Welcome
The Oregon Family to Family Health Information Center supports families and caregivers of children with special health needs when navigating complex health care systems. Staffed by parents of children and youth with a variety of health conditions, we provide free one-to-one support, training, and printed materials to families and professionals who serve them. This website houses hundreds of resources for parents, grandparents, and youth.
We do our best to keep this website current, but please let us know if you find any broken or outdated links.
Upcoming Events - Próximos Eventos
We hope that you will join us
- Charla de Mesa Recomenzando la Rutina: Planeando el Nuevo Año Escolar Martes 18 de Agosto 2026 6:00-7:00pm Link for Recomenzando la Rutina Regístrese
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Table Talk Resetting the Routine: Planning for the New School Year Thursday August 20th, 2026 12-1:00pm Link for: Resetting the Routine registration
- Perfiles de una página: una herramienta sencilla para el ámbito escolar, médico y otros Miércoles 2 de Septiembre a las 6 pm-7pm Link for Perfiles de una página INSCRIPCIÓN
- One Page Profiles: A Simple Tool for School, Medical, and More Wednesday September 2, 2026 6-8pm In partnership with FACT Oregon. Link for One Page Profiles registration
- Fast Facts and Functional Ideas: Siblings, making sure everyone gets what they need. Wednesday September 16th, 2026 6:00-7:00pm Link for Siblings registration
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Apoyar a Hermanos en Familias con Necesidades Especiales: Consideraciones y Consejos Prácticos Miércoles 16 de Septiembre a las 6 pm-7pm Link for Hermonos INSCRIPCIÓN
- Oregon Law Center- Housing rights for Families Wednesday September 23, 2026 6:00-7:30pm Link for Housing rights registration
- Oregon Law Center- Drechos de Vivienda para Familias Miércoles 23 de Septiembre 2026 6:00-7:30pm Link for Drechos de Vivienda INSCRIPCIÓN
- Preparando en familia para las fiesta y eventos de celebración Miércoles 6 de Octubre 12:00-1:00pm Link for Preparando en familia INSCRIPCIÓN
- Preparing your child (AND YOU) for family and holiday events Wednesday October 7, 2026 6:30-7:30pm Link for Holiday prep registration
- Fathers of Children and Youth with Special Health Care Needs (CYSHCN) Tuesday October 13, 2026 12:00-1:00pm Link for Father's registration
- Padres de Niños y Jóvenes con Necesidades Especiales (CYSHN) por sus siglas en Ingles Miércoles 13 de octubre 12:00-1:00pm Link for Padres INSCRIPCIÓN
- Construyendo el equipo de apolyo comunitario de s hijo Miércoles 10 de Noviembre 2026 12:00-1:00pm Link for Contuyendo el equipo INSCRIPCIÓN
- Hiring, keeping, and working with community support workers Wednesday November 11, 2026 6:00-7:00pm Link for Community support team registration
To speak to an OR F2F HIC Parent Partner
--Call 855-323-6744 (English) o 833-990-9930 (español)
--Email us at contact@oregonfamilytofamily.org
--Reach a specific parent partner directly:
Newsletters/Noticias y recursos por familias
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Please sign up for our periodic newsletters by filling out this form.
Hemos cambiado a un nuevo formato en línea para nuestro boletín. Suscríbete a nuestro boletín llenando este formulario
Popular pages and topics
Research and Opportunities / Investigaciones y Oportunidades
Research, leadership, and advocacy opportunities for caregivers/parents
Research (all studies are IRB approved)
- Little Duck Learning Project (Portland Preschool)
- Family's genetic journey: share your story of receiving medical genetics care and how it could be trauma informed (Parent/caregiver of a child under 18 with a genetic condition.) Interested in participating?
- What adult providers should know about caring for people with childhood onset complex conditions (Caregivers and adults living with complex childhood onset conditions)
Advisory or Advocacy
- Beneficiary Advisory Council (BAC) If you are a current or past user of Medicaid or the caregiver or family member of someone who uses Medicaid (OHP), you can use your lived experience and ideas to advise the Medicaid Advisory Committee and Oregon Health Authority (OHA). Apply here by August 14
- From Me to We Family Voices Family leadership academy. Free year-long leadership training. Apply here by August 24th
- State Advisory Council for Special Education (ODE: parent representative various regions) Eng Spa
- State Interagency Coordinating Council (Governor: Early intervention parent representative statewide) Eng Spa
Statewide youth leadership opportunities
University Center for Excellence in Developmental Disabilities/LEND
- Lead the Way Youth Leadership Development Academy for youth 14-26 Free on-line training offered by Family Voices Apply by August 24th
- Transition to Adulthood Council (TAC) Paid Community Advisory board for young adults ages 18-26 with disabilities
- Photovoice Research Project for young adults to take photos and then talk about their experiences moving from pediatric to adult care.
Oregon Department of Education
View the complete list of ODE youth leadership opportunities and access applications here. Youth may apply for multiple opportunities; there is no application limit.