OHSU

IRB #

IRB00008881

Title

Sjogren-Larsson Syndrome: A Longitudinal Study of Natural History, Clinical Variation and Evaluation of Biochemical Markers

Principal Investigator

Jean-Baptiste Roullet

Study Purpose

The purpose of this study is to understand the clinical and laboratory course of Sjogren-Larsson Syndrome (SLS) and establish a bank of data and information for future investigations on SLS.

Medical Condition(s)

Sjogren-Larsson Syndrome

Eligibility Criteria

-confirmed diagnosis of Sjogren-Larsson Syndrome

Age Range

1 - 100

Healthy Volunteers Needed

No

Duration of Participation

Subjects will be asked to come to the research center every year until 6 years old and every 3 years if 6 years or older.

Minors Included

No

Contact

Sharon Butcher, RN
503.744.6524
butcher@ohsu.edu

Sponsor

National Institutes of Health

Recruitment End

07/31/2014

Compensation Provided

No


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