Doernbecher Children's Hospital

Doernbecher Cancer Survivorship Program

Carson, Kids Cancer Survivor

Here to help you live the best life possible after childhood cancer

We provide comprehensive care and support to childhood, adolescent and young adult cancer survivors.

We are the most comprehensive survivorship program in the state of Oregon. 

Most patients experience late effects of pediatric cancer.

Childhood cancer survivors are at risk for physical and psychological issues related to the cancer and its therapy. Your risks depend on your specific exposures.  

Possible late effects include: 

  • Cardiopulmonary (heart abnormalities, reduced lung function) 
  • Musculoskeletal (decreased bone density, joint damage, scoliosis, post surgical changes) 
  • Dental (short roots, weakened enamel, missing teeth) 
  • Eyes (cataracts) 
  • Endocrine (growth failure, thyroid problems, infertility) 
  • Neurocognitive (learning disabilities, memory loss, poor concentration) 
  • Social or emotional concerns
  • Second cancers/tumors, benign or malignant

We can help.

The news in the childhood cancer world continues to improve. Through clinical trials, pediatric oncologists have discovered treatments that can now cure 80 percent of children who are diagnosed with cancer. There are over 350,000 long term childhood cancer survivors in the US under 40. We want to arm survivors with the knowledge they will need to thrive.

A visit to the Cancer Survivorship program will provide you with: 

  • Information about your exposures to chemotherapy, radiation therapy or surgery and how those modalities might impact your future health. 
  • A written summary of your past treatment, to give future health care providers a better understanding of your individual needs. 
  • A personalized roadmap for recommended screening, based on your exposures.

We help cancer survivors and their healthcare providers:

  • Understand any ongoing effects of cancer or cancer treatment
  • Manage medical, social, emotional and educational issues related to cancer and treatment.
  • Provide education regarding potential health issues that may be related to surviving childhood cancer

We see patients at Doernbecher Children’s Hospital

At appointments, our multi-disciplinary team reviews our patients’ needs and help them with life concerns such as:

  • Living with the long-term effects of cancer treatment 
  • Fertility concerns
  • Emotional challenges 
  • Cognitive function and education
  • Work and employment 
  • Insurance coverage 
  • Information and resources for healthy living  

We see kids, teens and adult survivors of childhood cancer, who have been off treatment and cancer free for at least two years. All ages welcome. 

Your treating physician may refer you to the Survivorship Program or you can call us and make an appointment. Survivorship appointments are typically covered by insurance.

Before your visit

We spend a significant amount of preparation time before you arrive. Several members of our team will need to review your medical history before your visit. Your authorized release of any patient records may be required. 

Your patient records

We review all of your patient treatment records and construct a summary of treatment exposures. We use this information to develop a list of potential late effects that you may be at risk for based on your treatment exposures. Using long-term follow-up guidelines from Children's Oncology Group, we develop a plan for routine health screening and management of actual or potential late effects of therapy. 

Medical history questionnaire

We ask that you fill out a detailed questionnaire. It is important that we have this well ahead of your visit, so that we can determine if you need any special tests at the time of your visit. The questionnaire helps us organize your day so that we can be as efficient with your time as possible.

At your visit

In the morning:

  • We will schedule any blood draws and other tests to be completed in the morning. Depending on your history, these may be a quick visit to the lab or it could include multiple different tests to evaluate organ function(s). 
  • If you need multiple tests, it could take several hours to complete them. As soon as we know what kinds of tests you will need you will be notified so you can plan you day accordingly. 

In the afternoon: 

  • You will have a clinic visit with either Susan Lindemulder, M.D., (pediatric oncologist) or Kelly Anderson, F.N.P. (nurse practitioner). Both providers specialize in the care of childhood cancer survivors. 
  • You will have a complete physical exam and additional laboratory or diagnostic testing as needed.   
  • At your comprehensive consultation, you will have the opportunity to meet with multiple providers including: a social worker, dentist, educational specialist, and a psychologist.

After your visit

You will come away from your consult visit with:

  • Information about your exposures to chemotherapy, radiation therapy or surgery and how those modalities might impact your future health. 
  • A written summary of your past treatment, to give future health care providers a better understanding of your individual needs. 
  • A personalized roadmap for recommended screenings, based on your exposures.
  • Resources and strategies related to educational, social or emotional needs.

Our clinic bills as an “outpatient facility.” Our site is considered “a clinic in a hospital setting” because we have an infusion center in our clinic. Some insurance companies pay for “outpatient facility” visits differently than they pay for office visits with a specialist or a primary care provider. Please check with your insurance company before your visit to see how this might affect your responsibility for payment. For some patients, this type of visit may not be paid until the annual deductible has been met.

Please call our registration department if you have not already spoken with them, or if your insurance changes before your appointment 503 494-8505 or toll free at 888 222-6478. If your insurance requires you to make a co-pay, please bring it to your appointment. We accept Visa, MasterCard, check and cash.

If you do not have insurance at this time, you are responsible for payment of services provided to you or your child. We can refer you to an OHSU financial specialist to help you find out if you meet the qualifications to receive financial assistance.

Survivorship appointments

503-494 0200
877-346-0640 toll free

dchsurvivorship@ohsu.edu

Location

Doernbecher Children's Hospital

700 S.W. Campus Drive
Portland, Oregon 97239
Starfish
Cancer Survivor

Researching the late effects of childhood cancer

Pediatric oncology researchers at OHSU Doernbecher and around the world are investigating many aspects of survivorship. Ongoing survivorship research will help us understand how the many treatments used in the past and present will impact future survivors – as well as improve the lives of cancer survivors.

The Childhood Cancer Survivorship Program at Doernbecher Children’s Hospital is committed to studying the late effects of childhood cancer. 

We participate in national research studies and also develop a number of research studies at our hospital. You may be offered participation in a research study but your participation is optional. 

    Ongoing research on late effects of childhood cancer 

    Several survivorship research studies are underway at Doernbecher Children’s Hospital. While there may be no direct benefit to individuals from participating, we hope to learn important information that will improve the way we treat future patients. 

    Some studies may help us minimize the long-term effects of therapy and some may help us provide better care for specific late complications that certain survivors are currently experiencing.

    Current survivorship research studies at OHSU include: 

    • A study about late effects on the heart looking at the standard screening method, echocardiogram, and comparing it to a new method, cardiac MRI, for people who have received a specific type of chemotherapy called anthracycline. 
    • A study asking teenagers who have been treated for leukemia to tell us how we might be able to use an online community to help them have better overall health and wellness. 
    • A study evaluating the patterns of walking in people who are currently being treated and who have completed treatment for acute lymphoblastic leukemia or lymphoblastic lymphoma.