IRB #

IRB00010561

Title

War on Melanoma: Enlisting a cohort of melanoma survivors and their families

Principal Investigator

Sancy Leachman

Study Purpose

The purpose of this data repository, called the Melanoma Community Registry, is to develop a prospective cohort of melanoma patients, family members and friends (controls). This registry will serve as a data repository for future IRB-approved research and thus will collect,collect store and share data with melanoma researchers for an indeterminate period of time. In addition, our repository will contain identifying codes/numbers that are links to data/samples in other relevant databases. Additionally, it is intended to deliver a ready-to-act group of volunteers to participate in the War on Melanoma campaign to include such things as attending educational symposiums and using their networks to increase awareness of the issue. There is no existing nationwide registry for melanoma research. As patient-centered research advances, a resource like this is needed and can serve as a model.

Medical Condition(s)

Melanoma, patient quality of life, health behaviors

Eligibility Criteria

Inclusion Criteria are (1) personal history of any stage of melanoma, 2) a blood relative of a melanoma patient such as a parent, sibling, child, aunts/uncles or first cousins, 3) no personal or family history of melanoma (can serve as controls) and (4) provide informed consent.

Age Range

7 - 99

Healthy Volunteers Needed

Yes

Duration of Participation

Ongoing

Minors Included

Yes

Contact

Lisa Domenico

Sponsor

Recruitment End

12/31/2025

Compensation Provided

No


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