Volunteer spotlight: Meet Chemo Pal mentors Jennifer, Allie and Jen

Meet Jennifer Thornton, Allie Busby and Jen Peckham, three OHSU employees who volunteer as Chemo Pal mentors, a Children’s Cancer Association program that matches adults with kids undergoing cancer treatment. Chemo Pal mentors are easy to spot in Doernbecher’s halls with their purple shirts and oversized duffle bags, which are filled with games and toys. Their visits provide parents with the opportunity to meet one-on-one with physicians or take much-needed breaks from their child’s hospital room. The Chemo Pal mentors also offer friendship and a bit of distraction for kids undergoing treatment for cancer.

“Treatment can be a very scary and isolating process for kids, so the Chemo Pal is a mentor who can bring fun and laughter to their day to help distract them from what they’re currently going through,” said Jennifer T.

Though they were all drawn to the program by different motivations, their reasons for staying are the same: the chance to brighten a child’s day – even if it’s just an hour at a time – while they fight a very tough battle. Mentors develop special bonds with their Chemo Pal matches and families.

“I’ve seen my match grow up from this tiny little guy into a regular boy. It started as a professional relationship, but it’s developed into a family bond,” Allie, who has put in about 480 hours of volunteer work in the last five years, said. “I sit with him during appointments, play games with him and his siblings and battle over LEGOs. I’m admittedly not very good at building LEGOs, so he’s teaching me.”

Jennifer T., who has volunteered as a Chemo Pal mentor for the last seven years, has developed a special relationship with her Chemo Pal match – a  2-year-old boy whose big personality revealed itself on a visit to his house for a play date.

“As soon as his dad opened the door to let me in, this quiet and reserved boy jumped on top of the couch yelling, “BAG!” while pointing at my duffle bag,” she said. “He had me grinning from ear to ear and I knew at that moment we would be great pals.”

In the last five years, Jen P., who also helps facilitate Chemo Pal training, has been matched with four incredible kids. She loves seeing their faces light up when she walks in the room and is often struck by how resilient kids can be.

“It’s amazing to think that they’re here for chemo, but they can still have joy in the midst of it,” she said.

One of Jen P.’s fondest memories took place outside of treatment when she accompanied her Chemo Pal for an interview at a studio. She enjoyed seeing the young girl revel in the pampered experience of having her hair and makeup done prior to the interview.

Being a Chemo Pal mentor can be difficult, of course. Jennifer T.’s first match passed away when he was 3 years old, but she’s grateful that she was able to spend the last nine months of his life with him as his Chemo Pal.

“His passing was very difficult, but I am constantly reminded of his big smile, great sense of humor and loving heart,” Jennifer T., who still keeps in touch with his parents, said. “I learned so much from him during our time together.”

Another thing mentors often learn: how truly inspiring pediatric cancer patients can be. Kids’ bravery and resilience make a mark on all three Chemo Pal mentors.

“Kids are so small and yet so powerful,” Allie said. “It reminds me that I can get through anything – I just need hope.”

•••

Interested in becoming a Chemo Pal? Learn more about the program here.

 

A ‘purrfect’ pair: Meet Doernbecher volunteers Huck and Carol

You’ll know Doernbecher volunteer Huck Finn when you see him.

Huck is a quiet, laid-back cat with a “checkered past,” according to his owner, Carol Markt. His age is unknown, but Carol speculates that he’s about 9 years old. He had a rough start to life, having been abandoned in an apartment building by his previous owners – if only they knew how much joy he would one day bring to the lives of Doernbecher kids, families and staff!

Like other therapy cats and dogs, Huck is screened regularly to ensure he is well suited for volunteer work in a medical setting. He’s known for his calm, tolerant demeanor.

Another thing Huck is known for is his size – his breed, like his age, is unknown, but Carol guesses he might be part Maine Coon. Patients see Huck lounging on top of his volunteer cart, which Carol steers, and ask if he knows how to walk. Rest assured, Huck gets his daily exercise through daily 30-second “wild and crazy” bursts of activity at home.

This dynamic duo is one of 14 animal-assisted therapy teams at Doernbecher. They volunteer once a week, making the rounds to visit patients on 10N, 10S and in the PICU. For patients with pets at home, Huck’s visit provides a sense of normalcy. He’ll occasionally lie on patients’ beds to be petted or help motivate patients undergoing physical therapy.

