Registry News & Events

Melanoma Patient Symposium


Date: Saturday, November 18th
Time: 8:00 p.m. - 1:00 p.m.
Place: OHSU School of Nursing Auditorium

Learn more, to register, visit our event page

 Oregon Talks Genetics focus group invitation

The OHSU Knight Cancer Institute and the Cancer Early Detection Advanced Research Center are seeking Oregon residents, aged 18+, to join a 60 - 90 minute focus group (guided conversation) to hear your thoughts about genetic research. View the flyer for full details!
Oregon Talks Genetics




 2017 War on Skin Cancer Event Recap

2017 War on Skin Cancer Event 

 

 

On May 20th, we hosted our third annual War on Skin Cancer Event. It was another amazing day for the advancement of melanoma research, education and community. 

 

Learn more...



 May 26th is "Dont Fry Day"

National Don't Fry Day
The National Council on Skin Cancer Prevention has designated the Friday before Memorial Day as "Don't Fry Day" to raiseawareness of skin cancer prevention and to encourage everyone to protect their skin as they head outdoors to kick off the summer season.

Make a difference: Spread the word about strategies for preventing skin cancer and encourage everyone to get involved.

Visit www.skincancerprevention.org for more information.

Public Health Portland Style

Public Health Portland Style
Skin Cancer: The Silent Killer of Central Oregon


Date
: Thursday, April 20th
Time: 5:30pm - 7:00pm
Place: Lucky Lab Beer Hall,
1945 NW Quimby Street

FREE and open to the public; all ages.

Central Oregon is known for its beauty and numerous opportunities for fun outdoor activities. However, it is also home to the highest incidence of melanoma in the State and deaths due to melanoma. Find out how a physician, a foundation and a melanoma survivor are working together with the OHSU Integrated Program in Community Research to tackle the question of sun safety education and melanoma prevention in Central Oregon.

This presentation is brought to you by the OHSU-PSU School of Public Health's monthly Public Health Portland Style lecture series. This event will be live streamed via Facebook.

NPF More Than Skin Deep 

Date: Saturday, April 22
Time: 9:30 a.m. - 12:30 p.m.
Location: Sheraton Portland Airport Hotel
8235 NE Airport Way
Portland, OR 97220
Cost: FREE

Join the National Psoriasis Foundation as they host a free event addressing:

  • The latest on managing psoriatic disease and achieving clear skin
  • Q&A with the experts
  • Tips for managing flares, stress and food choices
  • Exhibits, continental breakfast and more!
  • View the full schedule
For more info, to register, visit More Than Skin Deep Event Page

 

2017 War on Skin Cancer Event

2017 War on Skin Cancer Event 

Saturday, May 20th
9am - 2pm
OHSU Collaborative Life Sciences Building, South Waterfront, Portland

Learn more HERE!

 Melanoma Community Forum Recap

We made history! On Saturday January 21st, we brought together a community of over 200 healthcare professionals, melanoma survivors, family members and not-for-profit organizations for the unified purpose of melanoma teaching, discovery and community. Thanks to all of you who attended in person in Portland, Bend and Corvallis, and to our virtual attendees too! This day featured:

  • Total Participants: ~200
    • Melanoma Professionals: 30 in person, 15+ online
    • Community Participants: 80 in person, 60+ online
    • Remote Location Participants: 15
    • Patients who signed up to volunteer for SolSurvivors Oregon: 17
  • Keynote Presentation: The Current Direction of Melanoma Clinical Trials in the US
    Omid Hamid, MD, Director of the Melanoma Center and Phase I Immuno-Oncology Program, The Angeles Clinic and Research Institute
  • Q&A with Expert Panel  (starting at 53:00 mins)
    Omid Hamid, MD, The Angeles Clinic and Research Institute
    Sancy Leachman, MD, PhD, Oregon Health & Science University
    Walter J. Urba, MD, PhD, Providence Cancer Center
    Carlo Bifulco, MD, Providence Cancer Cente
    Brendan Curti, MD, Providence Cancer Center
    Kristen Massimino, MD, Oregon Health & Science University
    Matthew Taylor, MD, Oregon Health & Science University
    Oliver Wisco, DO, Bend Memorial Clinic, Oregon Health & Science University
  • Community Forum Recording
    Featuring SolSurvivors Oregon: Katie Wilkes, Robin Zimmerman, Jennifer Millar, Pam Beck
    Oregon Health & Science University: Lisa Domenico, MBA, and Sancy Leachman, MD, PhD
  • Full photo gallery can be viewed HERE

 

2017 Melanoma Community Research Forum

Melanoma Community Research Forum
The 3rd Annual Melanoma Community Research Forum is back again on Saturday, January 21st at the Collaborative Life Sciences Building on Portland's South Waterfront (Simple map). 

