OHSU

IRB #

IRB00004753

Title

A Global, Multi-Center, Longitudinal, Observational Survey of Patients with Documented Transthyretin (TTR) Mutations or Wild-Type TTR Amyloidosis.

Principal Investigator

Tessa Marburger

Study Purpose

To create a database of information regarding Tranthyretin amyloidosis in order to better understand the disease and its natural history, and improve the care of patients by using the information gathered to develop new treatments and guidlines.

Medical Condition(s)

Transthyretin-associated amyloidosises.

Eligibility Criteria

Must be at least 18 years of age, and have confirmed TTR mutation or TTR amyloidosis. May not be in a current investigational clinical trial or receiving an investigational drug and/or device, or have primary or secondary amyloidosis.

Age Range

18 - 100

Healthy Volunteers Needed

No

Duration of Participation

This is an ongoing survery that will last at least 10 years.

Minors Included

No

Contact

Thomas Brennan
503-418-2124

Sponsor

FoldRx Pharmaceuticals

Recruitment End

Compensation Provided

No


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