Living with congenital heart disease means you often face unique health challenges. The Adult Congenital Heart Disease program offers comprehensive care to enhance your quality of life. For appointments, call 503-494-1775.
Specialized heart care
Congenital heart disease is the most common birth defect in the U.S., but due to major advances in medical and surgical care, more than 90% of these patients are surviving into adulthood. There are over 1 million adults in the U.S. with congenital heart disease, but many are not keeping up with routine, follow-up care. OHSU's Adult Congenital Heart Disease program offers many specialty services, including:
- Adolescent and adult transition program
- High risk pregnancy and heart disease care
- Care of inherited aortic diseases
- Comprehensive cardiology clinic
- Heart failure treatment
- Heart rhythm procedures such as electrophysiology, pacemaker and ablation for complete arrhythmias
- Noninvasive imaging, including MRI and CT scans
- Cardiopulmonary exercise testing
- Cardiac transplant evaluations
- Cardiac catheterization and interventional procedures
- Comprehensive surgical repair for adults and comprehensive surgical repair for children
Common conditions we treat
There are many types of congenital heart disease. The right treatment for you depends on these factors. We treat over forty types of heart defects, from mild to severe, including:
- Aorta and blood vessel conditions (such as coarctation of the aorta and patent ductus arteriosis)
- Genetic conditions affecting the heart and blood vessels (such as Marfan syndrome and Turner syndrome)
- Heart valve conditions(such as aortic stenosis and regurgitation and Ebstein’s Anomaly)
- Other structural heart conditions (such as tetralogy of fallot and ventricular septal defect)
- Surgical follow-up care (such as the Rastelli procedure)
Meet our adult congenital heart disease team
It's important to regularly meet with a cardiologist who understands congenital heart defects to help you deal with any health issues as soon as they arise. Our experts will work with you to help you manage the health risks associated with congenital heart disease.
Patient story: Jessica
I was born with pulmonary stenosis. Later I was diagnosed with tachycardia and had an ablation to fix my heart’s rhythm. I was fine for about two decades until a couple years ago, when I suffered a grand mal seizure and was rushed to OHSU for open heart surgery.
Refer a patient
- Refer your patient to OHSU.
- Call 503-494-4567 to seek provider-to-provider advice.
Ask the heart and vascular experts
For healthcare professionals
OHSU Knight Cardiovascular Institute partners with providers around the region to care for patients with heart and vascular conditions. We provide continuing education, clinical trials, and resources for the practitioners we work with.
- ACC/ACHD Guidelines for Adults With Specific Congenital Heart Defects
- Managing adults with congenital heart disease
- Pregnancy and heart health
- The Annual International Symposium on Congenital Heart Disease in the Adult
- ACHD educational resources