Sjogren-Larsson Syndrome: A Longitudinal Study of Natural History, Clinical Variation and Evaluation of Biochemical Markers
The purpose of this study is to understand the clinical and laboratory course of Sjogren-Larsson Syndrome (SLS) and establish a bank of data and information for future investigations on SLS.
-confirmed diagnosis of Sjogren-Larsson Syndrome
1 - 100
Healthy Volunteers Needed
Duration of Participation
Subjects will be asked to come to the research center every year until 6 years old and every 3 years if 6 years or older.
Sharon Butcher, RN
National Institutes of Health