What does Participation Look Like?
Longitudinal studies involve observing the same variables repeatedly over long periods of time. Taking place over the course of three years, the CART Initiative is following four cohorts, or groups of research participants, who share a defining characteristic (like age or geographical location). Observing the same subjects long-term allows for patterns, changes,and trends to be measured more accurately.
What does involvement look like? A research study, like CART, includes these steps:
During this phase, a person decides whether or not they'd like to participate in the study. If they're interested, they can contact a study coordinator to set-up a screening. Participation is voluntary.
Potential participants are screened to see if they meet the eligibility requirements
Once screened, potential participants will sign a consent form in order to officially enroll in the study.
Once enrolled, participants are observed for the duration of the study and their data is collected. Participants can disenroll at any time.
How do Researchers Use the Data?
Data collected throughout the CART study is analyzed by researchers to search for any patterns or trends related to day-to-day life activities. These include how often someone sleeps, how fast someone walks or how often they move around their home. Innovative algorithms translate data into meaningful information.
For the sake of privacy, data is de-identified. Participants are also not able to access the data that is collected about them.