News

Clinical

Clinic Optimization

Both Portland and Eugene scheduling teams will be undergoing training and a rollout of more efficient standard workflows. Big thank you to Adrianne Munson and Todd Flannery on the Portland team and Jennifer Wagner and Ruth Warwick on the Eugene team. Our Epic consultant, Salena Clayton has been busy shadowing and training at the elbow of the scheduling team and will be making upgrades and revisions to our Epic functions as early as next week. Both Portland and Eugene clinical space are being internally audited for patient safety, infection control, and Joint Commission readiness rounds expectations. Changes are already underway and being led by Adrianne Munson and Jennifer Wagner. 

CDRC is undergoing a Clinical Program Optimization 

Information on all aspects of the patients' experience - from the referral to the final follow-up - will be gathered. All areas of the clinical delivery process will be evaluated for efficiency and delivery of the highest quality individual and family centered care. Ongoing communication will be provided to all affected staff about the process and findings of this project. We encourage you to ask questions, to forward this news to others, and to provide suggestions as we move through this process! Thanks to each of you for your assistance as we move forward.


Project Team Members

IDD, the School of Medicine, and Doernbecher Children's Hospital are investing time and resources in a project team tasked with evaluating and revising clinical operative processes and structures to improve access and efficiency. The following individuals are members of the team: 

  • Carolyn Bruebaker Moore, IDD Senior Project Manager 
  • Reka Laakso, IDD Administrator 
  • Michelle McKee, IDD Scheduling Staff Supervisor 
  • Zach Harris, Doernbecher Ambulatory Manager 
  • Caleb Kowarsky, Doernbecher Ambulatory Project Manager 
  • Josh Engle, School of Medicine Performance Improvement Consultant 
  • Malita Scott, ECG Consultant 
  • Jason Ford, ECG Consultant  


First Assignment

The ECG consultants that visited earlier this year provided a significant amount of data as a platform in which to launch our optimization project. It was also apparent that some of our foundation processes and workflows needed further examination in order to have the right amount of information to create action plans. 

The project team and I are completing deep dive assessments to examine all the patient touch points through the CDRC process as well as the behind the scenes work such as referral, scheduling, insurance authorization, clinic reception, medical assistant and provider work flows. 

Seven clinical programs have been identified to go first based on the number of providers involved, number of clinics that occur in a month, and the volume of patients seen. Remaining Programs and Disciplines will be assessed in future phases of this project. 

The following project team members will be reviewing the clinical programs below between now and December 9, 2016: 

Child Development Program (Reka) 

Autism Program(Malita/Jason) 

Feeding and Swallowing Program (Michelle) 

Spina Bifida Program (Michelle) 

Neurodevelopmental Program (Malita/Jason) 

Developmental Evaluation Program (Caleb) 

Down Syndrome Program (Zach) 

Cleft Palate and Craniofacial Program (Carolyn) 

CDRC Eugene (Carolyn)  

We will be conducting this work by interviewing those involved in the programs and through observations. We appreciate you sharing your time and expertise with us in this important endeavor and will keep you informed of the results we discover. 


IDD Harvest Hustle 5k/1k had its biggest turn out to date!

The Harvest Hustle is the annual fundraiser for IDD, with all proceeds going to programs that directly enhance the lives of children and families who experience disability. There were over 1,000 people in attendance and the beneficiaries: Camp Odakoda, Camp More, Go Baby Go, and the CDRC Hearing Aid Bank were able to raise funds that will directly impact those whey work with. 

Thank you to all of you who came out to support this special event. Your contributions are what made the difference. 


Camp More completed its first  Five-day overnight camp!

Camp More is a recreational overnight summer camp for teens who stutter. The camp stemmed from the clinical treatment work that Kristin Mangan, M.A., CCC-SLP performs weekly on an outpatient basis at the CDRC. Camp More's mission is to empower young people who stutter while at camp and beyond, to do more: find their voice and use it more, build more confidence and self-acceptance in themselves, and to establish more connections and friendships with peers.

 

New Child Development clinic to open in Salem

CDRC is in the process of developing a Child Development clinic in collaboration with their partners in the Salem Community and at the Salem Rehab Hospital. It is expected to open in September of 2016. The goal will be to serve children and families in the Salem area.

 

CDRC clinic has seen record number of patients/families

In the past 12 months, CDRC provided clinical care to almost 9,000 children, and delivered more than 60,000 services. In order to improve access and be mindful of space restrictions,  CDRC began telehealth services, home-based services, and early evening clinic appointments.

