Registry News & Events
Melanoma Warriors Unite - Bend, Ore.
- Local, OHSU-funded projects
- Sharing community projects
- Melanoma & other types of skin cancers
- Community events
- Volunteer opportunities
- Available resources
Melanoma, Vitiligo, and XP Patient Symposium
Date: October 17
Time: 12:30 p.m. - 6 p.m. (or welcome to stay for keynote presentation until 8 p.m.)
Join us on the Oregon Coast at Salishan Spa & Golf Resort for a free patient-focused event! We will bring melanoma, vitiligo, and XP patients together with internationally-recognized dermatologists to talk about the latest advances in treatment and research to improve skin health. Bus transportation will be available. Lunch included. Evening reception available.
Date: Saturday, May 19th
NW Cancer Resource Fund donates $10,000
4th Annual Melanoma Patient Symposium Recap
Oregon Talks Genetics focus group invitation
2017 War on Skin Cancer Event Recap
On May 20th, we hosted our third annual War on Skin Cancer Event. It was another amazing day for the advancement of melanoma research, education and community.
May 26th is "Dont Fry Day"
Public Health Portland Style
Skin Cancer: The Silent Killer of Central Oregon
Date: Thursday, April 20th
Time: 5:30pm - 7:00pm
Place: Lucky Lab Beer Hall,
1945 NW Quimby Street
Date: Saturday, April 22
Time: 9:30 a.m. - 12:30 p.m.
Location: Sheraton Portland Airport Hotel
8235 NE Airport Way
Portland, OR 97220
Join the National Psoriasis Foundation as they host a free event addressing:
- The latest on managing psoriatic disease and achieving clear skin
- Q&A with the experts
- Tips for managing flares, stress and food choices
- Exhibits, continental breakfast and more!
- View the full schedule
2017 War on Skin Cancer Event
We made history! On Saturday January 21st, we brought together a community of over 200 healthcare professionals, melanoma survivors, family members and not-for-profit organizations for the unified purpose of melanoma teaching, discovery and community. Thanks to all of you who attended in person in Portland, Bend and Corvallis, and to our virtual attendees too! This day featured:
- Total Participants: ~200
- Melanoma Professionals: 30 in person, 15+ online
- Community Participants: 80 in person, 60+ online
- Remote Location Participants: 15
- Patients who signed up to volunteer for SolSurvivors Oregon: 17
- Keynote Presentation: The Current Direction of Melanoma Clinical Trials in the US
Omid Hamid, MD, Director of the Melanoma Center and Phase I Immuno-Oncology Program, The Angeles Clinic and Research Institute
- Q&A with Expert Panel (starting at 53:00 mins)
Omid Hamid, MD, The Angeles Clinic and Research Institute
Sancy Leachman, MD, PhD, Oregon Health & Science University
Walter J. Urba, MD, PhD, Providence Cancer Center
Carlo Bifulco, MD, Providence Cancer Cente
Brendan Curti, MD, Providence Cancer Center
Kristen Massimino, MD, Oregon Health & Science University
Matthew Taylor, MD, Oregon Health & Science University
Oliver Wisco, DO, Bend Memorial Clinic, Oregon Health & Science University
- Community Forum Recording
Featuring SolSurvivors Oregon: Katie Wilkes, Robin Zimmerman, Jennifer Millar, Pam Beck
Oregon Health & Science University: Lisa Domenico, MBA, and Sancy Leachman, MD, PhD
- Full photo gallery can be viewed HERE
2017 Melanoma Community Research Forum
- Learn about updates in melanoma research and clinical trials
- Find out how patient-identified needs are being transformed into research projects
- Audience Q&A with doctors from OHSU, Providence, and more
- Networking with melanoma survivors and friends
- Free lunch and parking!
TO REGISTER FOR FREE, CLICK HERE or by phone: 916-706-0599
Dr. Sancy Leachman appointed inaugural recipient of John D. Gray Endowed Chair in Melanoma Research
War on Skin Cancer Event Presentation Recordings
Dr. Oliver Wisco: Anthropology and tans
Dr. Amanda Lund: Persuading your immune system to stop melanoma
Dr. Anna Bar: A melanoma vaccine? An OHSU clinical trial
Dr. Pamela Cassidy: The dark side of using supplements: boundaries of our current knowledge
Dr. Tracy Petrie: Size matters, when it comes to moles
NW Cancer Resource Fund donates $15,000
2016 War on Skin Cancer Event Recap
The War on Melanoma Debrief Newsletter - February
If you are not already a Registry member, visit our Melanoma Community Registry page and subscribe to receive the Debrief and other exciting correspondence!
The Debrief is a quarterly newsletter used to keep our Registry Members up to date on new melanoma 'intel' such as: advancements in research, technology, introduce events, volunteer opportunities, and much more!
OHSU Featured in OMA Medicine Magazine for Work on Sunscreen Legislation
The War on Melanoma Debrief Newsletter - November
In order to inform our Registry members of new and exciting melanoma 'intel', we have created the War on Melanoma™ Debrief. This newsletter is designed to keep our members up to date with advancements in research, technology, introduce events, volunteer opportunities, and much more!
