The Healthy Lifestyles for People with Intellectual Disabilities (HLID) Study

The Healthy Lifestyles for People with Intellectual Disabilities (HLID) Study: Intervention Design and Study Methods

Lisa Lyman


People with intellectual disabilities (ID) are more likely to experience poorer health than the general population. Scarcity of health promotion programs designed to meet the needs of people with ID contribute to this problem. This poster will present design and methods utilized to study a health education and promotion program specifically for people with ID, Healthy Lifestyles (HL), and will include discussion of study aims and hypotheses, participant recruitment, and measurement.

The Healthy Lifestyles for People with Intellectual Disabilities (HLID) Study is a randomized controlled trial of the efficacy a health promotion and disease prevention intervention, HL, designed specifically to meet the needs of people with ID. The HLID study aims to assess changes in health behaviors and outcomes of participants and to identify positive predictors. Study participants are recruited through community-based service providers including regional service offices, vendors, and school districts providing transition services to people with ID. Participants are between the ages of 18 and 65, have a mild or moderate ID, and receive services through an Oregon or southwest Washington state provider for persons with ID. All participants attend a study orientation session and are randomly assigned to one of two study groups, intervention or control. Participants in the intervention group receive the HL curriculum over a three-day period via an interactive workshop format. During workshop sessions, participants learn from facilitators and one another about the domains of health comprising HL and positive practices for improving and maintaining one’s personal health. With the assistance of facilitators, participants establish personal goals for health maintenance or improvement. For the next six months, members of the intervention group also attend support group meetings. Measurement of intervention and control participants occurs at orientation and at one, six and 12 months post-orientation and consists of anthropometric measures (e.g., height, weight, waist circumference, etc.), self reported health status, self-efficacy, readiness to change, health care utilization, and health knowledge.