OHSU

Resources

Rare disorders agency links:

National Organization for Rare Disorders (NORD)

NIH Office of Rare Diseases

Genetic Alliance

 

Funding opportunities:

Collaboration, Education and Test Translation (CETT) Program: provides funding to facilitate the translation of new tests for rare genetic disorders. 

NIH Bench-to-Bedside Awards: to date more than 400 principal and associate investigators have collaborated on 135 funded projects with approximately $24 million distributed in total bench-to-bedside funding.

Orphan Products Grant Program (FDA): encourages clinical development of products for use in rare diseases or conditions.


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The NIH/ORD Undiagnosed Diseases Program strives to provide answers to patients with mysterious conditions that have long eluded diagosis and advance medical knowledge about rare and common diseases.


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Giving hope wings: the national Air Charity Network matches people in need with free flights and other travel resources so they can access specialized health care faciliities.


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The National Disease Research Interchange (NDRI) provides many rare disease resources, including biospecimens