Finding Resources and Emotional Support

Parents tell us...

"I love my support group.  It keeps me going. The kids are happy to see each other too."

"Whenever I have a problem, I ask my support group. Someone always has an idea worth trying." 

"We do fun things together. I can relax and know they will understand.  We might need to leave early due to a melt-down, but that is okay."

Oregon Family Networks

Family-led support organizations serve all disabilities.  They help families achieve full inclusion by advocating, problem solving, building connections, and creating fun family events.

Clackamas, Clatsop, Columbia, Lincoln, Multnomah, Tillamook and Washington counties: FACT Oregon

Yamhill, Polk and Marion counties: Creating Opportunities

Lane County: Families Connected/The Arc

Deschutes Crook and Jefferson counties: Central Oregon Disability Support Network

Baker County: Community FORCE Family Network

Douglas County: Families Engaging and Thriving Together

Klamath County: Family Advocacy & Support Network

Harney County: Kintsugi Family Support Network

Jackson and Josephine counties: Bridging Communities

Statewide with chapters: The Arc of Oregon 

Support for LGBTQ families

Condition-specific organizations

These organizations provide help and support for specific health conditions.

Support for Families of medically complex children Complex Child Newsletter 

Support and Information for families with Cerebral Palsy and similar conditions: United Cerebral Palsy 

Support for individuals and families affected by autism: Autism Society of Oregon 

Support for families of children with mental or behavioral health concerns: Oregon Family Support Network

Support for individuals and families affected by mental illness: National Alliance Mental Illness    

Support for families affected by epilepsyEpilepsy Foundation Oregon 

Information and support for families affected by Fetal Alcohol Syndrome: National Organization on Fetal Alcohol Syndrome

Support for families affected by ADHD: Children and Adults with Attention Deficit Hyperactivity Disorder (CHADD)    

Support and information about Down syndrome: NW Down Syndrome Association

Support for families affected by Charcot Marie ToothCharcot Marie Tooth Association 

Support for families whose children are Deaf/Hard of HearingHands and Voices 

Support for families and individuals who are Deafblind or have Usher Syndrome:  Oregon Deafblind Project

Support for families and individuals affected by Spina Bifida: Spina Bifida Association of Oregon

Support and information for families affected by Hemophilia: Hemophilia Foundation of Oregon

Peer support network of young women and girls with Scoliosis: Scoliosis Curvy Girls

Support and information for families whose children have Kidney Disease: NW Kidney Kids

Support for families whose children have been diagnosed with Sickle Cell Anemia: Sickle Cell Anemia Foundation

Support for families who have been affected by Juvenile Diabetes: Oregon/SW Washington Juvenile Diabetes Research Foundation

Support for families of children with serious heart conditions: Mended Little Hearts, Sisters by Heart