Cancer registries are databases of cancer information that are used for research. They offer people the chance to participate in research that helps find new cancer treatments and cures. Registries also give researchers valuable data on how cancer works.
Personalized Cancer Medicine Registry (PCMR)
The Personalized Cancer Medicine Registry (PCMR) is a database of patients who have consented to having their tumor genotyped (genotyping)and information about their cancer stored. They have also agreed to be contacted in the future for health updates and potential study opportunities.
The registry will include information that researchers can search easily to find patients who might qualify for new studies. This means patients can participate in research studies based on the molecular makeup of their tumor. Such a close match between treatments and tumors can make it more likely that cancer will respond to treatment.
The registry will also allow researchers to understand more about how genes associated with your tumor affects how it responds to treatment. This will help design of better treatments and help doctors choose the best treatment for each person.
Oregon Index of Endocrine Neoplasias (ORION)
The Oregon Index of Endocrine Neoplasias (ORION) exists to establish a centralized resource of clinical information to aid in the identification, care and study of clinical and outcomes characteristics of individuals who develop benign and malignant endocrine tumors of the thyroid, parathyroid and adrenal glands, as well as of the neuroendocrine system.
For more information, please contact Enrique Leon.