Carol remembers a time when a patient with Guillain Barre syndrome moved his foot ever so slightly as Huck was brought into his room. A member of the patient’s care team told Carol it was the first time he’d seen that happen.

Carol believes pet therapy can have an enormous impact on a sick child. “It takes them out of being here in a hospital,” she said. “They’re transported for awhile.”

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Learn more about volunteer opportunities at OHSU here.

Thank you, Doernbecher volunteers!

This National Volunteer Week, we’re celebrating and thanking the 471 incredible volunteers (and counting) who serve OHSU in a variety of ways. Every year, these volunteers spend 68,000 hours of their time playing music, doing administrative work, cuddling babies, sitting with pediatric oncology patients as they undergo treatment and giving visitors directions (just to name a few).

Although their roles and reasons for volunteering may differ, their impact is the same: They make OHSU a better place. Below, we get to know a few folks who donate their time to help Doernbecher kids, families and staff. Prepare to be inspired!

Lyrrel Lombard, baby cuddler

Every week, Lyrrel Lombard heads for the Doernbecher Neonatal Care Center (DNCC), where she spends hours assisting NICU staff as a “baby cuddler.” (Have you ever heard a better volunteer title?) Lyrrel holds babies and sings them to sleep, often recalling songs she learned in her years as a Girl Scout. Other responsibilities include amusing the babies who are awake and replacing pacifiers. It’s no wonder Lyrrel is a natural with the tiniest Doernbecher patients: she was a school counselor before she retired and today she has six grandchildren and one great-grandchild of her own. Lyrrel finds that her volunteer work helps put her own problems in perspective.

Although she loves the time she spends with patients, Lyrrel says her favorite part is watching families finally head home with their infants. “Leaving,” she said, “is joyous.”

 

Huck Finn and Carol Markt, animal-assisted therapy team 

Huck Finn and his owner, Carol, make the rounds bringing smiles to passing patients, visitors and employees every Thursday. Though Huck typically lounges atop a cart Carol steers around the hospital, he can sometimes be spotted lying on patients’ beds to be petted.

Huck is known for his hefty size and is likely part Maine Coone, though his breed is unknown. His age, too, is unknown, though Carol estimates he’s “nine-ish” years old. Huck was found abandoned in an apartment building by his previous owners – if only they knew how much joy he would one day bring to the lives of Doernbecher kids!

Carol, who has volunteered here for 22 years (four of those with Huck), believes animals help “transport” patients for just a few moments. “It takes people out of being here in a hospital,” she said.

Click here to learn more about Huck and Carol!

 

Jennifer Thornton, Chemo Pal

Jennifer is one of many OHSU employees who volunteer as Chemo Pal mentors. This Children’s Cancer Association program matches adults with kids undergoing cancer treatment. What does Jennifer love most about being a Chemo Pal? A patient’s smile when she walks into the room.

“Kids don’t want to be sick or constantly poked at the doctor’s office, but they can count on us to bring their favorite toys and games to make their day a little better,” Jennifer said. Click here to learn more about the Chemo Pal mentor program, and here to learn more about Jennifer and fellow Chemo Pal mentors Jen and Allie!

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Meet more OHSU volunteers here. Interested in volunteering your time? Learn how you can get involved here.

Know a volunteer you’d like to thank? We invite you to leave a comment below or email socialmedia@ohsu.edu.

Preventing child abuse: Protecting our children from one another

Physical abuse, sexual abuse, violence in the home and exposure to substance abuse are all adverse events that can occur in the life of a child and may lead to negative health outcomes into adulthood. Research demonstrates how adults’ bad behavior can have a significant impact on the growing and developing mind and body of a child. We are also learning more about how actions of our children’s peers can also have a significant impact on their health and well-being.

Many of us have an image of bullying that includes a young, frail child who is threatened or hurt by the big playground bully. Although this stereotypical bullying still occurs across schoolyards today, the modes of bullying have evolved with modern technology. The CDC defines electronic aggression (also known as “cyberbullying”) as “any type of harassment or bullying that occurs through email, a chat room, instant messaging, a website, social media or text messaging.” Their research shows that between 9 and 35 percent of students report that they have been victims of cyberbullying. Easy access to the Internet, anonymity and widespread distribution are all reasons why cyberbullying is on the rise.

