OHSU

Rare Disorders Research Consortium

 The Rare Disorders Research Consortium Conference invites you to attend an evening event to

showcase OHSU's rare disorders research excellence:

"Innovation and Opportunities in Rare Disease Research"

Wednesday, February 29, 2012

4:00 to 8:30 p.m.

The Joseph Vey Conference Center

Keynote Speaker: William Gahl, MD, PhD

Clinical Director, National Human Genome Research Institute and

The NIH Undiagnosed Diseases Program

Appetizers, drinks and an iPad giveaway

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This conference brings together OHSU's top scientists to showcase our portfolio of rare disease research. The event includes Dr. Gahl's keynote address, a scientific poster session by faculty and trainees, and 'speed' talks highlighting outstanding rare disease research programs at OHSU.

To RSVP for this event, please follow this link: https://www.surveymonkey.com/s/S6QCD2P

To reserve a slot in the poster session link here: https://www.surveymonkey.com/s/S6FZ3NL

Poster presenter deadline is Wednesday, February 15th.  Please share information about this event with trainees and other members of your research group and collaborators.  We welcome both faculty and trainee posters!

Sponsored by the Oregon Clinical & Translational Research Institute, the Office of Technology Transfer and Business Development, and the Departments of Molecular and Medical Genetics and Pediatrics

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Questions or need more information?  Contact Gerri Lutes (lutesg@ohsu.edu), Leila Schwanemann (schwanem@ohsu.edu)

The OHSU Rare Disorders Research Consortium (RDRC), supported by the OHSU Human Genetics Initiative and the Oregon Clinical & Translational Research Institute, creates a local hub for rare disorders research by promoting interaction and sharing of expertise among the diverse investigators on campus.  Although most genetic disorders are individually rare, their cumulative impact is significant and the technologies and skill sets required for their study are unique.  

The RDRC provides clinical investigators, basic scientists, and families with information about rare disorders studied on campus and the specific expertise of our investigator community, including gene hunting, psychosocial research, epidemiology, stem cell therapy, and more. We hope our website will serve as a resource to professionals and laypersons by providing information about consortium members, rare disorders studied at OHSU, local and national funding opportunities, and linking families with appropriate researchers and rare disorder clinical studies. OHSU has a strong foundation of rare disorders research; we hope to enhance this through facilitating new collaborations and pooling knowledge and resources.

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