 

CDRC is participating in two new summer programs

  • Camp More: This will be the first annual 5-day overnight camp for teens who stutter, at Rockaway Beach, OR. Developed by one of CDRC's Speech Language Pathologists, Camp More will concentrate on empowering the campers to improve communication skills and build self-confidence.
  • Cleft lip & palate summer program: Started in 2014, two of CDRC's Speech Language Pathologists work in collaboration with faculty from the School of Communication Sciences & Disorders at Pacific University to offer a day camp for infants and youth with cleft lip and palate. The camp serves as a site for families to develop bonds, for children to work on emerging communication skills, and for graduate students to engage in supervised clinical practicum.

 

Construction update (CDRC 7th floor)

  • CDRC clinics that take place on the 7th floor of Doernbecher Children's Hospital (DCH) have existed in a state of construction for several months, as the new DCH imaging wing nears completion. We are very thankful to our families and our providers for their patience during this time.
  • In April, CDRC completed a feasibility study in collaboration with OHSU Campus Planning & Development and SRG Partnership,Inc, an architectural firm. The study examined the potential of remodeling the CDRC building to appropriately accommodate our clinical services. We anxiously await the results, and are hopeful that this marks the beginning of an exciting adventure.
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Education and Training

Diversity and Inclusion:

The IDD Diversity Task Force has been working on the following projects related to linguistic competency and increasing their capacity as an Institute to provide services for families in their preferred language.

  • Securing an easy and more efficient way for providers to submit requests to translate clinical reports prior to sending out to families. 
  • Identifying funding opportunities to support written translation of clinic handouts for families.
Upcoming events related to diversity and inclusion events: 
  • Psychiatry Grand Rounds: "The Psychological Impact of Racism Part II" by Alisha Moreland, MD Tuesday, 6/6, 12 –1pm
  • Dr. David J. Brown - The Diversity Pipeline for Faculty and Residents: Is it leaking or clogged? Friday, 6/9, 11am –12pm 
  • Race Talks: A conversation series that aims to fill the spaces between race with compassion and education. Held at McMenamin's Kennedy School the 2nd Tuesday of every month. This is a free event. Check out their site and calendar http://racetalkspdx.com/ 
  • Dr. David Acosta gave a lecture at OHSU on 5/12/17 entitled "Bridge Over Troubled Waters: Crossing the Cultural Divide to Talk about Race" to access archived video please visit: https://echo360ess.ohsu.edu:8443/ess/echo/presentation/1d82abd1-bf13-447f-9cdc-cdd58a770001 
  • Find more events related to diversity and inclusion by subscribing to the Center for Diversity and Inclusion Event Calendar 

LEND:

Contributes to the Tillamook School Readiness Program:

The Oregon LEND Program continued its 30+ year partnership with Tillamook to plan and execute the Tillamook Screening Program on April 19-21, 2017. Over the course of three days, the program provided free developmental, social-emotional, physical, and medical screening to approximately 140 pre-school children in Tillamook County. Screening resulted in 256 referrals for further evaluation in specific developmental domains, ensuring that those at risk for school challenges are identified and provided services as early as possible. Seven LEND Training Faculty and 12 long-term LEND Trainees staffed screening stations. This program serves as an excellent model for bringing together community and academic health resources to meet the needs of youth and families in Oregon.  

Continues Visiting High School Student Program: 
The visiting student program is a partnership between the Oregon LEND program and local high schools, targeting schools with high minority student enrollment. The goal of the program is to increase awareness of and interest in health careers targeting youth with special health needs and their families. To accomplish this, the LEND Clinic hosts visiting students to provide real-world exposure to model interdisciplinary evaluation services. During the 2016-2017 academic year, 27 high school students have visited or are scheduled to visit. Students (this year and previously) overwhelmingly report this program enhances their interest in health careers more generally, and working with youth with special needs specifically. The Oregon LEND Program is proud of this continued pipeline program specifically designed to increase interest and engagement of historically underrepresented individuals in health professions.  
Expands Training Opportunities for Future Audiologists:
In 2016, the Oregon LEND Program was awarded a 5-year Audiology Supplement to expand training opportunities for future pediatric audiologists. Under the direction of Kristin Knight (Audiology Training Coordinator), current long-term LEND Audiology Trainees and faculty have developed a specific curriculum for audiology externs to enhance their preparation to offer family-centered care to children and youth with special health needs. Initial implementation of this new curriculum is set to begin Summer 2017. The curriculum will be evaluated and revised over the course of the 5 year award.

