Cancer registries are databases of cancer information that are used for research and public health purposes. They offer people the chance to participate to helps find new cancer treatments and cures. Registries also give researchers valuable data on how cancer works. By joining, learning more or contributing, you can increase melanoma awareness and help fight the war on melanoma.
Melanoma Community Registry
Launched in May 2014, the Melanoma Community Registry is a unique resource for patients, their families and friends and researchers to learn how to best prevent, treat and detect melanoma. Registration is completely confidential. It is open to all – people who have had melanoma, their family members and friends – regardless of when or where care was received. By being part of this registry offers opportunities to participate in upcoming melanoma research, attend educational events and volunteer to make a difference in the fight to defeat melanoma.
For more information, go to Melanoma Community Registry, call 844-300-SPOT (7768) or email WarOnMelanoma@ohsu.edu. Or if you’d like to help support research, outreach, education, advocacy and other activities related to skin cancer, please donate now.
OHSU Cancer Registry
Established in the early 1960s, the OHSU Cancer Registry keeps detailed demographic, diagnostic, treatment and outcomes data on all patients diagnosed with cancer, and all primary brain and central nervous system tumors, benign or malignant. The data is used in a variety of ways, including learning how well different treatments work, analyzing the outcomes of treatment and sending data to state and national databases.
For more information, call 503 494-6367 or email the OHSU Cancer Registry.
Personalized Cancer Medicine Registry (PCMR)
The PCMR is a registry of patients who have consented to tumor genotyping and to be contacted for personal health updates and opportunities to participate in research. The registry includes molecular, clinicopathologic, and staging information, which is stored and can easily be searched as trials of new treatments are opened up. This registry will allow doctors to enroll patients in clinical trials based on a molecular fingerprint of their tumors, which increases the likelihood of a good response to treatment.For more information, call 503 346-0354 or email PCMR.