Natural History of the Progression of X-Linked Retinitis Pigmentosa (XOLARIS Study)
The purpose of this study is to learn more about a condition called X-linked retinitis pigmentosa (XLRP). The study investigators want to gain a better understanding of disease progression over time in subjects with XLRP.
- Age: 16 years and older
- Must have a diagnosis of XLRP
- Good general health
The study will occur at the Casey Eye Institute in Portland, OR. You will have 7 visits over the course of 24 months. Each study visit is expected to last about 1-2 days and will involve functional vision tests and dilated eye exams.
All study procedures will be covered by the study sponsor and travel reimbursement is available.
A Phase III trial is being planned at a later date and patients from the XOLARIS study may be able to participate if the relevant Phase III inclusion/exclusion criteria are met.
Principal Investigator: Mark Pennesi, M.D., Ph.D.
Casey Eye Institute
3375 SW Terwilliger Blvd.
Portland, OR 97239
IRB Approved: 10/18/2017
Additional information Sponsor: Nightstar