UCEDD Empowered Youth Leadership Program

The UCEDD is piloting a new leadership training program for youth with disabilities. The Empowered Youth Leadership Program invites young people with disabilities for a two-day, overnight training in Salem. The youth will learn leadership skills, self-advocacy, and how to become involved as change agents in their communities. The second day of the training involves a tour of the State Capitol and goal setting activity. The program is free and food, accommodations will be provided. For more information, email Lindsay Sauve at sauv@ohsu.edu 


UCEDD Summer Internship Program (SIP) application open for 2017! 

The UCEDD 8-week SIP is now accepting applications from high school and early college students who are interested in health care careers in the disability field. Interested applicant can apply here. The internship is paid and held from June 4, 2017 - August 12, 2017. 
Applicants must apply by February 1, 2017. More information can be found at www.ohsu.edu/sip. 

 

Interested in supervising an intern this summer? 

The UCEDD 8-week SIP is now recruiting supervisors. If you are interested in having an intern work on specific project or activity that would expose them to the disability field please apply today. The project or activity do not need to be within the UCEDD group. However, UCEDD will be responsible for paying all interns. The internship will be held from June 4, 2017 - August 12, 2017. Please apply here before February 1, 2017. More information can be found at www.ohsu.edu/sip. 


UCEDD has developed a disability focused curriculum  

The curriculum is for the Developing Human-Development Disability education block and was delivered to 2nd year students at the OHSU School of Medicine on November 22nd. 


Association of University Centers on Disabilities (AUCD)  

The UCEDD, LEND, and IDD are sending a large contingent to the national meeting. Five proposals have been accepted and important work will be conducted in special interest groups. 


Visiting Scholars Series hosted Heidi Feldman, MD, PhD  

Dr. Feldman is the Ballinger-Swindells Endowed Professor of Developmental and Behavioral Pediatrics at Stanford University. She discussed her book, "Redesigning health Care for Children with Disabilities: Strengthening Inclusion, Contribution and Health," and argued for new priorities in health care for children with disabilities.


UCEDD Summer Internship Program was a success!

The 8-week internship accepted nine interns this year. There was representation from Oregon, Wisconsin, and Washington. The interns participated in a number of projects across IDD's programs and attended field trips that enhanced their knowledge of the field of disability. Evaluation was a main goal this year in order to track our efforts and progress to ensure the best quality internship available to those who apply. Some mentionable outcomes include co-authoring a research paper, and continuing their connections to OHSU by volunteering at Camp Odakoda and in the CDRC clinic. It was a great success! 

 

UCEDD Healthy Lifestyles Academy Summer Academy

The UCEDD held its Healthy Lifestyles "Your Health, Your Choice" Summer Academy on June 27 –30 at the Center for Health and Healing. Twelve participants, ages 17-21, spend four days learning about the components of a healthy lifestyle through interactive, peer-supported activities. Angela Weaver, OODH Project Coordinator, and Kiersi Coleman, UCEDD summer intern, facilitated the workshop, which included demonstrations in NIA dance, adaptive yoga, and a cooking class in the CHH kitchen.

 

LEND grant renewed for additional five years!

The Leadership Education in Neurodevelopmental and Related Disabilities (LEND) training program seeks to improve the health of infants, children, and adolescents with disabilities.  The Oregon LEND Project is one of 40+ programs across the country preparing the next generation of health professionals to be leaders in family-centered, interdisciplinary care through clinical training, didactic instruction, and various experiential leadership activities.

 

LEND welcomes Elizabeth Brownhill

Elizabeth Brownhill from Elizabeth Brownhill Law has joined the Training Coordinators Council to offer her expertise related to people with disabilities and their families. She is an expert in navigating complex legal systems such as estate planning, special needs trusts, guardianships and conservatorships, special education and advocating for change. She is also a member of the UCEDD Community Partners Council and IDD Advisory Board.

 

UCEDD awarded eight Community Engagement Grants

  1. Collaborative efforts between the CPC (Community Partners Council) and the UCEDD resulted in the funding of the following eight community-based projects:
    Central Oregon Disability Support Network in Bend: $1,000.00 for Yoga Calm with SuperFlex Classes
  2. Independent Living Resources in Portland: $1,000.00 for Peer-Guided "Mindfulness Based Stress Reduction" Staff Training
  3. L'Archein Portland: $800.00 for Extended Community Retreat
  4. Northwest Down Syndrome Association/All Born (In) in Portland: $1,000.00 for Reciprocal Learning Community Workshop (RLC) - Building Blocks
  5. United Cerebral Palsy in Portland: $900.00 for Sibshops
  6. Creative Supports and Families for Community in Medford: $1,000.00 for One Page Profiles for Siblings
  7. IDD Transition Fair in Portland on Saturday, June 4th: $1,000.00 for IDD Transition Fair: Passport to a Healthy Future
  8. Autism Society of Oregon in Portland: $985.00 for Native American Sibling Support Group

 

UCEDD co-sponsored a diversity training on cultural agility

Each organization in the Partners in Oregon on Diversity & Disability group (PODD) which includes Disability Rights Oregon, Oregon DD Council, U of O and OHSU UCEDD's invited staff and collaborators in order to equip them to amplify efforts to increase cultural responsiveness and be more welcoming organizations to diverse populations.

