OHSU

IRB #

IRB00009777

Title

The Meaning of Dementia-related Changes in Persons with ADRD: An Interpretive Phenomenological Exploration of African American Family Caregivers’ Perceptions

Principal Investigator

Theresa Harvath

Study Purpose

The purpose of this study is to learn more about how African American caregivers understand the changes they see in family members due to dementia (memory loss).

Medical Condition(s)

African American caregivers for persons with dementia

Eligibility Criteria

Self-identify as African American
Over age 18
Live in Portland Metro Area
Provide care for at least 4 hours per month
Have been caring for person with dementia for at lease one month
Speaks English

Age Range

18 - 100

Healthy Volunteers Needed

Yes

Duration of Participation

2 interviews 2-6 weeks apart.
1 observation session between the interviews (optional)

Minors Included

No

Contact

Allison Lindauer, Nurse Practitioner, PhD Student
lindauer@ohsu.edu
503-449-8151

Sponsor

NA

Recruitment End

06/02/2014

Compensation Provided

Yes

Compensation

Caregivers will be given $20 per interview with nurse researcher. There will be no compensation for the optional observation session.


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