UCEDD Newsletter - Spring 2019

April 26, 2019

In Memory of Jerry Pattee

Jerry in a red shirt that says attitudes are the real disability

It is with deep sadness that we share of the passing of our dear friend and long-time UCEDD Community Partners Council member Jerry Pattee on Wednesday, March 20th. Jerry was a leader in the UCEDD and our community and has deep roots in nurturing self-advocate leaders in our state.  Jerry was a founding member of the UCEDD advisory board, the Community Partners Council, and has held various leadership positions over the last 12 years. A longtime resident of Portland, Jerry has also served on the Board of Directors for United Cerebral Palsy Association of Oregon & SW Washington, Self-Advocates As Leaders, and as an advisory committee member for the Oregon Office on Disability and Health. We will miss his wisdom, kindness, and leadership. A celebration of life will be held on April 27. Service information can be found here.

Taking Charge of My Health Care Toolkit is Live

Illustrations show a woman meeting with a provider at a table and a man in a hospital bed listening to his doctor

The Oregon Self-Advocacy Coalition, Oregon Office on Disability and Health and the University Center of Excellence in Developmental Disabilities are excited to release the Taking Charge of My Health Care Toolkit, a new set of resources for people with intellectual and developmental disabilities and those who support them. The toolkit provides information, resources and skills-building strategies for individuals interested in learning how to best advocate for their health and health care. The toolkit offers nine modules of different topics that can be used for individual learning or in a workshop or group format. Each of the nine modules can also be used individually as a stand-alone lesson, or any combination of the modules can be used for a workshop or class format. Check it out the now.

Celebrating DD Awareness in March

Taking over the first floor wall space in the Child Development and Rehabilitation Center, a building built in 1971 with some of the first UCEDD funding disbursed, the OHSU UCEDD hosted a Developmental Disabilities Awareness Month event showcasing its clinical, research and programmatic work. The event was featured by our national network news as an AUCD 360 story. Read more here.

Getting Out of the Office

Group picture of UCEDD staff with Speaker Kotek in her office

On March 5, 2019 UCEDD staff participated in the DD Coalition GO! Project Advocacy Day. We supported our network partners and visited six legislative offices including meeting with Speaker Kotek. Topics we educated our legislators on included the UCEDD's work, the OHSU LEND Program, the Oregon DD system, and more.

Transition Fair Success

On January 29, community members came together to have conversations, share best practices, and learn from one another about how to best support young people with disabilities through one of life's most crucial stages. The UCEDD at OHSU Institute on Development and Disability hosted a community town hall to highlight transition resources available for families, professionals, and providers. This event was in partnership with Autism Speaks and Autism Society of Oregon, and included sponsorship from the Tiffany Foundation. This event was also featured by our national network news as an AUCD 360 story. A recording of the event can be viewed online here.

Lindsay Sauvé Accepted to AUCD Leadership Academy

Lindsay Sauvé, UCEDD Program and Evaluation Manager, was accepted to our national organization’s leadership training program. The Association of University Centers on Disability (AUCD) Leadership Academy is a week-long program designed to enhance the disability network and build coalitions to improve service and support systems by investing in current and emerging leaders in the field. 

It’s That NCI Time of Year

The UCEDD is collecting data for another cycle of the National Core Indicators Project . In partnership with Oregon Developmental Disability Services (ODDS) and the National Core Indicator (NCI) Project, the UCEDD is conducting in person interviews across the state. Surveyors conduct interviews with adult consumers of Developmental Disability Services and gather information about people’s satisfaction with services and overall health and quality of life. The NCI project is a way to understand the needs of the disability population and to elevate direct input from advocates and families in the service system to state and national decision makers. 

What are some ways NCI data drive service improvement? 

  • Identify gaps in service
  • Highlight successes 
  • Compare to other states
  • Track system performance over time
  • Direct input from advocates and families 

Read the 2017/2018 Final Report here

Upcoming Events

May 6, 2019

Community Engagement Grant Program - Applications Open. Find more information and application instructions here.

May 30, 2019

The UCEDD is partnering with Among Friends and Oregon Training and Consultation to offer a Foundations in Sexual Health training geared toward people who work with someone with I/DD to provide tools to understand and support sexual health and development. Find more information here, or contact training@otac.org or 503-364-9943 ext. 241. Dates: May 30-31

June 25, 2019

Empowered Youth Leaders 2019 Program will kick off with a camping and kayaking trip at Champoeg State Park June 25-27. This program will include 3 more service learning and outdoor trips throughout the year. For questions or more information, contact ucedd@ohsu.edu or 503-494-1519.