 

LEND Program is building local/international collaborations

This year, LEND had completed 17 collaborative training/continuing education events with over 400 participants. The program is on track to meet or exceed this number of trainees directly involved in clinical, didactic, and experiential training sponsored by the LEND Program for current training year. This year, LEND faculty have completed community training/continuing education events with 402 participants through activities targeting audiences at the local through international levels. Faculty continue strong collaborations with OCCSYCN and other Maternal and Child Health programs.

 

Occupational Therapy Training Program secured accreditation

Under the leadership of Kim Solondz, O.T., the division of Occupational Therapy successfully secured accreditation candidacy site as a residency program. Once they secure a resident and successfully complete a site visit, they are on track to become the fifth training program independently accredited by its representative discipline's accrediting body (joining the Psychology Doctoral Internship, Physical Therapy Residency, Neurodevelopmental Disabilities Fellowship, and Behavioral and Developmental Pediatrics Fellowship Programs).

 

Psychology Department receives grant for training efforts

The Psychology Department has continued its expanded training efforts as Oregon's first and only recipient of the Health Resources and Services Administration (HRSA) Graduate Education in Psychology training grant. Through this grant, the doctoral internship program expanded the number of trainees from 3 to 5. Further, training activities changes to include a greater focus on integrated behavioral health care in primary and specialty pediatric settings. The internship program has applied for continued funding from this grant program. Psychology continues to experience significant interest with its internship training program that received 165 applications for its five training slots for 2016-2017.

 

Public Health


UCEDD Community Engagement Grant Program

In early June, the UCEDD will be releasing a funding opportunity announcement (FOA) for our Community Engagement Grant (CEG) program. The CEG program supports Oregon non-profit organizations to provide programming serving people with disabilities and their families. Organizations with new or on-going projects promoting the health of people with disabilities, inclusion of people with disabilities in faith and spiritual practices, and the well being of siblings of people with disabilities are encouraged to apply for funding up to $1000. The CEG program will be in its fourth cycle and is collaborative program of the UCEDD and our Community Partner's Council. Please email cpcminigrant@ohsu.edu to be added to email list and receive updates. 

OCCYSHN is providing technical assistance across the state

OCCYSHN is providing technical assistance to 35 public health agencies across the state to implement "Shared Plans of Care" (fondly referred to as SPoC) for select CYSHCN. The SPoC process convenes interdisciplinary teams that support families in culturally responsive ways to achieve positive health outcomes. SPoC teams include family members (and transition-age youth when possible), working alongside public health staff, medical providers, educational representatives, mental/behavioral health specialists, payers, and others. 


OCCYSHN's Family Involvement Program expands across the state

The OCCYSHN Family Involvement Network (FIN) presently employs 16 parent partners across the state, all of whom have extensive experience with Oregon's systems of care for children with special health needs.  FIN supports family-professional partnerships in medical practices. FIN also hires, trains, and supervises parent partners and local family members. Parent partners support families of children and youth with special health care needs, and inform the efforts of local child health teams.

 

OODH grant renewed for additional five years!

OODH received a new round of funding from the Centers for Disease Control and Prevention (CDC) for the next five years. The goals of the OODH Core are to promote and maximize health, prevent chronic diseases such as diabetes, decrease tobacco use and exposure, and increase physical activity opportunities among Oregonians with intellectual and developmental disabilities (I/DD) and mobility limitations. Congratulations to Elena Andresen, PI and Angela Weaver, Program Coordinator for this successful application.

The goals of the OODH Core are to promote and maximize health, prevent chronic diseases such as diabetes, decrease tobacco use and exposure, and increase physical activity opportunities among Oregonians with intellectual and developmental disabilities (I/DD) and mobility limitations. The goal of the OODH Enhanced Mentoring component is to provide support and mentoring for one Capacity Building state: Oregon is pleased to work with Utah, and assist them with creating and maintaining an Office on Disability and Health within their state. For the OODH Enhanced Medicaid Analysis project, OODH is excited to be working with our colleagues at OHSU's Center for Health Systems Effectiveness (CHSE). We will work the CDC and CHSE to analyze Oregon's Medicaid data to identify specific health disparities experienced by Oregonians with I/DD and ultimately implement targeted health promotion interventions that will improve Oregonians with I/DD's health, wellness and quality of life.