Not local? Remote viewing parties will be held in Bend, and Corvallis, as well as a live stream (that will become active the morning of)!

Join us and other melanoma community members to:
  • Learn about updates in melanoma research and clinical trials
  • Find out how patient-identified needs are being transformed into research projects
  • Audience Q&A with doctors from OHSU, Providence, and more
  • Networking with melanoma survivors and friends
  • Free lunch and parking!

TO REGISTER FOR FREE, CLICK HERE or by phone: 916-706-0599

Hosted by SolSurvivors Oregon and AIM at Melanoma, in collaboration with the OHSU Department of Dermatology

 

 Dr. Sancy Leachman appointed inaugural recipient of John D. Gray Endowed Chair in Melanoma Research

Sancy Leachman, MD, PhD

Sancy Leachman, M.D., Ph.D., was recently appointed the inaugural recipient of the John D. Gray Endowed Chair in Melanoma Research by the OHSU Knight Cancer Institute due to her contributions in the field of melanoma research.


War on Skin Cancer Event Presentation Recordings

As part of our 2016 War on Skin Cancer Event, we invited skin cancer experts to speak about a wide variety of topics related to their work. These spotlight presentations were hosted as 'popup discussions' with plenty of time for Q&A dialogue. These were recorded, and are now available!


 NW Cancer Resource Fund donates $15,000

Larry Chadwick
Larry Chadwick meets with Dr. Sancy Leachman to deliver a donation of $15,000 from the NW Cancer Resource Fund to support the Department of Dermatology for its War on Skin Cancer Event and other department uses. We would like to thank Larry, and everyone at NW Cancer Resource Fund for their gracious donation.

The War on Melanoma Debrief  Newsletter - February

War on Melanoma Debrief - February
Our February issue of the War on Melanoma Debrief  focuses on our basic science melanoma researchers. Their work, often behind the scenes, is paramount to the War on Melanoma's goals of improving melanoma prevention and treatment. Click the thumbnail to read more!

If you are not already a Registry member, visit our Melanoma Community Registry page and subscribe to receive the Debrief and other exciting correspondence!

The Debrief is a quarterly newsletter used to keep our Registry Members up to date on new melanoma 'intel' such as: advancements in research, technology, introduce events, volunteer opportunities, and much more!

 OHSU Featured in OMA Medicine Magazine for Work on Sunscreen Legislation

OMA Medicine Magazine





Because most commercial sunscreen lotions contain an active ingredient, before June of 2015, Oregon schools largely considered them as medications that required a doctor's note.

As of July 1, 2015, this is no longer the case. Thanks to the passing of Oregon House Bill 3041, students all across Oregon now have the ability to bring sun protection with them to school. The bill, which was championed by OHSU medical students, and supported by faculty experts Sancy Leachman, MD, PhD, professor and chair of dermatology, and Brian Druker, MD, director of the OHSU Knight Cancer Institute, marked a significant victory for sun-safety in the state of Oregon.


The War on Melanoma Debrief  Newsletter - November

War on Melanoma Debrief November

In order to inform our Registry members of new and exciting melanoma 'intel', we have created the War on Melanoma™ Debrief. This newsletter is designed to keep our members up to date with advancements in research, technology, introduce events, volunteer opportunities, and much more!

 

Our November issue focused on some exciting new technology advancements that we are deploying in the War on Melanoma! Click the thumbnail to read more!

 

If you are not already a Registry member, visit our Melanoma Community Registry page and subscribe to receive the Debrief and other exciting correspondence!

Dr. Sancy Leachman Speaks with OncLive

OncLive Interview Sancy Leachman, MD, PhD

Dr. Sancy Leachman, M.D., Ph.D., recently spoke with OncLive to introduce the MoleMapper phone app and suggest how it can be used by oncologists to help patients identify melanoma recurrences.

Cancer Survivors 2 Thrivers Old Fashioned Family Picnic and Melanoma Awareness Event

Cancer Survivors 2 Thrivers Check Presentation

 

On August 15th, 2015, the organization Cancer Survivors 2 Thrivers hosted a huge picnic and family fun event in order to raise awareness for melanoma and to raise funds for the Knight Cancer Institute to help aid their efforts in fighting against the disease. This event included a talk by OHSU melanoma expert, Sancy Leachman, M.D., Ph.D., who is pictured receiving the big check proceeds from this event!

We would like to thank Cancer Survivors 2 Thrivers for hosting such a great event and for their contributions to the Knight Cancer Institute!

