My Child's Diagnosis: Information and Support
Parents tell us...
"It would have been helpful to have someone in the beginning to talk to." "I was scared to have a 'label' on my baby." "I didn't know where to start. I didn't look at all the papers I got during my son's diagnosis, for awhile. Once I calmed down, I found good information, referrals, and next steps." "At our one month follow up we asked for help in setting priorities and getting started with the Autism Parent Training Program and Occupational Therapy." "My daughter is 12 now, I am still learning about her diagnosis and future."
Find helpful information about hundreds of medical conditions and diagnoses.
John's Hopkins Medicine: Health Library
Children's Minnesota (hospital): Education Materials
Kidshealth.org from Nemours Foundation children's health topics for parents, children, and teens.
National Organization for Rare Disorders: Rare disease information
Centers for Disease Control and Prevention: Condition fact sheets
Mitochondria disease support and information: MitoAction
Unique-chromosomal and single dominate genes: rarechromo.org Disorder Guides
Genetic Support Foundation patient library: Commonly tested for prenatal conditions
Identify the best types of Internet sites to research your child's condition. In general we recommend looking for .edu, .gov, or .org web addresses over .com or .net addresses.
Access To Credible Genetics Resource Network: Trust it or Trash It?