Bullying is a form of violence that can cause significant emotional, physical and behavioral problems for both the bully and the victim. As with any adverse childhood experience, being a bully or being a victim of bullying can lead to immediate health concerns including depression, anxiety, school avoidance and somatic complaints – and it can also lead to long lasting poor health outcomes. Children who are bullied or who are bullies themselves are more likely to abuse drugs and/or alcohol, have lower self-esteem, suffer from mental health issues and have physical health diagnoses. Bullying behaviors can be closely related to suicide behaviors. Studies show that children who play or have played both roles (bully and victim) suffer the most serious physical and mental health consequences.

Although research is still developing around bullying prevention, the CDC offers some suggestions. Schools should work to improve supervision of students and should implement and actively enforce rules and policies against bullying of any form. They should promote communication and cooperation among parents, school staff and other professionals. Parents should check in with their child frequently, develop rules for safe electronic media use, monitor their child’s media use and communicate with the school when necessary.

This April for Child Abuse Prevention Month, let’s focus our efforts on protecting children from all forms of abuse, neglect and violence – including exposure to bullying behaviors.

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Interested in learning more? The CDC’s tip sheet offers further examples of electronic aggression and tips for parents and caregivers. Their “understanding bullying” fact sheet explains why bullying is a public health problem and identifies youths who may be at risk for engaging in or experiencing bullying, as well as tips for preventing bullying. Finally, stopbullying.gov has an extensive list of state policies and laws surrounding bullying, in addition to ways that parents, educators, community members, teens and kids can get involved and take action against bullying.

Noelle Gibson, M.N., R.N., C.P.N.P
Pediatric Nurse Practitioner
Suspected Child Abuse and Neglect Program, OHSU Doernbecher Children’s Hospital
CARES Northwest

Meet Hope, Doernbecher’s hospital facility dog

“Can I take her home with me?”

It’s one of the questions Child Life Program Manager Sandy Westfall hears most often from Doernbecher patients (and, occasionally, employees) when they first meet Hope, Doernbecher’s new facility dog.

Below, we answer more questions about the dog who’s bringing hope to our halls, one smile at a time.

What does Hope do at Doernbecher?

As “chief canine officer,” Hope’s job is to provide emotional support, therapy and love to our pediatric patients and their families. Her handler, Sandy, introduces Hope to Doernbecher patients by request. They can take Hope for walks or play a game of fetch in the courtyard. When Hope meets patients who are unable to get out of bed, Sandy issues one of her favorite commands: “Snuggle!”

Hope’s impact extends far beyond patient rooms. Sandy brings her along to meetings, where OHSU employees can be spotted crouching down to get some quality Hope time. The duo inevitably meet new friends when walking between units or when Hope’s headed outside for a break. Hope’s schedule does allow for some downtime, and she enjoys well-deserved naps in Sandy’s office.

How is Hope different from a therapy dog or a service dog?

A facility dog’s training is much more extensive than that of a therapy dog, lasting about a year and a half. Unlike service and guide dogs, Hope was trained to serve more than one person. She came to Doernbecher in January from Assistance Dogs of Hawaii, a non-profit organization that provides professionally trained dogs for people in need. Hope began her training when she was just 8 weeks old, undergoing rigorous health and temperament screenings and learning more than 70 commands.

Hope is also handled by a professional: Sandy underwent rigorous training as well, traveling to Maui for an intensive program that included an overview on dog psychology, giving instruction and the hygiene measures that are necessary for a hospital facility dog. Hope lives with Sandy and the two carpool into work each day to make the rounds together.

What makes Hope a good fit for Doernbecher? 

Assistance Dogs of Hawaii founders Mo and Will Maurer selected Hope, an English Cream Golden Retriever, for her role because of her calm demeanor. Not many dogs are well suited for a hospital environment, but Hope is not an easily distracted dog. The screenings she went through in her training helped ensure that she would be a good fit for Doernbecher patients and families.

“Hope’s presence has changed the mood of the whole hospital,” Sandy said. “I’ve seen parents overjoyed because it’s the first time they’ve seen their child smile in awhile. She has brought a lot more joy and love and excitement for our kids.”

What does Hope like to do in her free time?

When she isn’t snuggling with our patients, Hope loves a good game of catch. Like any true Oregonian, she also enjoys hiking and trips to the beach.

