Welcome

The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs when navigating complex health care systems.  Staffed by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and professionals who serve them.   This website houses hundreds of resources for parents, grandparents, and youth. 

We do our best to keep this website current, but please let us know if you find any broken or outdated links.

Upcoming Events - Próximos Eventos

Come talk about how to include all siblings in family life when one gets more attention
Flyer in Spanish and English inviting families to talk about all siblings getting the attention they need if one needs more.

We hope that you will join us

 

 

 

To speak to an OR F2F HIC Parent Partner

--Call 855-323-6744 (English)  o 833-990-9930 (español)   

--Email us at contact@oregonfamilytofamily.org . 

--Reach a specific parent partner directly:

To sign up for our periodic newsletters fill out this form.

Printable Tip Sheets and Toolkits to Use or Share

Paying for healthcare expenses

Durable Medical Equipment

Exceptional Needs Care Coordination

Funding and Grant Resources

Getting Wheelchairs for Children and Youth

Medical Debt

When Insurance Won't Pay

Problem Tracking Sheet fillable

Problem Tracking Sheet printable

Service and Emotional Support Animal Toolkit

Family life and safety

After the Injury (medical trauma)

Camp List for Families and All Abilities

Caregivers of Children with Rare and/or Serious Illnesses

Coping with a Child's Death or Life Limiting Illness

Disaster Preparedness for Families of Children with Special Health Needs

Family Support Chart for Hospitalizations

Finding Respite Care

Foster Care and Disability: A Toolkit for Resource Parents

Funding Resources that Include Fun!

Grandparents Legal Rights in Oregon

Generations United, Grand Resources

Medication Safety

Planning for Health Emergencies Toolkit

Service Dogs and Emotional Support Animal Toolkit

Toilet Training Children with Special Health Needs

Tools for keeping organized

Family Support Chart for Hospitalizations

Finding Good Information

Medication Safety Plan

Moving with Special Health Needs Checklist

My Child's Team

My Child's Care Coordinators

One Page Profile for the Medical Setting

One Page Profile (template)

One Page Profile (with notes)

Planning for Health Emergencies Toolkit

Problem Tracking Sheet fillable

Problem Tracking Sheet printable

Using Voicemail to Get Information You Need

Moving from pediatric to adult healthcare

Family-professional communication

11 Tips to Make the Best of Your Dr. Appointment (ASD) 

Five Questions to ask your Provider about Moving to Adult Healthcare

My Child's Care Coordinators

One Page Profile (template)

One Page Profile (with notes)

Planning for Health Emergencies Toolkit

Patient-Centered Primary Care Homes

Steps to Success: Communicating Well With Your Child's School

Specific conditions

Autism Speaks: Behavior Toolkits

Birth Anomalies Resources/Tip Sheets

Cerebral palsy toolkit UCP

The Cerebral Palsy Toolkit: From Diagnosis to Understanding CP NOW

Diabetes type 1: Informational guides

Down Syndrome: New parent guide

Eating Disorders: Parent toolkit

Guidebook for Children and Youth Newly Diagnosed with Epilepsy

Facts for Families: Social Emotional Health

Healing Hearts Booklet

Meeting medical challenges

A Parent's Introduction to Tube Feeding

Caregivers of Children with Rare and/or Serious Illnesses

Complex Child E-zine

Compassionate allowance list SSI

Coping with a Child's Death or Life-Limiting Illness

Durable Medical Equipment

Exceptional Needs Care Coordinator

Family Support Chart for Hospitalizations

Finding Good Information

Finding Respite Care

For Parents Considering Residential Care (Mental Health)

Moving with Special Health Needs Checklist

Planning for Health Emergencies Toolkit

Problem Tracking Sheet fillable

Problem Tracking Sheet printable

RARE Diseases Toolkits

Service Dogs and Emotional Support Animal Toolkit

Wheelchairs for Children and Youth

Education, leadership, and advocacy

Congratulations Advocate

Getting to the Conference

Finding Good Information

Short School Day Toolkit

Special Education Tools

Steps to Success, Communicating Well with Your Child's School

Emergency preparedness resources and checklists

Family Support Chart for Hospitalizations

Oregon Natural Disasters Emergency Preparedness Resources and Strategies for Families

Planning for Health Emergencies Toolkit

Ready Now! Emergency Preparedness Toolkit

Wildfire Evacuation Checklist

Newsletters/Noticias y recursos por familias

Newsletters/Noticias y recursos por familias Jan. 2026-present/presente

Please sign up for our periodic newsletters by filling out this form.  

Hemos cambiado a un nuevo formato en línea para nuestro boletín.  Suscríbete a nuestro boletín llenando este formulario 

Each newsletter contains Upcoming events, News you can use and a Spotlight. Próximos Eventos, Noticias Útiles, Enfoque de Padres

Research and Opportunities / Investigaciones y Oportunidades

playgroup of moms and toddlers inside with toys
Parents talking and young children playing on the floor in a semi-circle

Research, leadership, and advocacy opportunities for caregivers/parents

Research

Advisory or Advocacy

Statewide youth leadership opportunities 

University Center for Excellence in Developmental Disabilities/LEND

Oregon Department of Education

View the complete list of ODE youth leadership opportunities and access applications here. Youth may apply for multiple opportunities; there is no application limit.