 

OCCYSHN to review and refine next year's State Action Plan

The State Action Plan will include its required national priority areas of increasing the percentage of CYSHCN who receive care through a medical home, including coordinated care;and, increasing the percent of youth with special health care needs who successfully transition to adult healthcare. Dr. Rogers and Oregon's Title V Director, Cate Wilcox, joined the workgroup for much of the day.  The final updated version of the State Action a Plan, and the annual Title V  Block Grant Report and Application are due by June 20.

 

OODH submitted application for the next five-year cycle

The grant is titled, Improving the Health of People with Mobility Limitations and Intellectual Disabilities through Stated-based Health Programs.  OODH staff is pleased about the target populations identified in the grant and how the specific focus provides them with new and exciting opportunities to both strengthen their current activities, as well as, expand, broaden and develop new partnerships and activities. They are applying for "Core" funds as well as for the "Enhanced Implementation" supplemental option of the award. The "Enhanced" funds will allow them to mentor a state who is awarded funds to create a new Disability and Health Program, as well as be provided with the opportunity to work with Medicaid claims data to identify patterns of health and health care utilization for people with I/DD.

 

OODH received a small project pilot grant award

In January, OODH was awarded a small project pilot grant from the National Association of Chronic Disease Directors (NACDD) to provide Healthy Lifestyle trainings in rural counties across the state. The 18-month award provides funds for OODH, Umatilla and Benton Counties' Public Health departments, and two disability agencies in each county, to accelerate disability inclusion policy, systems, and environmental (PSE) improvements. These improvements will increase access and opportunities for healthier eating and physical activity and prevent tobacco use and exposure for people living with disabilities across community settings. It is an exciting project for OODH as they are learning critical information by participating as a pilot project and working with a number of national programs/partners.

 

OODH recently presented at a national event in Dallas, TX

The National Association of County and City Health Officials (NACCHO) 2016 summit pulled together the top names in public health and emergency management. Justin Ross, Emergency Preparedness Program Coordinator for OODH,  presentation was titled, Data vs. Gut Instinct, Never Should the Two Collide: What We Think We Know and What We Don't—Emergency Management and Surveillance. Additionally, Justin presented data along with OODH's 2014 Oregon Disability and Emergency Management survey, which has been critical in future emergency planning across Oregon.

 

Research

IDD 3rd Quarter Active Sponsored Projects by Type:

Cost Sharing: $1,423,125 
Federal: $9,540,893 
Foundation: $518,364 
Industry: $702,054
Internal Funding: $766,859 
Other: $7,840 
State of Oregon: $65,000 

Grand Total: $13,024,135 

IPOC #1 in School of Medicine and #2 at OHSU for research funding

FY16 Year End Awards: 
1. Primate Center: $52,239,283 
2. IPOC: $31,904,684 
3. Knight Cancer Institute: $30,364,252 
4. Neurology: $22,213, 384 
5. SWOG: $18, 669,073 

New Communication Matrix Assessment Instrument available!

Design to Learn is a small group of researchers, speech-language pathologists and educational experts who are passionate about improving outcomes for children with complex communication needs around the world. After Dr. Charity Rowland saw a need for a communication assessment that addressed the earliest stages of communication and included meaningful behaviors besides speech, she created the Communication Matrix. The Communication Matrix assessment is a free and easy to use assessment instrument designed for individuals of all ages who use any form of communication and who may have any type or degree of disability. The Matrix is available in many languages, with versions for professionals and parents. 

The Matrix has been shown to improve Individualized Education Program goals and the attainment of these goals by the students. Recently, the Design to Learn team created an online Community of Practice for professionals and family members of individuals with complex communication needs. The Community allows users to ask questions, share answers, and learn more about specific disorders based on data from the online Communication Matrix. The team presented their work in August, 2016 at the International Society for Augmentative and Alternative Communication Conference in Toronto.

 

Research teams at IDD have been busy!

In fiscal year 2016, 36 new grant applications were submitted. As of August 2016, there are 93 active projects. They have many funding agencies including: (NIH) National Institutes of Health; MCHB (Maternal and Child Health Bureau); NIDILRR (National Institute on Disability, Independent Living and Rehabilitation Research); NSF (National Science Foundation); EPA (Environmental Protection Agency). They also collaborate and receive funding from industry, foundations, non-profit organizations, and other research institutions.

 

CSLU hosted a Summer Talk Series

The Talk Series featured selected topics from their Fall class offerings such as "Using Databases with Python", "Bootsrapping with R", "Human Perception and Data Visualization", and "Expectation-Maximization: A Gentle Introduction."

