Resources to support investigators as they conduct clinical trials, including tools for retaining engagement.
The Practice-based Research Network (PBRN) Research Good Practices, or PRGPs, were developed for the specific context of multi-site research conducted in the clinical practice setting. This PRGP document is the culmination of a mixed-methods research project in which over one hundred researchers contributed their experience, expertise and wisdom to identify research best practices, and then to detail recommendations and strategies to support the primary care research enterprise.
This Evaluation Roadmap is designed to be a resource for future research and evaluation, of use to funders, researchers, and program evaluators interested in primary care and understanding effective clinical-community resource relationships. The Roadmap is rooted in a conceptual framework that depicts the interrelationships between several factors that may influence the effectiveness of linkages between primary care clinics and community resources for preventive services.
Shared Decision Making Resources
Shared Decision Making (SDM) is a process of engaging patients in making informed, values based decisions for preference sensitive conditions. Decision Aids (DAs) are evidence-based tools that explicitly cover the options, benefits, and risks in cases where there is more than one available treatment or diagnostic option. DAs can be an effective supplement to patient-clinician conversations.
Below are resources from the presentation made by Claire Sahlberg, Rural Community Health Clerkship medical student on health literacy, readability and diabetes, emphasizing why it's necessary to provide easy to understand and clear patient presentation tools.
"If you are not counted, you do not count": Collecting Sexual Orientation and Gender Identity Data in the EHR
- Presented March 25, 2016 to the Meaningful Care Conference by ORPRN PERC Kelsey Branca, MPH, CCR
POLST: Doing it Better 7 minute video
"POLST (Physician Orders for Life Sustaining Treatment) has proven to be a powerful tool in assuring respect for the treatment preferences of those nearing the end of their lives. This 7 minute video was created by the OHSU Center for Ethics in Health Care and shown on the ORPRN website to correct misinformation and promote the high quality use of the POLST Program."
Susan W. Tolle, MD Cornelia Hayes Stevens Chair; Director, Center for Ethics in Health Care