Rare disorders agency links:

National Organization for Rare Disorders (NORD)

NIH Office of Rare Diseases

Genetic Alliance


Funding opportunities:

Collaboration, Education and Test Translation (CETT) Program: provides funding to facilitate the translation of new tests for rare genetic disorders. 

NIH Bench-to-Bedside Awards: to date more than 400 principal and associate investigators have collaborated on 135 funded projects with approximately $24 million distributed in total bench-to-bedside funding.

Orphan Products Grant Program (FDA): encourages clinical development of products for use in rare diseases or conditions.