Research Consortium

Rare Disorders Research Consortium

The OHSU Rare Disorders Research Consortium (RDRC), supported by the OHSU Human Genetics Initiative and the Oregon Clinical & Translational Research Institute, creates a local hub for rare disorders research by promoting interaction and sharing of expertise among the diverse investigators on campus.  Although most genetic disorders are individually rare, their cumulative impact is significant and the technologies and skill sets required for their study are unique.  

The RDRC provides clinical investigators, basic scientists, and families with information about rare disorders studied on campus and the specific expertise of our investigator community, including gene hunting, psychosocial research, epidemiology, stem cell therapy, and more. We hope our website will serve as a resource to professionals and laypersons by providing information about consortium members, rare disorders studied at OHSU, local and national funding opportunities, and linking families with appropriate researchers and rare disorder clinical studies. OHSU has a strong foundation of rare disorders research; we hope to enhance this through facilitating new collaborations and pooling knowledge and resources.

RDRC Objectives: Step 1: Sensing and responding to opportunities Step 2: Building and maintaining industry relationships Step 3: Contracts from NIH Step 4: Contracts from industry Step 5: Clinical evaluation and treatment for rare disease Step 6: Revenue associated with addressing unmet medical needs in Rare Diseases