Faculty and Senior Scholar Publications

• Nalwadda C, *Tusubira AK, *Nambuya H, *Namazzi G, Muwanguzi D, Waiswa P, Kurinczuk J, Kelley M, Nair M.** Transition from hospital to home care for preterm babies: a qualitative study of the experiences of caregivers in Uganda. PLOS Global Public Health. Accepted March 2023; in process.
• Nair M, Kaushik N, Hazarika M, Kishore M, *MacGregor H, Wickenden M, Sheregar G, Sengupat N, Kelley M, Shepperd S.**  A community developed conceptual model for reducing long-term health problems in children with intellectual disability in India. PLOS Global Public Health. Accepted March 2023; in process.
• *Khirikoekkong N, *Asarath SA, Nosten S, Hanboonkunupakarn B, McGready R, Nosten F, *Roest J, Parker M, Cheah PY, Kelley M**. Culturally responsive research ethics: How the socio-ethical norms of ArrNar/Kreng-jai inform research participation at the Thai-Myanmar Border. PLOS Global Public Health. March 2023; in process.
• *Greer RC, Kanthawang N, *Roest J, Wangrangsimakul T, Parker M, Kelley M. Cheah PY. Vulnerability and agency in research participants’ daily lives and the research encounter: A qualitative case study of participants taking part in scrub typhus research in northern Thailand. PLoS ONE 18(1) 2023: e0280056. https://doi.org/10.1371/journal.pone.0280056
• *Perez K, Asim M, Weiss E, Valentine GC, Kavi A, Somannavar M, Iwuh I, Chiweza C, Tickell KD, Singa BO, *Beima-Sofie K, Batra M, Walson JD, Umoren R, Kelley M, Saleem S**. Considering risks to researchers and staff in low resource settings during public health crises: A proposed conceptual model. Children. 2023 10(3), 463. https://doi.org/10.3390/children10030463
• *Roest, J., *Nkosi, B.,  Seeley, J.,  Molyneux, S., &  Kelley, M.  Respecting relational agency in the context of vulnerability: What can research ethics learn from the social sciences? Bioethics,  1– 10. 2023 https://doi.org/10.1111/bioe.13139
• *Nkosi B, Seeley J, Chimbindi N, Zuma T, Kelley M and Shahmanesh M**.  Putting research ethics in context: Rethinking vulnerability and agency within a research ethics case study on HIV prevention for young girls in South Africa.  Social Science and Medicine - Qualitative Research in Health. Dec 2022; 2(1), 100081, https://doi.org/10.1016/j.ssmqr.2022.100081
• Mwongeli N, Wagner AD, Dettinger JC, Pintye J, Brown Trinidad S, Awuor M, Kimemia G, Ngure K, Heffron RA, Baeten JM, Mugo N, Bukusi EA, Kinuthia J, Kelley MC, John-Stewart GC, *Beima-Sofie KM. "PrEP Gives the Woman the Control": Healthcare Worker Perspectives on Using pre-Exposure Prophylaxis (PrEP) During Pregnancy and Postpartum in Kenya. J Int Assoc Provid AIDS Care. 2022. Dec;21:23259582221111068. doi: 10.1177/23259582221111068. PMID: 35776525; PMCID: PMC9251967.
• Tolle SW, Hedberg K. Effectiveness of Advance Care Planning: What Works, What Doesn't, and What Needs to Change? J Clin Ethics. 2022 Fall;33(3):210-219. PMID: 36137203.
• Tate, T., Stein, E., & Pearlman, R. (2022). “A Shell of My Former Self”: Using Figurative Language to Promote Communication About Patient Suffering. Advance online publication on Project MUSE. doi:10.1353/nib.0.0028.
• Lawrence S, Namusanya D, Mohamed SB, Hamuza A, Huwa C, Chasweka D, Kelley M, Molyneux S, Voskuijl W, Denno D, Desmond N. Primary motivations for and experiences with paediatric minimally invasive tissue sampling (MITS) participation in Malawi: a qualitative study. BMJ Open. 2022 Jun 8;12(6):e060061. doi: 10.1136/bmjopen-2021-060061. PMID: 35676022; PMCID: PMC9185590.