 

Melanoma Community Research Forum Recording

To watch the recording of this event, click HERE

To view the photo gallery of this event, click HERE

Melanoma Community Research Forum



 

Mole Mapper App Launch

Mole Mapper iPhone App

On 10/15/15, OHSU in partnership with Sage Bionetworks released a cellphone app called Mole Mapper. Mole Mapper, which is available exclusively in Apple®’s App Store, is part of the Apple ResearchKit suite of apps. Mole Mapper will help to gather data for melanoma research and, potentially, impact health outcomes in individuals at risk for melanoma. Using your iPhone camera, Mole Mapper tracks moles and how they change and grow over time, empowering patients to take charge of their health monitoring.

To find out more information about the app and watch our animated videos, visit our Mole Mapper page!

View OHSU Mole Mapper Press Release

Knight Cancer Institute BioLibrary Donation Opportunities

 Knight BioLibrary Donation Opportunities

Donation Dates:
October 16th, 3-5:30pm
October 21st, 8-9:30am
October 30th, 3-5:30pm

Oregon Health & Science University
Center for Health and Healing, 16th Floor, South Waterfront

How to register:

  1. Click HERE (or the image) to sign-up on VolunteerSpot
  2. Enter your email - you will NOT need to register an account or keep a password
  3. Review the options listed and choose the spot you like
Note: VolunteerSpot does not share your email with anyone

HB 3041 Bill Signing Ceremony in Salem

With help from you and your tremendous support, HB 3041 passed the Oregon State Legislature almost unanimously, making Oregon only the second state in the country besides California to allow children to bring and use sunscreen and sunprotective clothing at school and during school sponsored activities.

First, we want to say a huge thank you to the Melanoma Community Registry for helping to make this happen!

We also want to invite you to join us, if you're available, for the Governor's Ceremonial Bill Signing of this fantastic legislation and celebrate this victory to increase melanoma prevention options for Oregon's children. Please join us for the 15 minute signing ceremony Tuesday, July 28 at 2 p.m., and feel free to bring your children and share this invitation with others who are passionate about ending melanoma in Oregon. 

HB3041 Bill Signing Ceremony
Governor's Ceremonial Office
2 – 2:15 p.m.
Oregon State Capitol
900 Court ST NE, Salem, Ore. 97301

You'll have an opportunity to meet Governor Kate Brown and see her sign into law HB 3041. We will be gathering around 1:45 p.m. in the Rotunda area of the Capitol near the front door and then heading up to her office before 2 p.m. Feel free to head straight upstairs to her office if you'd prefer, as well.  

RSVP to , or if you have any questions, contact her at 503-860-2662.

We hope to see you next Tuesday!

$15,000 Raised for Melanoma Research

OHSU is one of four participating sites in this important resource for research. For more information about the importance of developing melanoma tissue banks, please Skin of Steel's video below. 

May 30th War on Skin event - A smashing success!

On May 30, 2015, over 800 people attended our War on Skin Cancer event. It featured a skin cancer research expo, skin checks provided by OHSU and community dermatologists, a community walk to raise awareness and funds for research, sun safety education and even live music! Before the event even officially started, the atmosphere was abuzz with attendees eager to participate in and learn about skin cancer research.

Thanks to your combined efforts, in only five hours our researchers collected hundreds of surveys and blood samples that would normally take many months to obtain; our dermatologists provided 250 skin checks for community members that some may not have otherwise received; and over 125 new people joined the Melanoma Community Registry. Your enthusiasm to help learn about and participate in ongoing skin cancer research is truly inspiring. 

If you weren't able to attend the event, here's a quick recap.

May 2015 - OHSU strives to cut Oregon’s melanoma diagnoses in half

OHSU's Dr. Sancy Leachman was recently featured in an article about skin cancer in Oregon by the Bend Bulletin. The article discusses launching the War on Melanoma and Oregon's unusually high rate of skin cancer.  An excerpt from the article can be found below: 

“As cloudy as it is, you wouldn’t expect it,” said Dr. Sancy Leachman, director of the Melanoma Research Program in Oregon Health & Science University’s Knight Cancer Institute. (She was speaking, of course, of the Northwest portion of the state, not Central Oregon, which, by contrast, tends to get a lot of sun.)

Leachman recently launched a massive project called the War on Melanoma with the ultimate goal of cutting the number of melanoma deaths in Oregon in half in five years. The clock on that five years hasn’t actually begun yet, as the project is still in its fundraising phase. So far, more than 3,300 melanoma survivors, family members and friends have agreed to become part of a registry researchers will use to find study subjects — which can be difficult to find for any type of clinical trial — and blood donors when samples are needed for certain melanoma studies."

To read the full article in the Bend Bulletin click here

CDC Prevention & Control of Skin Cancer Webinar

The Centers for Disease Control and Prevention’s webinar from April 21, 2015 addresses prevention and control of skin cancer in response to the Surgeon General’s Call to Action to Prevent Skin Cancer. The webinar features presentations from a four person panel that focus particularly on how we can all help people protect their skin and live their lives while enjoying the outdoors.

