IRB #

IRB00008777

Title

Brain Perfusion in PKAN

Principal Investigator

Susan Hayflick

Study Purpose

The purpose of this study is to learn whether blood flow in the brain is normal in people with the disorder pantothenate kinase-associated neurodegeneration (PKAN).

Medical Condition(s)

Pantothenate kinase-associated neurodegeneration (PKAN)

Eligibility Criteria

Subjects must have a diagnosis of PKAN confirmed by genetic testing. Healthy volunteers cannot have any known neurologic condition or brain abnormality.

Age Range

7 - 70

Healthy Volunteers Needed

Yes

Duration of Participation

This study requires a single visit to OHSU that will last about 2-4 hours.

Minors Included

Yes

Contact

Allison Gregory, MS, CGC
gregorya@ohsu.edu
(503) 494-4344

Sponsor

OHSU Foundation

Recruitment End

12/31/2017

Compensation Provided

Yes

Compensation

The study subject is paid $75 for completing this single study visit to OHSU.


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