Tracking the Well-being of AYA Patients over Time
Our main goals are to:
- Determine whether it is possible to identify a group of AYA oncology patients from three academic health systems
- Determine whether these patients can be followed and assessed at various intervals over time
The project will also gather complete treatment information see if treatment affects the three areas of well-being. It will also begin to identify issues related to delayed diagnosis in these patients.
The information from this study will help determine the best way to identify a large national group of AYA oncology patients. Researchers and healthcare providers can then track these patients’ physical and psychological well-being over time.
The study has funding from the LiveStrong Young Adult Alliance. OHSU is coordinating this study and participating with MD Anderson Cancer Center and Vanderbilt University.