Our November issue focused on some exciting new technology advancements that we are deploying in the War on Melanoma™! Click the thumbnail to read more!
If you are not already a Registry member, visit our Melanoma Community Registry page and subscribe to receive the Debrief and other exciting correspondence!
Dr. Sancy Leachman Speaks with OncLive
Dr. Sancy Leachman, M.D., Ph.D., recently spoke with OncLive to introduce the MoleMapper phone app and suggest how it can be used by oncologists to help patients identify melanoma recurrences.
Cancer Survivors 2 Thrivers Old Fashioned Family Picnic and Melanoma Awareness Event
On August 15th, 2015, the organization Cancer Survivors 2 Thrivers hosted a huge picnic and family fun event in order to raise awareness for melanoma and to raise funds for the Knight Cancer Institute to help aid their efforts in fighting against the disease. This event included a talk by OHSU melanoma expert, Sancy Leachman, M.D., Ph.D., who is pictured receiving the big check proceeds from this event!
We would like to thank Cancer Survivors 2 Thrivers for hosting such a great event and for their contributions to the Knight Cancer Institute!
Mole Mapper App Launch
On 10/15/15, OHSU in partnership with Sage Bionetworks released a cellphone app called Mole Mapper. Mole Mapper, which is available exclusively in Apple®’s App Store, is part of the Apple ResearchKit suite of apps. Mole Mapper will help to gather data for melanoma research and, potentially, impact health outcomes in individuals at risk for melanoma. Using your iPhone camera, Mole Mapper tracks moles and how they change and grow over time, empowering patients to take charge of their health monitoring.
To find out more information about the app and watch our animated videos, visit our Mole Mapper page!
Knight Cancer Institute BioLibrary Donation Opportunities
October 16th, 3-5:30pm
October 21st, 8-9:30am
October 30th, 3-5:30pm
Oregon Health & Science University
Center for Health and Healing, 16th Floor, South Waterfront
How to register:
- Click HERE (or the image) to sign-up on VolunteerSpot
- Enter your email - you will NOT need to register an account or keep a password
- Review the options listed and choose the spot you like
Note: VolunteerSpot does not share your email with anyone
HB 3041 Bill Signing Ceremony in Salem
With help from you and your tremendous support, HB 3041 passed the Oregon State Legislature almost unanimously, making Oregon only the second state in the country besides California to allow children to bring and use sunscreen and sunprotective clothing at school and during school sponsored activities.
First, we want to say a huge thank you to the Melanoma Community Registry for helping to make this happen!
We also want to invite you to join us, if you're available, for the Governor's Ceremonial Bill Signing of this fantastic legislation and celebrate this victory to increase melanoma prevention options for Oregon's children. Please join us for the 15 minute signing ceremony Tuesday, July 28 at 2 p.m., and feel free to bring your children and share this invitation with others who are passionate about ending melanoma in Oregon.
HB3041 Bill Signing Ceremony
Governor's Ceremonial Office
2 – 2:15 p.m.
Oregon State Capitol
900 Court ST NE, Salem, Ore. 97301
You'll have an opportunity to meet Governor Kate Brown and see her sign into law HB 3041. We will be gathering around 1:45 p.m. in the Rotunda area of the Capitol near the front door and then heading up to her office before 2 p.m. Feel free to head straight upstairs to her office if you'd prefer, as well.
RSVP to Julie Hanna , or if you have any questions, contact her at 503-860-2662.
We hope to see you next Tuesday!
$15,000 Raised for Melanoma Research
OHSU is one of four participating sites in this important resource for research. For more information about the importance of developing melanoma tissue banks, please Skin of Steel's video below.
May 30th War on Skin event - A smashing success!On May 30, 2015, over 800 people attended our War on Skin Cancer event. It featured a skin cancer research expo, skin checks provided by OHSU and community dermatologists, a community walk to raise awareness and funds for research, sun safety education and even live music! Before the event even officially started, the atmosphere was abuzz with attendees eager to participate in and learn about skin cancer research.
Thanks to your combined efforts, in only five hours our researchers collected hundreds of surveys and blood samples that would normally take many months to obtain; our dermatologists provided 250 skin checks for community members that some may not have otherwise received; and over 125 new people joined the Melanoma Community Registry. Your enthusiasm to help learn about and participate in ongoing skin cancer research is truly inspiring.
May 2015 - OHSU strives to cut Oregon’s melanoma diagnoses in half
OHSU's Dr. Sancy Leachman was recently featured in an article about skin cancer in Oregon by the Bend Bulletin. The article discusses launching the War on Melanoma and Oregon's unusually high rate of skin cancer. An excerpt from the article can be found below:“As cloudy as it is, you wouldn’t expect it,” said Dr. Sancy Leachman, director of the Melanoma Research Program in Oregon Health & Science University’s Knight Cancer Institute. (She was speaking, of course, of the Northwest portion of the state, not Central Oregon, which, by contrast, tends to get a lot of sun.)