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Hope comes to us thanks to Doernbecher Children’s Hospital Foundation board member Kate McCoy and her husband, Craig, who brought Assistance Dogs of Hawaii to the attention of Doernbecher administration. The McCoys believed that a facility dog would bring hope, love, joy and healing to Doernbecher patients, families and staff, and they made a generous gift to help establish the Hope Fund within the Doernbecher Foundation. Thank you, Kate and Craig!

Follow along with Hope’s adventure using the #dbhope hashtag – we’ll also be sharing Hope photos and stories on Facebook, Twitter and Instagram.

It’s a roller coaster ride: One mom’s NICU experience

Sarah Colton’s daughter, Rosy, weighed 1 lb 15 oz when she was born by emergency C-section. Rosy spent a total of 73 days in the Doernbecher Neonatal Care Center (DNCC), first in the “micro-preemie” unit and then, once she had gained more weight, in pod 6. Today, Rosy is a happy and healthy baby girl about to turn 4 months old (her corrected age is 1 month). Sarah shares her family’s NICU experience below.

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I had severe chest pain the weekend of Thanksgiving and went into Labor and Delivery, where I found out I had HELLP syndrome. The doctors were able to stabilize me for two days and gave me steroids to help Rosy’s lungs develop. The following Tuesday evening, my liver began to fail and I began slowly bleeding out – Rosy was born by emergency C-section on December 3, 2014, at 27 weeks and 5 days old gestation. I had further complications and ended up in the cardiac ICU for two days before I was able to see my daughter for the first time. The NICU nurses were amazing and brought me photos of her while I was in the ICU.

For the 73 days that Rosy was in the NICU, it was really challenging to juggle work, our time at the NICU and time with our 2 1/2-year-old, Gunner. Our daily schedule consisted of my going to the NICU during the daytime and working next to Rosy’s bed. I’d leave to pick Gunner up from daycare at 4 p.m. and have family time at home until his 8 p.m. bedtime. After that, Garrett would visit Rosy in the NICU.

Having a baby in the NICU is emotionally difficult. I wasn’t able to form the same bond I had with Gunner because I wasn’t able to hold and breastfeed her at home. I was meticulous with my pumping – it felt like this was one of the only things I could do to help her development while she was in the NICU. It was a long 73 days, but Garrett and I made it a point to visit every day, and I did at least an hour of “Kangaroo Care” daily.

Jenn, Pam, Sandy, Nancy, Lynne and all of the NICU staff were so supportive and loving. It was challenging, to say the least, but we made it through. The NICU is a roller coaster ride – there are ups and downs every day. You just have to stay strong and take it day by day.

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Every year, more than 5,000 babies in Oregon and Southwest Washington are born too soon. Read about the March of Dimes NICU Family Support Program in the Doernbecher Neonatal Care Center (DNCC) here, and consider joining OHSU/Doernbecher Team Tiny Feet at the 2015 March for Babies team here.

Doernbecher’s Child Life specialists: “We’re here for you and you can do this”

This Child Life Month, we’re celebrating the team that supports the emotional and developmental needs of children and families while they’re at Doernbecher. Below, Child Life specialists Peggy Adams, Kimberly Kuehnert and Hannah Ono explain why they chose this career path and how it can be both rewarding and challenging.

Why did you decide to become a Child Life Specialist?

My decision to become a Child Life Specialist (CCLS) came in a roundabout way. All throughout high school, I was working toward becoming a pre-med major in college, but life intervened at the end of my sophomore year in the form of a leukemia diagnosis and over 100 weeks of chemotherapy and radiation. I don’t think I was the best Child Life patient, but I do remember finally giving in to a CCLS who was trying to get this angry teenager to do some stamp artwork.

Despite my best efforts, I had to let go of pursuing a pre-med degree but I still knew that I wanted to work in the healthcare field. I didn’t really consider a career in the Child Life profession until Peggy let me shadow her for a day and offered to let me do a Child Life practicum with her. It took a few years of moving around hospitals but I’m happy to have landed in the Outpatient Pediatric Hem/Onc and Infusion Clinic here at Doernbecher!
–Hannah

What’s the best part about the Child Life profession?