• Busisiwe Nkosi, Janet Seeley, Natsayi Chimbindi, Thembelihle Zuma, Maureen Kelley, Maryam Shahmanesh, Putting research ethics in context: Rethinking vulnerability and agency within a research ethics case study on HIV prevention for young girls in South Africa, SSM - Qualitative Research in Health,
  Volume 2,2022,100081,ISSN 2667-3215,https://doi.org/10.1016/j.ssmqr.2022.100081.
• Ehrman SE, Norton KP, Karol DE, Weaver MS, Lockwood B, Latimer A, Scott E, Jones CA, Macauley R. Top Ten Tips Palliative Care Clinicians Should Know About Medical Decision-Making Capacity Assessment. J Palliat Med. 2021 Apr;24(4):599-604. doi: 10.1089/jpm.2021.0022. Epub 2021 Feb 16.PMID: 33595361
• Tolle, S. Aligning POLST Orders with Wishes: Time to Put Evidence into Practice. Journal of the American Geriatrics Society. doi: 10.1111/jgs.17150
• Lanocha N, Tate T, Salter E, et al. Can Parents Restrict Access to Their Adolescent’s Voice?: Deciding About a Tracheostomy. Pediatrics. 2021;147(4):e2021050358. doi: 10.1542/peds.2021-050358
• Macauley R, Elster N, Fanaroff JM; COMMITTEE ON BIOETHICS, COMMITTEE ON MEDICAL LIABILITY AND RISK MANAGEMENT Ethical Considerations in Pediatricians' Use of Social Media Pediatrics. 2021 Mar;147(3):e2020049685. doi: 10.1542/peds.2020-049685.PMID: 33619046
• Tate, T. When Following the Rules Feels Wrong Hastings Cent Rep. 2021 Jan;51(1):4-5. doi:10.1002/hast.1211.PMID: 33630326
• Coleman, C. Health Literacy and Clear Communication Best Practices for Telemedicine Health Lit Res Pract. 2020 Nov 6;4(4):e224-e229. doi: 10.3928/24748307-20200924-01.
• Tate, T. What we talk about when we talk about pediatric suffering Theor Med Bioeth. 2021 Jan 5:1-21. doi: 10.1007/s11017-020-09535-8. Online ahead of print.PMID: 33400057
• Tate, T. Philosophical investigations into the essence of pediatric suffering Theor Med Bioeth. 2020 Dec 17:1-6. doi: 10.1007/s11017-020-09531-y. Online ahead of print.PMID: 33331997
• Tate, T. Your Father's a Fighter; Your Daughter's a Vegetable: A Critical Analysis of the Use of Metaphor in Clinical Practice Hastings Cent Rep. 2020 Sep;50(5):20-29. doi: 10.1002/hast.1182.PMID: 33095486
• Macauley R, Tolle S. POLST Signature Requirements: Responding With Compassion While Ensuring Informed Consent  Am J Hosp Palliat Care. 2020 Sep 1:1049909120953084. doi: 10.1177/1049909120953084. Online ahead of print.
• Tate T. Pediatric Suffering and the Burden of Proof Pediatrics. 2020 Aug;146(Suppl 1):S70-S74. doi: 10.1542/peds.2020-0818N.PMID: 32737236
• Jansen, LA (2020). Informed Consent, Therapeutic Misconception, and Unrealistic Optimism. Perspectives in Biology and Medicine 63(2), 359-373. doi:10.1353/pbm.2020.0024
• Muramoto O. Is informed consent required for the diagnosis of brain death regardless of consent for organ donation? J Med Ethics. 2020 Jun 5:medethics-2020-106240. doi: 10.1136/medethics-2020-106240.
• Macauley RC. The Selfishness of Pediatric Palliative Care. J Palliat Med. 2019 Nov;22(11):1473-1474. doi: 10.1089/jpm.2019.0191
• Harari DY, Macauley RC. Betting on CPR: a modern version of Pascal's Wager. J Med Ethics. 2019 Sep 16. pii: medethics-2019-105558. doi: 10.1136/medethics-2019-105558. [Epub ahead of print]
• Perinatal palliative care. ACOG Committee Opinion No. 786. American College of Obstetricians and Gynecologists. Obstet Gynecol 2019; 134:e84-9.
• Blix F, Tolle SW. POLST: Co-Piloting, Not Hijacking, the Advance Directive. NAELA J. 2019 June.