Leachman recently launched a massive project called the War on Melanoma with the ultimate goal of cutting the number of melanoma deaths in Oregon in half in five years. The clock on that five years hasn’t actually begun yet, as the project is still in its fundraising phase. So far, more than 3,300 melanoma survivors, family members and friends have agreed to become part of a registry researchers will use to find study subjects — which can be difficult to find for any type of clinical trial — and blood donors when samples are needed for certain melanoma studies."
CDC Prevention & Control of Skin Cancer WebinarThe Centers for Disease Control and Prevention’s webinar from April 21, 2015 addresses prevention and control of skin cancer in response to the Surgeon General’s Call to Action to Prevent Skin Cancer. The webinar features presentations from a four person panel that focus particularly on how we can all help people protect their skin and live their lives while enjoying the outdoors.
Meg Watson, MPH, an epidemiologist from the Division of Cancer Prevention and Control provides data on skin cancer incidence, risk and prevention. Sharon Mckenna, program manager of Arizona SunWise Skin Cancer Prevention Program, discusses key lessons learned in skin cancer prevention and sun safety within Arizona schools. Jeff Gershenwald, MD explains how the Melanoma Moon Shot Program at MD Anderson is working toward reducing incidence of melanoma in youth.
Boris Lushniak, MD, MPH, Deputy Surgeon General, concludes the webinar by expanding upon action steps and strategies we can implement to help prevent skin cancer.
May 2015 - Skin Cancer Research Expo & Sun Safety Event
An event to educate, detect, and advance the science of skin cancer prevention and treatment all in one place
Start the summer off by learning more about sun safety and protection, having a skin exam performed by a healthcare provider and participating in the latest skin cancer research at OHSU. Skin cancer should be among the most easily recognized and preventable of all cancers. Often people do not always visit a dermatologist when they see a mole that has changed or doesn’t “look normal” or they don’t recognize other common symptoms of skin cancer .Join the OHSU Department of Dermatology and the OHSU Knight Cancer Institute on Saturday, May 30, at the Center for Health & Healing, located on the South Waterfront for a research expo, skin cancer health education and skin checks, and the 2015 Northwest Melanoma Walk.
February 2015 - Nike Meet CancerOn February 3rd, NIKE held a Meet Cancer event at their world headquarters in Beaverton, OR. The event included a group run (it is NIKE after all), presentations from OHSU cancer experts, and celebration of NIKE employees who have faced cancer. The OHSU speakers included Dr. Sancy Leachman, Dr. Brain Druker, and Dr. Kent Thornberg.
November 2014 - Melanoma Care Update & Patient Dialogue
Thank you, everyone, who joined us on for our first Melanoma Care Update & Patient Dialogue, co-sponsored by our friends at Aim at Melanoma. We are delighted that so many of you were able to participate. The event, held at the Vey Auditorium at OHSU Doernbecher Children’s Hospital on November 15th, was a great success with over 130 people in attendance.
Sancy Leachman, M.D., Ph.D., director of the OHSU Knight Cancer Institute Melanoma Program, commenced the event by sharing her plans to reduce skin cancer rates and advance research through the Melanoma Community Registry.
Following Dr. Leachman’s presentation, Michael M. Kim, M.D. and Michael Taylor, M.D. and presented on surgical options following melanoma diagnosis and novel system therapies for metastatic melanoma, respectively. Jackilen Shannon, Ph.D, R.D, M.P.H. then presented on melanoma prevention and how Let’s Get Healthy is using interactive gaming to educate children about skin cancer prevention.
The event’s keynote speaker, Gerald Linette, M.D., Ph.D., associate professor of medicine and neurosurgery at Washington University in St. Louis, Missouri, gave a brilliant presentation on the future of melanoma treatments that harness the immune system.
The event concluded with a patient panel that allowed melanoma survivors to share their personal journeys and heartfelt experiences fighting against melanoma. Attendees were also able to explore exhibits presented by Let’s Get Healthy and Sol Survivors before and after the event.
Watch the event:
What participants are saying:
“AIM was honored to be a part of the Melanoma Care Update and Patient Dialogue. We not only heard some very informative presentations on melanoma but we had an opportunity to hear how OHSU would be working with the melanoma community to combat the disease.”
– Sam Guild, AIM at Melanoma
“The event provided a wealth of valuable information about melanoma diagnosis and treatment. It created a unique opportunity for patients and survivors to engage in a two-way conversation with researchers and physicians, and allowed us to connect with individuals who are interested in using their various skills and talents to advance the war on melanoma.”
– Katie Wilkes, SolSurvivors Oregon
“So very good! I can’t thank you enough for presenting this info and leading an organized attack on melanoma in Oregon.”
– Attendee Comment
Read more about it:
- The Oregonian: "First-ever gathering of melanoma patients at OHSU will cover cutting-edge treatments"
- Oregon Public Broadcasting: "OHSU Doctor Hopes Melanoma Registry Will Aid Education, Research"
- Portland Business Journal: "OHSU assembles melanoma ‘army’ to fight the disease"