The best part of my job is having a family let you into their lives when they’re at their most vulnerable. Sharing in their sorrows and joy and easing their pain is one of the mast satisfying experiences I know. –Kimberly

We take joy in the little things, like when a little girl learns to face her fear of getting her port accessed by singing Katy Perry’s “Roar” song, roaring when the port needle goes in and dancing off her sadness to Taylor Swift’s “Shake it Off.” So much life and joy happens within our hospital walls, and that’s something that we don’t often realize or remember. –Hannah

What’s the most difficult part about your job?

I think one of the most challenging things is prioritizing patient needs when you know that there are so many patients who have needs and there are only so many hours in the day. –Peggy

You never want to see kids, teens or young adults sick. It can be especially difficult working in the pediatric hem/onc clinic because diagnoses are so serious and treatment can be hard for our kids. Although working in the clinic sometimes reminds me of my own experiences in the hospital, I know that everyone has their own journey and interpretation of what’s going on. The rewards of working with these patients definitely outweigh any challenges that I’ve come across. –Hannah

What encouragement or advice would you give Doernbecher families?

Some very good things can come out of very difficult times. I’ve seen amazing strength and I’ve seen families coming together to communicate better and rally together. Also, remember that you are your child’s best advocate, but you also need to care for yourself. Build in little breaks for yourself to re-energize – you’ll be better able to withstand the long haul. –Peggy

You have an entire team of people that are here for you, medically, socially and emotionally. We will laugh with you and cry with you, supporting you on your journey and reminding you of the strength and courage you have within you. –Kimberly

You can do this. When faced with whatever diagnosis, treatment or situation that brings you here to our hospital, you may seem overwhelmed and may not know where to start. Just remember that there are so many people here at Doernbecher, Child Life Specialists included, who are here to support you, your child and your family. Patients, parents, caregivers, siblings and others don’t often realize just how strong they are and what they’re capable of, so ask for help when or if needed. We’re here for you and you can do this. –Hannah

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Visit our Child Life program website to read about the activities and guidance it provides, and learn more about Doernbecher’s Family Resource Center website here. If you’d like to pass along a message to a member of our Child Life team, please comment below or email socialmedia@ohsu.edu and it will be passed along.

Doctors Day Q&A with Dr. Nate Selden

In celebration of National Doctors Day, we sat down with Dr. Nate Selden to ask what inspired him to become a physician – and what continues to inspire him in his day-to-day life as the Campagna Chair of Pediatric Neurosurgery at Doernbecher and Director of OHSU’s Neurological Surgery Residency Program.

Why did you become a physician?

Although my father and both grandfathers were doctors, I was pretty certain until almost the end of college that I did not want to become a physician. I was interested in history and political science, and spent a year of college living and studying in Italy. During my studies, however, I also developed a fascination for the brain and how it underlies everything that makes us human.

After graduating from Stanford University, I had a wonderful opportunity to study for three years at Cambridge University, as a Marshall Scholar and guest of the British government. This gave me a chance I never otherwise would have had to study the brain full time and develop a deeper understanding of its function. At Cambridge, I earned a PhD in neuroscience, and prepared for a career in basic research. But as my studies in England drew to a close, I realized my fascination with the brain was founded on a curiosity about people. I wanted to spend my career ‘hands on’ with the people I had been curious about as a scientist.

So, instead of a post-doctoral laboratory position, I returned home to begin medical school at Harvard. It was a great decision. On my second day of medical school, I met my future wife (a classmate). And I love being a doctor!

What’s something people might be surprised to know about your career?

Because I changed my career direction towards the end of college, I was missing some of the necessary prerequisites for medical school, such as the final class in the organic chemistry series. To my surprise, I convinced most of the medical schools I was interested in to waive this entry requirement, and got started on my medical studies. Halfway through the first semester, though, I found out why organic chemistry is required for pre-medical students: I failed the midterm examination for my medical school biochemistry class. After studying day and night for two weeks straight, I passed the final with a solid mark, and my medical career carried on.

Day to day, I never use any of the information I studied in biochemistry. I do use my knowledge of neuroscience, however, not just to treat brain diseases, but also to understand how young adults learn and improve. One of my most rewarding activities as an academic neurosurgeon has been to develop new systems for teaching safety and professionalism to young trainees using simulation courses, as well as new ways to objectively assess progress towards safe, independent practice. Every neurosurgeon we train well will take care of thousands of patients that I will never even see; that is high impact! 

