Links and Resources

Transplantation

• American Medical Association: articles relating to transplantation
• National Transplant Assistance Fund: www.transplantfund.org
• The Organ Procurement and Transplantation Network: www.optn.org (OPTN)
• Transplant Experience (by Astellas): www.transplantexperience.com
• Transplant Living: www.transplantliving.org
• Transplant Recipients International Organization (TRIO): www.trioweb.org
• TransWeb: www.transweb.org
• Scientific Registry for [U.S.] Transplant Recipients (SRTR): www.ustransplant.org
• United Network for Organ Sharing (UNOS): www.unos.org
• U.S. National Library of Medicine (NLM): www.nlm.nih.gov/medlineplus/organtransplantation.html

Organ-Specific Information and Advocacy

Heart

• American Heart Association: www.americanheart.org
• American Heart Association: Portland and SW Washington
• OHSU Familial Dilated Cardiomyopathy Project: www.fdc.to/

Kidney and Pancreas

• Dialysis & Transplantation (magazine): www.eneph.com
• Hypertension, Dialysis and Clinical Nephrology (HDCN) — Renal (Kidney) Disease Electronic Journal: www.medtext.com/
• National Institute of Diabetes & Digestive & Kidney Diseases: www.niddk.nih.gov
• National Kidney Foundation (NKF): www.kidney.org
• The Nephron Information Center: www.nephron.com
• NephroWorld: www.nephroworld.com
• OHSU Division of Nephrology and Hypertension: www.ohsu.edu/som-nephrology/
• RENALNET: www.renalnet.org
• RenalWEB: www.renalweb.com
• U.S. Renal Data System (USRDS): www.usrds.org

Liver

• American Liver Foundation: www.liverfoundation.org
• American Liver Foundation: Pacific Northwest Chapter
• Portland VA Liver Transplant Program: www.va.gov/portland/transplant/

Lung

• American Lung Association of Oregon: www.lungoregon.org
• American Lung Association: www.lungusa.org

Organ and Tissue Donation

• The American Association of Tissue Banks (AATB): www.aatb.org
• American Medical Association: articles relating to organ donation
• The American Red Cross (blood and marrow donation): www.redcross.org
• Association for Organ Procurement Organizations (AOPO): www.aopo.org
• Coalition on Donation: www.shareyourlife.org
• Community Tissue Services — Portland, Ore.: www.communitytissue.org/branches/portland.html
• Donate Life NW (formerly Oregon Donor Program): www.donatelifenw.org
• The Eye Bank Association of America (EBAA): www.restoresight.org/
• The Gift of a Lifetime: www.organtransplants.org
• Idaho Lions Eye Bank: www.idaholions.org/pages/lionseye1.htm
• Lions Eye Bank of Oregon: http://eyebank.orlions.org/
• The National Marrow Donor Program: www.marrow.org
• OHSU Body Donation Program: www.ohsu.edu/bodydonation/
• The Organ Donation Breakthrough Collaborative: http://organdonation.iqsolutions.com/
• Pacific Northwest Transplant Bank: www.pntb.org
• The official U.S. government site for information on donation and transplantation: www.organdonor.gov/

Donor Registries

• Oregon Donor Registry: https://www.donatelifenw.org/register/
• Idaho Donor Registry: www.yesidaho.org/
• Washington Donor Registry: www.livinglegacyregistry.org/

Updated 04/26/08 by Jean Shepherd, OHSU Transplant Administration. Please send questions, comments or inquiries to transplt@ohsu.edu.