Amyotrophic Lateral Sclerosis
Our research focuses on the relationship between AAC technology use by persons with amyotrophic lateral sclerosis (ALS or Lou Gehrig's Disease) and their caregiver's perception of role strain. We also examine the relationship between the caregiver's attitude and skill base with AAC technology and perceived level of role strain.
For more information on ALS, please contact Betts Peters.
OUR RESEARCH ON AMYOTROPHIC LATERAL SCLEROSIS
Here you will find short descriptions of the grants we have worked on regarding Amyotrophic Lateral Sclerosis.
Writing papers about our work is an important part of the research process. The papers you will find here have been included in conference proceedings and peer-reviewed journals.
- Fried-Oken, M., Mooney, A., &Peters, B. (2015). Supporting communication for patients with neurodegenerative disease. Neurorehabilitation. 37(1), 69-87.
- Ball, L.J., Fager, S., &Fried-Oken, M. (2012). Augmentative and alternative communication for people with progressive neurological disease. Physical Medicine &Rehabilitation Clinics of North America, 23(3), 689-699. PMC #22938882.
- Gibbons, C., &Beneteau, E. (2010). Functional performance using eye control and single switch scanning by people with ALS. SIG 12 Perspectives on Augmentative and Alternative Communication, 19(3), 64-69.
- Fried-Oken, M., Fox, L., Rau, M.T., Tullman, J., Lou, J.S. (2006). Purposes of AAC device use for persons with ALS as reported by caregivers. Augmentative and Alternative Communication, 22(3), 209-221.
Every year we give presentations about the work we are doing. We have a diverse team who present on different aspects of the study.
- ALS, AAC Technology, and Caregivers: Attitudes, Skills, and Role Strain, ASHA, 2004
- Caregiving and AAC Systems in ALS: Quantitative and Qualitative Analyses, ISAAC, Natal, Brazil, October, 2004
- ALS Severity and Caregivers' Reports of Communication with AAC Technology, 2004
Here you will find articles and other writings from community members with LIS who are participating in our research. You will also find newsletters featuring our research.