• Vranas KC, Lin AL, Zive D, Tolle SW, Halpern SD, Slatore CG, Newgard C, Lee RY, Kross EK, Sullivan DR. The Association of Physician Orders for Life-Sustaining Treatment with Intensity of Treatment Among Patients Presenting to the Emergency Department. Ann Emerg Med. 2019 Jun 24. pii: S0196-0644(19)30395-6. doi: 10.1016/j.annemergmed.2019.05.008. [Epub ahead of print]
• Tate T, Pearlman R. What We Mean When We Talk About Suffering- and Why Eric Cassell Should Not Have the Last Word. Perspect Biol Med. 2019;62(1):95-110. doi: 10.1353/pbm.2019.0005.
• Zive DM, Jimenez VM, Fromme EK, Tolle SW. Changes Over Time in the Oregon Physician Orders for Life-Sustaining Treatment Registry: A Study of Two Decedent Cohorts. J Palliat Med. 2019 May;22(5):500-507. doi: 10.1089/jpm.2018.0446. Epub 2018 Nov 21
• Jimenez VM, Dotson A, Tolle SW. Response to Tark et al.: Variations in Physician Orders for Life-Sustaining Treatment Program across the Nation: Environmental Scan.       J Palliat Med. 2019 Apr 22. doi: 10.1089/jpm.2019.0181. [Epub ahead of print] No abstract available.
• Rosenberg AR, Bona K, Coker T, Freudtner C, Houston K, Ibrahim A, Macauley R, Wolfe J, Hays R. Pediatric Palliative Care in the Multicultural Context: Findings From a Workshop Conference. J Pain Symptom Manage. 2019 Apr;57(4):846-855.e2. doi: 10.1016/j.jpainsymman.2019.01.005. Epub 2019 Jan 25.
• Campelia G, Tate T. Empathetic Practice: The Struggle and Virtue of Empathizing with a Patient's Suffering. Hastings Cent Rep. 2019 Mar;49(2):17-25. doi: 10.1002/hast.989.
• Jansen LA, Wall S, Miller FG. Drawing the line on physician-assisted death. J Med Ethics. 2019 Mar;45(3):190-197. doi: 10.1136/medethics-2018-105003. Epub 2018 Nov 21.
• Tolle SW, Jimenez VM, Eckstrom E. It is Time to Remove Feeding Tubes From POLST Forms. J Am Geriatr Soc. 2019 Mar;67(3):626-628. doi: 10.1111/jgs.15775. Epub 2019 Jan 31. No abstract available.
• Lalani HS, Tate T. Listen to Me. J Palliat Med. 2019 Feb;22(2):228-229. doi: 10.1089/jpm.2018.0310. No abstract available
• Macauley, R. To Trach or not to trach, that is the question. Paediatr Respir Rev. 2019 Feb;29:9-13. doi: 10.1016/j.prrv.2018.05.004. Epub 2018 May 17. Review.
• Dotson A, Jimenez VM, Tolle SW. Response to Rossfeld (doi: 10.1089/jpm.2018.0286): Unadvanced Care Planning: A Palliative Play in One Act. J Palliat Med. 2019 Feb;22(2):123. doi: 10.1089/jpm.2018.0586. No abstract available.
• Jansen LA. Taking Respect Seriously: Clinical Research and the Demands of Informed Consent. J Med Philos. 2018 May 9;43(3):342-360. doi: 10.1093/jmp/jhy006.
• Jansen LA, Wall S. Reconsidering paternalism in clinical research. Bioethics. 2018 Jan;32(1):50-58. doi: 10.1111/bioe.12382. Epub 2017 Aug 30.
• Jansen LA, Mahadevan D, Appelbaum PS, Klein WMP, Weinstein ND, Mori M, Degnin C, Sulmasy DP. Perceptions of control and unrealistic optimism in early-phase cancer trials. J Med Ethics. 2018 Feb;44(2):121-127. doi: 10.1136/medethics-2016-103724. Epub 2017 Aug 3.
• Jansen LA, Mahadevan D, Appelbaum PS, Klein WMP, Weinstein ND, Mori M, Degnin C, Sulmasy DP. Variations in Unrealistic Optimism Between Acceptors and Decliners of Early Phase Cancer Trials. J Empir Res Hum Res Ethics. 2017 Oct;12(4):280-288. doi: 10.1177/1556264617720433. Epub 2017 Jul 21.
• Tolle SW, Teno JM. Lessons from End-of-Life Care in Oregon. N Engl J Med. 2017 May 25;376(21):2096. doi: 10.1056/NEJMc1704727. No abstract available.