 

IDD participated at OHSU Research Week

Visit the Research Week website to learn details of the posters and presentations presented by  IDD Faculty.

 

IDD Research Group has submitted 11 funding proposals this year

The IDD Research Group have proposed research studies to federal agencies such as NIH as well as foundations or nonprofit organizations, such as Friends of Doernbecher or Oregon Partnership for Alzheimer's Research. Their research expertise is very diverse, and spans technology for automated diagnosis to therapeutic management for cystic fibrosis, and everything in between.

 

Interested in joining the IDD Research Group planning meetings?

The IDD Research Group is planning to start research faculty meetings as a way to learn together and improve their science and proposal skills. If you are interested in participating in the meetings, please e-mail Melanie Fried-Oken.

 

New room-scale Virtual Reality (VR) Laboratory

The VR laboratory is part of the new Computer Science and Electrical Engineering Program that will allow people to walk around in a virtual setting, and manipulate virtual objects with 3D-controllers. The VR Laboratory, features the most recent advances in hardware that are becoming available this year. The technology is widely believed to significantly influence a number of health areas.

 

Publications

  1. Automatic scoring of a Sentence Repetition Task from Voice Recordings
    Authors: Meysam Asgari, Alison Sliter [CSLU MS student], Jan van Santen
    Conference:19th International Conference on Text, Speech and Dialogue conference
  2. Using Clinician Annotations to Improve Automatic Speech Recognition of Stuttered Speech 
    Peter A. Heeman, Rebecca Lunsford [CSLU Postdoc], Andy McMillin [PSU Faculty], and J. Scott Yaruss [U. Pittsburg Faculty] 
    Conference: InterSpeech 2016
  3. Measuring Turn-Taking Offsets in Human-Human Dialogues 
    Rebecca Lunsford [CSLU Postdoc], Peter A Heeman, Emma Rennie [Reed student, CSLU intern]
    Conference: InterSpeech 2016
  4. Using Past Speaker Behavior to Better Predict Turn Transitions
    Tomer Meshorer [CSLU MS student], Peter A Heeman
    Conference: InterSpeech 2016
  5. The Discourse Marker "so" in Turn-taking and Turn-releasing Behavior
    Emma Rennie [Reed student, CSLU intern], Rebecca Lunsford [CSLU Postdoc], Peter A. Heeman
    Conference: InterSpeech 2016
  6. A Voice Conversion Mapping Function based on a Stacked Joint-Autoencoder
    Seyed Hamidreza Mohammadi [CSLU PhD student], Alexander Kain
    Conference: InterSpeech 2016
  7. Title: Automatic, model-based detection of pause-less phrase boundaries from fundamental frequency and duration features
    Mahsa Sadat Elyasi Langarani [CSLU PhD student], and Jan van Santen
    Conference: Ninth Speech Synthesis Workshop

 

Faculty Highlights


Rhonda Eppelsheimer, MSW, Co-Director of the UCEDD

This past year, Rhonda Eppelsheimer, MSW, Co-Director of the University Center for Excellence in Developmental Disabilities and Assistant Professor in Pediatrics, was awarded a Licensed Clinical Social Worker (LCSW) credential from the Oregon Board of Licensed Social workers. Eppelsheimer completed all required clinical training in IDD and the CDRC clinics under supervision of, Maureen DeLongis, MSW/LCSW. Training requirements included the equivalent of two years of full-time experience in the social work field: 3500 total work hours, 2000 direct client hours and 100 supervised hours, and passing both the national Association of Social Work Boards and the Oregon Jurisprudence Exam. She is credentialed to practice at OHSU providing clinical social work which aligns with her research interest of effective mental health treatment for youth and adults with intellectual and developmental disabilities. 

Sage N. Saxton, PsyD

Dr. Sage N. Saxton is the new Oregon LEND Training Director. She has contributed to the Oregon LEND Program as a clinical educator since shortly after joining the faculty at IDD. As of January 1, 2017, she expanded her role to become the LEND Training Director. In this role, she works with the Project Director and Training Coordinators to devise, execute, and evaluate all aspects of the LEND training curriculum. The Oregon LEND Program is already greatly benefiting from her expertise, passion, and expanded contributions.

Janet Brockman, M.S.,CCC

Janet Brockman is an Assistant Professor in OHSU's IDD and PEDs CDRC Craniofacial Speech-Language Pathology. She has received "Honors of the Association" award from the Oregon Speech Language and Hearing Association at the annual conference this year. The Honors of the Association is designated as a "lifetime achievement" award. The intent of this award is to recognize an individual for outstanding contributions to the field of speech-language pathology.


