Cancer registries are databases of cancer information that are used for research. They offer people the chance to participate in research that helps find new cancer treatments and cures. Registries also give researchers valuable data on how cancer works.
Personalized cancer medicine registry (PCMR)
The PCMR is a registry of patients who have consented to tumor genotyping, and to be contacted for personal health updates and opportunities to participate in research.
The registry includes information that researchers can search easily to find patients who might qualify for new studies. This means patients can participate in research studies based on the molecular makeup of their tumors. A close match between treatments and tumors can make it more likely that cancer will respond to treatment.
OHSU cancer registry
Established in the early 1960s, the OHSU Cancer Registry keeps detailed information on all patients diagnosed with cancer, and brain and central nervous system tumors, benign or malignant. The data are used in many ways, including helping researchers learn how well different treatments work, and sending data to state and national databases.