OHSU

IRB #

IRB00003120

Title

A Global, Multi-Center, Long-Term, Observational Survey of Patients with Hunter Syndrome (Mucopolysaccharidosis II) - Hunter Outcome Survey (HOS)

Principal Investigator

David Koeller

Study Purpose

To gather data on subjects with Hunter Syndrome.

Medical Condition(s)

Hunter Syndrome

Eligibility Criteria

Diagnosed Hunter Syndrome

Age Range

0 - 100

Healthy Volunteers Needed

No

Duration of Participation

Indefinite - until study is closed or subject withdraws from study

Minors Included

Yes

Contact

Kristi Healy (503) 494 4979

Sponsor

Shire Human Genetic Therapies

Recruitment End

12/31/2030

Compensation Provided

No


Go Back