’s Hospital is committed to studying the late effects of childhood cancer. 

    We participate in national research studies and also develop a number of research studies at our hospital. You may be offered participation in a research study but your participation is optional. 

    Ongoing Research

    Several survivorship research studies are underway at Doernbecher Children’s Hospital. While there may be no direct benefit to individuals from participating, we hope to learn important information that will improve the way we treat future patients. 

    Some studies may help us minimize the long-term effects of therapy and some may help us provide better care for specific late complications that certain survivors are currently experiencing.

    Current survivorship research studies at OHSU include: 

    • A study about late effects on the heart looking at the standard screening method, echocardiogram, and comparing it to a new method, cardiac MRI, for people who have received a specific type of chemotherapy called anthracycline. 
    • A study asking teenagers who have been treated for leukemia to tell us how we might be able to use an online community to help them have better overall health and wellness. 
    • A study evaluating the patterns of walking in people who are currently being treated and who have completed treatment for acute lymphoblastic leukemia or lymphoblastic lymphoma.

    Support the Survivorship Program

    Help us help childhood, adolescent and young adult cancer survivors.

    Talent Show

    Upcoming Events:

    Virtual Art and Talent Showcase!  Premier:  October 1st 2021

    To Commemorate Childhood Cancer Awareness Month in September we are showcasing the talent and artistry of our amazing patients, families and staff from: Doernbecher Pediatric Hematology Oncology & Doernbecher Cancer Survivorship Clinic.

    WORLD PREMIER OCTOBER 1ST AT 5PM.

    Link will remain available to view at any time. 

    Link to Video: 

    Talent Show 

    _________________________________________________________________

    Early Survivorship Webinar Series

    We hope you will join us for one of our informative, live webinars covering a variety of topics related to transitioning off treatment.  Early Survivorship Webinar Flyer

    **View the 2.23.21 webinar recording here**

    _____________________________________________________________

    Early Survivorship flyer  Image

    Doernbecher Children's Hospital

    700 S.W. Campus Drive
    Portland, Oregon 97239

    Contact Us:

    For scheduling and information: 503-494-0200  dchsurvivorship@ohsu.edu