Photo of Julie H. Carter, R.N., M.N., A.N.P.

Julie H. Carter R.N., M.N., A.N.P.

Co-Founder and past co-director of the OHSU Parkinson Center of Oregon (PCO) and Movement Disorders Program.

Ms. Carter received her B.S. and masters degrees at OHSU. She joined the OHSU movement disorders faculty in 1979 and is currently a professor of neurology.

As past director of education and outreach for the Parkinson Center of Oregon (PCO), she has developed many innovative programs to improve the lives of patients and families who live with Parkinson's disease. Notable programs are a newly diagnosed program for patients and families, a self-management program for people with PD and a palliative care program for people/families with PD. She is a popular speaker locally and nationally on a variety of topics related to the care of people and their families who have Parkinson's disease.

Research interests:

Ms. Carter's research interests include multiple clinical trials with a special interest in neuroprotective therapies. Other research interests include the impact of PD on family caregiving, palliative care and Parkinson’s disease, how best to deliver the diagnosis of PD, and the end-of-life experience in Parkinson's disease.

Ms. Carter's clinical practice, education, and research are dedicated solely to people and their families with Parkinson's disease.




  • B.S., OHSU, School of Nursing 1973


  • "National Randomized Controlled Trial of Virtual House Calls for People with Parkinson's Disease : Interest and Barriers." Telemedicine and e-Health  In: , Vol. 22, No. 7, 01.07.2016, p. 590-598.
  • "Palliative care and Parkinson's disease : Meeting summary and recommendations for clinical research." Parkinsonism and Related Disorders  In: , 21.04.2016.
  • "Interprofessional education increases knowledge, promotes team building, and changes practice in the care of Parkinson's disease." Parkinsonism and Related Disorders In: , Vol. 22, 01.01.2016, p. 21-27.
  • "Do cognitive measures and brain circuitry predict outcomes of exercise in Parkinson Disease : A randomized clinical trial." BMC Neurology In: , Vol. 15, No. 1, 218, 24.10.2015.
  • "Life-sustaining treatment orders, location of death and co-morbid conditions in decedents with Parkinson's disease." Parkinsonism and Related Disorders In: , Vol. 21, No. 10, 2744, 01.10.2015, p. 1205-1209.
  • "Pioglitazone in early Parkinson's disease : A phase 2, multicentre, double-blind, randomised trial." The Lancet Neurology  In: , Vol. 14, No. 8, 01.08.2015, p. 795-803.
  • "Identifying Predictors of Hospice Eligibility in Patients With Parkinson Disease." American Journal of Hospice and Palliative Medicine  In: , Vol. 32, No. 1, 19.02.2015, p. 29-33.
  • "Caregiver strain in Parkinson's disease : National Parkinson Foundation Quality Initiative Study." Parkinsonism and Related Disorders In: , Vol. 19, No. 11, 11.2013, p. 975-979.
  • "Pre-death grief in Parkinson's caregivers : A pilot survey-based study." Parkinsonism and Related Disorders In: , Vol. 18, No. SUPPL. 3, 12.2012.
  • "Design innovations and baseline findings in a long-term parkinson’s trial : The national institute of neurological disorders and stroke exploratory trials in parkinson’s disease long-term study-1." Movement Disorders  In: , Vol. 27, No. 12, 2012, p. 1513-1521.
  • "Does age make a difference in caregiver strain? Comparison of young versus older caregivers in early-stage Parkinson's disease." Movement Disorders  In: , Vol. 25, No. 6, 30.04.2010, p. 724-730.
  • "Does age make a difference in caregiver strain? Comparison of young versus older caregivers in early-stage Parkinson's disease." Movement disorders : official journal of the Movement Disorder Society  In: , Vol. 25, No. 6, 30.04.2010, p. 716-722.
  • "Optimism, pessimism, mutuality, and gender : Predicting 10-year role strain in Parkinson's disease spouses." Gerontologist In: , Vol. 49, No. 3, 06.2009, p. 378-387.
  • "Do motor and nonmotor symptoms in PD patients predict caregiver strain and depression?" Movement Disorders In: , Vol. 23, No. 9, 15.07.2008, p. 1211-1216.
  • "Needs and experiences of care-givers for family members dying with Parkinson disease." Journal of Palliative Care  In: , Vol. 24, No. 2, 06.2008, p. 69-75.
  • "Neurologic disease at the end of life : Caregiver descriptions of Parkinson disease and amyotrophic lateral sclerosis." Journal of Palliative Medicine  In: , Vol. 11, No. 4, 01.05.2008, p. 548-554.
  • "A pilot clinical trial of creatine and minocycline in early parkinson disease : 18-month results." Clinical Neuropharmacology  In: , Vol. 31, No. 3, 2008, p. 141-150.
  • "Parkinson disease at the end of life : Caregiver perspectives." Neurology  In: , Vol. 69, No. 6, 08.2007, p. 611-612.
  • "Effects of methylphenidate on response to oral levodopa : A double-blind clinical trial." Archives of Neurology In: , Vol. 64, No. 3, 03.2007, p. 319-323.
  • "Pramipexole in levodopa-treated Parkinson disease patients of African, Asian, and Hispanic heritage." Clinical Neuropharmacology  In: , Vol. 30, No. 2, 03.2007, p. 72-85.
  • "R1514Q substitution in Lrrk2 is not a pathogenic Parkinson's disease mutation." Movement Disorders In: , Vol. 22, No. 2, 15.01.2007, p. 254-257.
  • "A randomized clinical trial of coenzyme Q10 and GPI-1485 in early Parkinson disease." Neurology  In: , Vol. 68, No. 1, 01.2007, p. 20-28.
  • "Presence of an APOE4 allele results in significantly earlier onset of Parkinson's disease and a higher risk with dementia." Movement Disorders  In: , Vol. 21, No. 1, 01.2006, p. 45-49.
  • "A randomized, double-blind, futility clinical trial of creatine and minocycline in early Parkinson disease." Neurology  In: , Vol. 66, No. 5, 2006, p. 664-671.
  • "Melatonin for sleep disturbances in Parkinson's disease." Sleep Medicine In: , Vol. 6, No. 5, 09.2005, p. 459-466.
  • "Pessimism and optimism as early warning signs for compromised health for caregivers of patients with Parkinson's disease." Nursing Research In: , Vol. 53, No. 6, 11.2004, p. 354-362.
  • "Evaluation of the role of Nurr1 in a large sample of familial Parkinson's disease." Movement Disorders  In: , Vol. 19, No. 6, 06.2004, p. 649-655.
  • "The dopamine transporter : Importance in Parkinson's disease." Annals of Neurology In: , Vol. 55, No. 6, 06.2004, p. 766-773.
  • "Focus on research methods : Locating and retaining research participants for follow-up studies." Research in Nursing and Health In: , Vol. 27, No. 1, 02.2004, p. 63-68.
  • "The effect of coenzyme Q10 therapy in Parkinson disease could be symptomatic [4]." Archives of Neurology  In: , Vol. 60, No. 8, 01.08.2003, p. 1170-1173.

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