Welcome
The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs when navigating complex health care systems. Staffed by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and professionals who serve them. This website houses hundreds of resources for parents, grandparents, and youth.
We do our best to keep this website current, but please let us know if you find any broken or outdated links.
Upcoming Events - Próximos Eventos
We hope that you will join us
- Martes 18 de Agosto 2026 6:00-7:00pm Charla de Mesa Recomenzando la Rutina: Planeando el Nuevo Año Escolar Link for Recomenzando la Rutina Regístrese
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Thursday August 20th, 2026 12-1:00pm Table Talk Resetting the Routine: Planning for the New School Year Link for: Resetting the Routine registration
- Miércoles 2 de Septiembre a las 6 pm-7pm. Perfiles de una página: una herramienta sencilla para el ámbito escolar, médico y otros Link for Perfiles de una página INSCRIPCIÓN
- Wednesday September 2, 2026 6-8pm One Page Profiles: A Simple Tool for School, Medical, and More In partnership with FACT Oregon. Link for One Page Profiles registration
- Wednesday September 16th, 2026 6:00-7:00pm Fast Facts and Functional Ideas: Siblings, making sure everyone gets what they need. Link for Siblings registration
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Miércoles 16 de Septiembre a las 6 pm-7pm Apoyar a Hermanos en Familias con Necesidades Especiales: Consideraciones y Consejos Prácticos Link for Hermonos INSCRIPCIÓN
- Wednesday September 23, 2026 6:00-7:30pm Oregon Law Center- Housing rights for Families Link for Housing rights registration
- Miércoles 23 de Septiembre 2026 6:00-7:30pm Oregon Law Center- Drechos de Vivienda para Familias Link for Drechos de Vivienda INSCRIPCIÓN
- Miércoles 6 de Octubre 12:00-1:00pm Preparando en familia para las fiesta y eventos de celebración Link for Preparando en familia INSCRIPCIÓN
- Wednesday October 7, 2026 6:30-7:30pm Preparing your child (AND YOU) for family and holiday events Link for Holiday prep registration
- Tuesday October 13, 2026 12:00-1:00pm Father's of Children and Youth with Special Health Care Needs (CYSHCN) Link for Father's registration
- Miércoles 13 de octubre 12:00-1:00pm Padres de Niños y Jóvenes con Necesidades Especiales (CYSHN) por sus siglas en Ingles Link for Padres INSCRIPCIÓN
- Miércoles 10 de Noviembre 2026 12:00-1:00pm Construyendo el equipo de apolyo comunitario de s hijo Link for Contuyendo el equipo INSCRIPCIÓN
- Wednesday November 11, 2026 6:00-7:00pm Hiring, keeping, and working with community support workers Link for Community support team registration
To speak to an OR F2F HIC Parent Partner
--Call 855-323-6744 (English) o 833-990-9930 (español)
--Email us at contact@oregonfamilytofamily.org
--Reach a specific parent partner directly:
- Alicia Riddle
- Ana Brooks, bi-lingual Spanish
- Beth Leverich
- Chuck Smith
- Lydia Dennehy
- Yesenia Causor-Mendoza, bi-lingual Spanish
To sign up for our periodic newsletters fill out this form.
Newsletters/Noticias y recursos por familias
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Please sign up for our periodic newsletters by filling out this form.
Hemos cambiado a un nuevo formato en línea para nuestro boletín. Suscríbete a nuestro boletín llenando este formulario
Popular pages and topics on our site
Research and Opportunities / Investigaciones y Oportunidades
Research, leadership, and advocacy opportunities for caregivers/parents
Research
- Little Duck Learning Project (Portland Preschool)
- Share your experiences receiving medical genetics care and thoughts on how to make it trauma informed (Parent/caregiver of a child under 18 with a genetic condition.) Interested in participating? Visit: https://redcap.link/f5rf9wo2
- What adult providers should know about caring for people with childhood onset complex conditions (Caregivers and adults living with complex childhood onset conditions)
Advisory or Advocacy
- State Advisory Council for Special Education (ODE: parent representative various regions) Eng Spa
- State Interagency Coordinating Council (Governor: Early intervention parent representative statewide) Eng Spa
Statewide youth leadership opportunities
University Center for Excellence in Developmental Disabilities/LEND
- Transition to Adulthood Council (TAC) Paid Community Advisory board for young adults ages 18-26 with disabilities
- Photovoice Research Project for young adults to take photos and then talk about their experiences moving from pediatric to adult care.
Oregon Department of Education
View the complete list of ODE youth leadership opportunities and access applications here. Youth may apply for multiple opportunities; there is no application limit.