Resources for UCEDDs

 

Welcome to the resource page for University Centers of Excellence in Developmental Disabilities (UCEDD) professionals. Participatory Action Research (PAR) methodology values involvement of all stakeholders. A meaningful partnership between consumers and investigators is essential to valid research outcomes that emphasize individual and group empowerment, as well as pertinent practice to influence system change. View the PAR in UCEDDs curriculum and regularly refer to the following resources to enhance your Center's collaborative approach to qualitative and quantitative research. There are many PAR resources available for UCEDD professionals including the PAR in UCEDDs curriculum with corresponding PowerPoint presentation

Fact Sheets/Handouts

The cornerstone of Participatory Action Research (PAR) is a successful partnership between consumers and researchers. The following documents are excellent introductory resources.

Links

Explore these professional and community resources for effective Participatory Action Research (PAR) systems of practice.

Journal Articles

Researchers and practitioners have established a PAR community of expertise. Search these academic periodicals and websites for comprehensive explanations of their research, practice, and evaluation strategies.

Presentations

The following presentations can be used for individual study or staff in-service to survey methodology, practice, and assessment protocol.

Institutional Review Boards (IRBs)

Institutional Review Boards (IRBs) approve and oversee medical and behavioral research to ensure the rights and well-being of the participants. Refer to the following resources pertinent to PAR, as well as your University's protocol, for research guidelines.

Working with Consumer Advisory Councils (CACs)

University Centers of Excellence in Developmental Disabilities (UCEDDs) rely on collaborative relationships with consumers to meet research, training, and service goals. The following self-advocacy and leadership resources offer suggestions to partner with individuals with disabilities and their families-- as well as community partners--to establish advisory councils and boards.

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