Meg Watson, MPH, an epidemiologist from the Division of Cancer Prevention and Control provides data on skin cancer incidence, risk and prevention. Sharon Mckenna, program manager of Arizona SunWise Skin Cancer Prevention Program, discusses key lessons learned in skin cancer prevention and sun safety within Arizona schools. Jeff Gershenwald, MD explains how the Melanoma Moon Shot Program at MD Anderson is working toward reducing incidence of melanoma in youth.

Boris Lushniak, MD, MPH, Deputy Surgeon General, concludes the webinar by expanding upon action steps and strategies we can implement to help prevent skin cancer. 

Watch the CDC webinar on prevention and control of skin cancer.

May 2015 - Skin Cancer Research Expo & Sun Safety Event

An event to educate, detect, and advance the science of skin cancer prevention and treatment all in one place

Start the summer off by learning more about sun safety and protection, having a skin exam performed by a healthcare provider and participating in the latest skin cancer research at OHSU. Skin cancer should be among the most easily recognized and preventable of all cancers. Often people do not always visit a dermatologist when they see a mole that has changed or doesn’t “look normal” or they don’t recognize other common symptoms of skin cancer .  

Join the OHSU Department of Dermatology and the OHSU Knight Cancer Institute on Saturday, May 30, at the Center for Health & Healing, located on the South Waterfront for a research expo, skin cancer health education and skin checks, and the 2015 Northwest Melanoma Walk.

Learn more about this upcoming event

February 2015 - Nike Meet Cancer

On February 3rd, NIKE held a Meet Cancer event at their world headquarters in Beaverton, OR. The event included a group run (it is NIKE after all), presentations from OHSU cancer experts, and celebration of NIKE employees who have faced cancer. The OHSU speakers included Dr. Sancy Leachman, Dr. Brain Druker, and Dr. Kent Thornberg. 

Dr. Leachman's presentation provided information on the high rates of melanoma in Oregon, highlighted by photos shared by some of our Melanoma Community Registry participants. 147 of you responded to our call and for that we are incredibly grateful. Your response was overwhelming and truly inspiring! Your contribution put a face to this deadly disease and made a noticeable impact on the audience that information alone could not have achieved. 

Dr. Leachman's PowerPoint presentation is available online for you to see and share with family and friends.   
 

November 2014 - Melanoma Care Update & Patient Dialogue

Thank you, everyone, who joined us on for our first Melanoma Care Update & Patient Dialogue, co-sponsored by our friends at Aim at Melanoma.  We are delighted that so many of you were able to participate. The event, held at the Vey Auditorium at OHSU Doernbecher Children’s Hospital on November 15th, was a great success with over 130 people in attendance.

Sancy Leachman, M.D., Ph.D., director of the OHSU Knight Cancer Institute Melanoma Program, commenced the event by sharing her plans to reduce skin cancer rates and advance research through the Melanoma Community Registry.

Following Dr. Leachman’s presentation, Michael M. Kim, M.D. and Michael Taylor, M.D. and presented on surgical options following melanoma diagnosis and novel system therapies for metastatic melanoma, respectively. Jackilen Shannon, Ph.D, R.D, M.P.H. then presented on melanoma prevention and how Let’s Get Healthy is using interactive gaming to educate children about skin cancer prevention.

The event’s keynote speaker, Gerald Linette, M.D., Ph.D., associate professor of medicine and neurosurgery at Washington University in St. Louis, Missouri, gave a brilliant presentation on the future of melanoma treatments that harness the immune system.

The event concluded with a patient panel that allowed melanoma survivors to share their personal journeys and heartfelt experiences fighting against melanoma. Attendees were also able to explore exhibits presented by Let’s Get Healthy and Sol Survivors before and after the event.  

 

Watch the event:

If you were unable to attend, we invite you to view videos of the event here. More videos will be posted in the up-coming weeks. To see a list of the talks, read the event schedule.  

 

What participants are saying:

“AIM was honored to be a part of the Melanoma Care Update and Patient Dialogue.  We not only heard some very informative presentations on melanoma but we had an opportunity to hear how OHSU would be working with the melanoma community to combat the disease.”
– Sam Guild, AIM at Melanoma 

“The event provided a wealth of valuable information about melanoma diagnosis and treatment. It created a unique opportunity for patients and survivors to engage in a two-way conversation with researchers and physicians, and allowed us to connect with individuals who are interested in using their various skills and talents to advance the war on melanoma.”
– Katie Wilkes, SolSurvivors Oregon

 “So very good! I can’t thank you enough for presenting this info and leading an organized attack on melanoma in Oregon.”
– Attendee Comment

 

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