Willi Horner-Johnson, PhD

Dr. Horner-Johnson is an associate professor in OHSU's IDD and PEDs as well as the OHSU-PSU School of Public Health. The majority of Dr. Horner-Johnson's current research focuses on reproductive health and decision making among women with disabilities. She led one of the first studies to examine what proportion of women with disabilities experience pregnancy, and the first to analyze pregnancy among women with different types of disabilities. She is now studying pregnancy outcomes and risk factors for adverse outcomes, as well as contraception use and preferences among women with disabilities.


Anna Wilson, PhD, Pediatric Psychologist

Anna Wilson, PhD, is a pediatric psychologist in the IDD's Division of Psychology and has been promoted to Associate Professor.


Daniel Kriz, PhD,Pediatric Psychologist 

Daniel Kriz, PhD, is a pediatric psychologist in the IDD's Division of Psychology and was recently Board Certified.


Kim Reynolds, PhD,Pediatric Psychologist

Kim Reynolds, PhD, is a pediatric psychologist in the IDD's Division of Psychology and was recently Board Certified.

* If you would like to highlight a faculty/staff member for our next newsletter, please e-mail Melissa Mullineaux.

 

Staff Updates

The IDD is now part of the Department of Pediatrics

The Institute on Development and Disability (IDD) is now organized within the Department of Pediatrics, as shared Sept. 23 during a meeting of IDD leaders, faculty and staff. 

Previously a free-standing institute within the School of Medicine, the change is meant to bring IDD into greater administrative alignment with the overall structure and resources of the school and OHSU as a whole. Dr. Rogers will remain as IDD director at least through June 2017. 

Throughout its 100-year-plus history, the IDD has fulfilled a mission of service, teaching, research, public health and policy for individuals with disabilities and complex health needs across the lifespan. Recently, clinical work flow inefficiencies, limited resources, and infrastructure have resulted in the Child Development and Rehabilitation Center (CDRC) not being able to sustainably respond to the growing demand for its services. 

Research, teaching/training, public health, and policy activities within IDD will continue and not see substantive changes. 

IDD and the Departments of Obstetrics and Gynecology and Pediatrics, and the Center for Women's Health integrated their administrative structures in 2011. The IDD transition is similarly expected to allow each group to leverage each other's strengths while identifying opportunities for process improvement.


IDD welcomes:

Tammy Vogel, M.B.A.: Program Administrator, IDD 
Please welcome Tammy Vogel as the new Administrator for IDD. Tammy joined the Child Development and Rehabilitation Center at OHSU in 1995 and in August of 2003 she became the Practice Manager for the Hemophilia, Genetics, and Metabolic clinics. In December 2007, Tammy was promoted to the position of Program Administrator for the Hemophilia Center at OHSU where she was instrumental in doubling the size of the program. In addition to managing the budgeting, finances, research, and day-to-day operations of the Center, Tammy negotiated exclusive provider agreements with Oregon Medicaid and other key state Medicaid programs. Tammy has recently completed her M.B.A. in Healthcare Business Operations at OHSU and has been regionally and nationally active on various committees of the American Hemostasis &Thrombosis Network and The Hemophilia Alliance.  

Carolyn Bruebaker Moore, Senior Project Manager, CDRC clinical program optimization): Carolyn will be working within IDD leading the CDRC Clinical Optimization effort from initial review through a staged approach action plan and final review and assessment. 

Carolyn is a native Oregonian who enjoys all that the Pacific Northwest has to offer in outdoor activities year round. She received her BS in Economics and Business Management from Oregon State University, her MBA from the University of Phoenix, and is certified as a Medical Practice Executive, Clinical Research Professional, and in Lean Six Sigma. Carolyn's pre-OHSU background includes sales and operations and is coming up on her 13th year anniversary with OHSU. In her time on campus she worked in the Cancer Institute (Pre-Knight days) in clinical research management, with the Division of Endocrinology as a section administrator, in the Department of Surgery as a Division Manager of Plastic/Reconstructive Surgery &Vascular Surgery while leading the Centralized Managed Care Team, and most recently as an Administrator for the Knight Cardiovascular Institute. Carolyn loves the variety of focal points and challenges at OHSU and is thrilled to join the IDD team. 

Hannah Smith, Executive Assistant (PEDs &IDD), has joined PEDs &IDD on a contract basis and will provide assistance to Drs. Braner and Rogers as well as perform other executive-level duties for the department. Hannah comes to us from PeaceHealth and has an extensive background in executive-level support in both Healthcare and Academics. Please include her in any communication regarding Dr. Braner's schedule and other items as appropriate. 

