News & Information

December 15, 2015
Standards for Systems of Care

Defining what constitutes good care is a persistent challenge for programs serving children and youth with special health care needs (CYSCHN). What are we aiming for when we try to improve care for CYSCHN? What are the core components of effective systems of care?

In 2013/2014, the Association of Maternal and Child Health Programs partnered with the Lucile Packard Foundation for Children's Health to tackle those questions, and to develop national standards to guide health leaders, healthcare providers, and families. A national work group of experts was convened. Together they created a consensus framework for systems of care for CYSCHN. The framework was derived from a comprehensive literature review, input from key informants, case studies of standards currently in use, and guidance from the work group.

The final report offers a comprehensive set of standards for systems serving CYSHCN and their families. OCCYSHN works diligently to promote the integration of these standards into Oregon healthcare policy, administration, and practice. Learn more at the links below.

AMCHP Standards for Systems of Care for Children and Youth with Special Health Care Needs (full report –37 pages)

Summary: Standards for Systems of Care for Children and Youth with Special Health Care Needs (a brief overview –10 pages)

Background white paper about the development of the Standards (32 pages)

November 27, 2015
Welcome!

Greetings from the Oregon Center for Children and Youth with Special Health Needs. OCCYSHN is launching this "News & Information" page to update people about important issues facing children and youth with special health care needs (CYSHN), and to keep you informed about what's being done at OCCYSHN and across Oregon to address those issues. I am privileged to serve as Director of Oregon's Maternal and Child Health Bureau Title V program for CYSHN.

Recent years have been marked by dramatic changes in health care and in public health. The passage of the Affordable Care Act launched a new era of health care reform. As Oregon transforms its systems of health care and education, OCCYSHN is committed to ensuring that the needs of CYSHN are addressed. It is an exciting time for innovative thinking and collaboration.

In order to support informed decision-making at every level, OCCYSHN monitors of the well-being of Oregon CYSHN. We share data and assessments with policymakers, insurers, public health programs, health care providers, and families. Our goal is to ensure a coordinated and integrated system of care that serves the needs of CYSHN.

OCCYSHN welcomes your input. Please feel free to e-mail me any time at . For additional news and information, "like" OCCYSHN's Facebook page.

Sincerely,

Marilyn Sue Hartzell, Director
Oregon Center for Children and Youth with Special Health Needs