Here you will find short descriptions of the grants we have worked on regarding Amyotrophic Lateral Sclerosis.

• AAC Technology Management by Informal Caregivers

Writing papers about our work is an important part of the research process. The papers you will find here have been included in conference proceedings and peer-reviewed journals.

• Fried-Oken, M., Mooney, A., &Peters, B. (2015). Supporting communication for patients with neurodegenerative disease. Neurorehabilitation. 37(1), 69-87.

• Ball, L.J., Fager, S., &Fried-Oken, M. (2012). Augmentative and alternative communication for people with progressive neurological disease. Physical Medicine &Rehabilitation Clinics of North America, 23(3), 689-699. PMC #22938882.

• Gibbons, C., &Beneteau, E. (2010). Functional performance using eye control and single switch scanning by people with ALS. SIG 12 Perspectives on Augmentative and Alternative Communication, 19(3), 64-69.

• Fried-Oken, M., Fox, L., Rau, M.T., Tullman, J., Lou, J.S. (2006). Purposes of AAC device use for persons with ALS as reported by caregivers. Augmentative and Alternative Communication, 22(3), 209-221.

• Fried-Oken, M. &Bardach, L. (2005) Augmentative communication and end-of-life. Perspectives on Augmentative and Alternative Communication. 14(4), 3-9.

Every year we give presentations about the work we are doing. We have a diverse team who present on different aspects of the study.

• ALS, AAC Technology, and Caregivers: Attitudes, Skills, and Role Strain, ASHA, 2004
• Caregiving and AAC Systems in ALS: Quantitative and Qualitative Analyses, ISAAC, Natal, Brazil, October, 2004
• ALS Severity and Caregivers' Reports of Communication with AAC Technology, 2004

Here you will find articles and other writings from community members with LIS who are participating in our research. You will also find newsletters featuring our research.