Families' Tips for Challenging Situations

Parents tell us...

girl behind bars

"There were parts of our lives that were hard to talk about, I knew that I needed help.  Thank God I wasn't the only one who had to go through this." " I thought  I would be cleaning up for the rest of my life!  I am so glad that I got some help." "At first, I was really embarrassed, but our doctor was really understanding and had some good suggestions." "Sometimes you can even laugh at some of the stuff we deal with; other parents 'get it'!"

Digestion issues   I Diapers   I First responders   I Post-partum depression   I Extreme/dangerous behaviors   

I Bedbugs/lice   I Difficult Diagnosis  Jail and the Criminal Justice System

Contact your child's doctor and/or case managers and request a behavioral evaluation.  

Constipation, impaction, diarrhea and vomiting and other digestion issues

Contact your child's doctor. 

Digestion issues are included in the Autism Speaks Toolkits 

Diapers for older children and teens

Contact the Intensive Care Manager or Exceptional Needs Care Coordinator at your health plan to request financial assistance for diapers and supplies.

Preparing your youth or child for contact with first responders.

This can be especially important for children who have life threatening medical conditions, wander, or whose behaviors become extreme when they are under stress.

Self disclosing cards and how to use them. The example is for Asperger's/Autism but it can be modified.

Medical ID bracelets can be life savers.  Ask your primary care physician for a prescription. Many insurance companies pay for ID bracelets with a prescription, or you can appeal a denial. The Oregon K-Plan, can include a medical ID if your insurance company denies you.  Some condition specific organizations offer them for free, or at a reduced cost. 

Autism Speaks has some social stories about safety including police officers.  You can order professional printed copies or use them as templates for creating your own social stories. There are a lot of resources on the web for creating social stories.  This webinar about "Teaching Safety Skills to Individuals with Autism" can be modified for people with a variety of intellectual or developmental disabilities.