David Sims, Community Consultant, OCCYSHN David Sims joined OCCYSHN in October as a Community Consultant to the Ontario and Coos Bay Community Connections Network teams. He supports our longstanding partnerships in those communities. David is also helping OCCYSHN implement our State Action Plan, which focuses on ensuring that Oregon's CYSHCN have medical homes, services for transitioning from pediatric to adult health care, and culturally and linguistically appropriate services. 

Julianna Gonzalez, Administrative Assistant, IDD role has changed

Julianna's role is to support IDD Research in any and all administrative capacities -- Financial, technical, clerical, etc. She can be found in office suite 1270 on the first floor of the CDRC.

Nan Lefton, Executive Assistant, IDD will retire at the end of December

Nan has done a fantastic job in her role and has brought her successful business acumen to the structure of her position. We will greatly miss Nan as she moves on and wish her the very best! 

IDD welcomes new Fellows 

Caitlin Rasplica: Behavioral Pediatrics & Pediatric Psychology

Harpreet Nagra: Diabetes/Chronic Health

Justin Hampton: Autism Spectrum Disorders

Tyler Duffield: Neuropsychology, through a partnership with Sports Medicine and Concussion

Justin Lee: Neuropsychology, returns for year two and will serve as Chief Fellow

IDD welcomes Karen Gaffney

Karen Gaffney had joined IDD to work with the UCEDD and also specifically in the CDRC Down Syndrome Program. In the clinic, she welcomes families and offers guidance and support, shares her experience with then and is also helping with the client's patient satisfaction surveys. In the UCEDD and IDD in general she will be working on various projects
A little background about Karen - She is the president of the Karen Gaffney Foundation, a non-profit organization headquartered in Portland, Oregon. In 2001 she became the first person with Down syndrome to complete a relay swim of the English Channel.  

 

Justin Ross, OODH Emergency Preparedness Program Coordinator, has accepted a new job with FEMA

Due to the recent CDC grant application not including emergency preparedness, Justin Ross began looking for a new job and was offered a position with FEMA as a Disability Integration Advisor. He has been very complimentary of his time working at IDD stating, "I know that this wouldn't have happened had it not been for the exposure and amazing resources that this office (OODH), and this Institution, have afforded me.  I will be forever grateful."

 

Peter Blasco has transitioned from his role as LEND Project Director

Peter Blasco's leadership and expertise are still present, however, as he continues to serve on the program's training coordinator's counsel. Kurt Freeman, PhD, ABPP who has been associated with the Oregon LEND Program for 10+ years, most recently also serving as the program Training Director, has assumed the role of Project Director.

 

LEND welcomes two new Training Coordinators

Robina Ingram-Rich RN,MS,MPH: Nursing

Hilary Mahon MS.Ed.BCBA: Special Education

 

Kathleen Humphries, IDD Associate Director, is no longer with IDD

Dr. Humphries was active as IDD's Associate Director for the past 18 months. She has left IDD to pursue other opportunities in nutrition, disability, and health. She intends to stay in the area, and will continue to be an asset to the disability and health community in Oregon.

 

Coming Up

Harvest Hustle 5k/1k

Saturday October 21 @9am - OHSU Collaborative Life Sciences Building (CLSB)/Tillikum Crossing. Registration will open soon.
 

LEND Research Presentation Days

June 15 and 22, 2:45-5pm, CDRC 3200: Long-term trainees provide formal presentation of the findings from their research conducted during their training

LEND Appreciation Day 

June 29, 3-5pm, CDRC 3200: Opportunity to recognize the outstanding achievements of all long-term trainees, including providing the LEND Outstanding Trainee and Outstanding Alumnus/a Awards.

IDD Holiday Party

All IDD staff have been invited to join the Department of Pediatrics' annual Holiday Celebration, which will be taking place at the Multnomah Athletic Club on December 9th, from 6:30 –10:00pm. Please RSVP via the calendar appointment from Jesse Ettinger by December 1st. For any specific questions you might have regarding the event, please contact Liz Perkins at perkinel@ohsu.edu. NOTE: IDD will not be having its own Holiday Celebration in CDRC 3200, as has been the case in years past. 


Saturday, October 22: IDD Harvest Hustle 5K/1K (Tilikum Crossing)

Register today! The Harvest Hustle is the annual fundraiser for OHSU's Institute on Development andDisability (IDD). Each year we dedicate the proceeds from the run to programswhich directly enhance the lives of children and families whoexperience disability. This year we will be supporting four IDD programsthat help children with disabilities ranging from mobility issues, AutismSpectrum Disorder, and speech and hearing disorders.