Cancer registries are databases of cancer information that are used for research. They offer people the chance to participate in research that helps find new cancer treatments and cures. Registries also give researchers valuable data on how cancer works.
Personalized Cancer Medicine Registry (PCMR)
The PCMR is a registry of patients who have consented to tumor genotyping, and to be contacted for personal health updates and opportunities to participate in research.
The registry includes molecular, clinicopathologic, and staging information, which is stored and can easily be searched as trials of new treatments are opened up. This registry will allow doctors to enroll patients in clinical trials based on a molecular fingerprint of their tumors, which increases the likelihood of a good response to treatment.
OHSU Cancer Registry
Established in the early 1960s, the OHSU Cancer Registry keeps detailed demographic, diagnostic, treatment and outcomes data on all patients diagnosed with cancer, and all primary brain and central nervous system tumors, benign or malignant. The data is used in a variety of ways, including learning how well different treatments work, analyzing the outcomes of treatment and sending data to state and national databases.