What’s the most difficult part of your job?

The most difficult part of my job is taking care of dying children, with severe brain injury or incurable cancer. It is very difficult talking to parents about these unthinkable tragedies. However, it is as important to do so compassionately and supportively as it is to do a brain or spinal cord surgery well. Both are key parts of my job.

And the most rewarding?

The most rewarding part of my job comes in two parts. One is to see a patient back in my clinic after a challenging operation with a great outcome. When I can reassure parents that the prognosis is good, I see the strain and worry lift from their shoulders. And I see that the children, especially the younger ones, are simply their resilient selves, blissfully unaware of how serious their condition was. The second part is to share that experience with the resident trainees who care for children with me. Their wonder and deep satisfaction as they experience these successes for the first time are palpable. Occasionally, we inspire one of them to pursue pediatric neurosurgery, and that is a terrific endorsement of the work we do at Doernbecher.

What advice would you give aspiring physicians?

Spend time with practicing physicians and surgeons to see what their day-to-day life is really like. Make sure you enjoy the rhythms of a normal medical routine and not just the idea of being a doctor. Medicine is a labor of love that requires diligence and resilience. If you have a passion for the work, it is its own reward.

 

Nathan R. Selden, M.D., Ph.D.
Mario and Edie Campagna Chair of Pediatric Neurosurgery
Director, OHSU Neurological Surgery Residency Program
OHSU Doernbecher Children’s Hospital

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If you’d like to join us in thanking the the physicians who care for our patients and families, we invite you to leave a comment on our Facebook page or make a donation in your Doernbecher doc’s name.

When is my child old enough to use an iPad or tablet?

In general, consider any child younger than 2 years old too young.

Tablets may prevent infants and toddlers from engaging in the give-and-take of everyday exchanges with family as well as the “real” world of playing with physical objects that require and develop sensory and motor skills. iPads do offer some terrific “edutainment” apps to help young children learn, especially in spelling, reading and math.

Tablets can also promote self-control. Before you use one for the first time, practice when it’s time to start and stop using it. Make its use dependent upon stopping on time, and let the child earn additional minutes with good behavior.

Finally, lead by example: Children mirror what their parents do, and if you’re always on your phone (“absorbed”), your child may follow suit or sigh, cry or go to other great lengths to get your attention.

Craigan Usher, M.D.
Assistant Professor of Pediatrics
Division of Child and Adolescent Psychiatry
OHSU Doernbecher Children’s Hospital

What is National Poison Prevention Week?

More than 2 million poisonings are reported each year to poison centers all across the nation, and more than 90 percent of these poisonings occur in the home. Since 1962, the President of the United States has proclaimed the third week of March as National Poison Prevention Week to raise awareness about the dangers of poisonings and how to prevent them.

The Oregon Poison Center would like to remind you that this is the time to protect you and your family members from unintentional poisonings.

What is a poison?

A poison is something that can be harmful if swallowed, spilled on the skin, splashed in the eyes or breathed in. Children are frequently confused about what a poison is. They may know that poisons are “bad” but children do not know that something sweet smelling or sweet tasting can also be a poison.

Below are some examples of potential poisons.

Medicines:

  • Pain or fever relievers
  • Cough and cold preparations
  • Pills for depression or heart disease

Cleaners for home, car, and clothes:

  • Toilet cleaners and drain openers
  • Laundry detergents and bleach
  • Kerosene, gasoline and lamp oils
  • Antifreeze and windshield washer fluids

Four tips to prevent poisoning:

  • Lock up all poisons whenever possible.
  • Know that child-resistant caps are NEVER childproof.
  • Remember: Adults are often victims of accidental poisonings.
  • Label dangerous products with Mr. Yuk stickers to help kids “stay away” from poisons. Find out more about the Mr. Yuk poison warning symbol here.

For more tips, hazard alerts and news, visit the Oregon Poison Center website or the American Association of Poison Control Centers website. Remember, the Poison Center is open 24 hours, seven days a week, and we’re here to help you with poisonings and poison prevention. In the case of an emergency, you should always contact your poison control center at 1-800-222-1222 or 911 emergency services.

Tonya Drayden, RN, MSN, CSPI
Public Education Coordinator
Oregon Poison Center, OHSU

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