Hemophilia, Thrombosis & other Clotting Disorders

Scope of Care

The Oregon Regional Hemophilia Center is one of twelve federally-funded regional hemophilia centers nationwide. Our center serves people with hereditary bleeding and clotting disorders in Oregon and southwest Washington.

As the regional core treatment center, the Oregon Hemophilia Treatment Center collaborates with the following centers throughout the Northwest:

  • Hemophilia Program at the Puget Sound Blood Center in Seattle, Washington
  • Hematology Clinic, Children's Hospital and Regional Medical Center in Seattle, Washington
  • Sacred Heart Children's Hospital Pediatric Oncology Center in Spokane
  • The Idaho Regional Hemophilia Center, Mountain States Tumor Institute at St. Luke's Regional Medical Center in Boise, Idaho
  • The Alaska Hemophilia Treatment Center of the Alaska Hemophilia Association in Anchorage, Alaska.

The Center serves people with hemophilia A (factor VIII deficiency), hemophilia B (factor IX deficiency) and other hereditary clotting disorders such as von Willebrand's disease, as well as those affected by inherited clotting disorders.

Services We Provide

The Hemophilia Center's location in the Child Development and Rehabilitation Center at Oregon Health and Science University allows our patients access to the most recent advances in clinical care, research, education, and advocacy. The Center uses a comprehensive model for the delivery of effective care. Team members visit the homes of newly diagnosed patients, and subsequently make occasional home visits, if needed. Emphasis is on the education of providers, educators, employers, patients and their families for successful management of bleeding disorders. The center itself thrives amid the diverse health care resources of OHSU, and is as accessible as patients' needs require.

Service Providers

The staff of the Hemophilia Center provides a comprehensive, state-of-the-art, family-centered approach to all patients with bleeding and clotting disorders. In order to provide this level of service, we are staffed by nationally recognized experts in every aspect of the patient and family with a bleeding or clotting disorder. Members of our team are lifelong learners and teachers. We are involved at the regional, national, and international level in organizations that advance clinical care, educational efforts, and advocacy for those affected by bleeding and clotting disorders.

How to make a Referral

Referrals are welcome from any source including parents, caseworkers, physicians, and other health/allied health care providers. Many families require a referral from their primary care provider in order for their insurance to cover the service. For more information, or to initiate a referral, please call 503-494-8095 or 800-452-3563.

Resources

Internet resources

Books

  • Basic Concepts of Hemophilia : A Self-Study and Planning Workbook for Families with a New Diagnosis of Hemophilia
  • HOG new parent book

Research

Research plays an important role in the care we provide for patients and their families affected by bleeding and clotting disorders. Without continuing to expand the base of knowledge around bleeding and clotting disorders, we would never make any progress in improving the lives of those affected. Our Hemophilia Center participates in the Universal Data Collection [UDC] through the Centers for Disease Control and Prevention.

The UDC project was established to provide comprehensive health management and prevention services by using multi-disciplinary teams of healthcare specialists, state-of-the-art clinical research programs, outreach and education programs, and blood safety monitoring and surveillance. In addition to monitoring the safety of treatment products in terms of infectious disease and inhibitors, UDC data are used to identify risk factors for complications and to monitor the effectiveness of interventions designed to reduce these complications. The UDC will also serve as the foundation for a national database for clinical research.

We are also involved in multiple clinical studies testing new factor products for those affected by bleeding disorders as well as looking into some of the complications of living with a lifelong bleeding or clotting disorder. We are also on the forefront in basic and translational research looking to define some of the known complications of bleeding and clotting disorders.

We may ask patients to participate in some studies when they come to clinic. Participation in studies is always voluntary. We would never withhold the best interventions in order to have a patient participate in a study. However, by being involved in studies, we can ensure that the lives of our current and future patients will improve.

Program Director

Michael Recht
Michael Recht, MD, PhD

Location of Services

Staff Directory

Pediatric Hematology:
Michael Recht, MD, PhD, Center Director
Greg Thomas, MD

Adult Hematology:
Danny Greenberg, MD

Family Nurse Practitioner:
Joann Deutsche, RN, CFNP

Nursing:
Karen Granger, RN
Alisa Riedl, RN
Robi Ingram-Rich, RN

Social Work:
Jan Goldman, MSW, LCSW

Physical Therapy:
Dave Oleson, PT

Genetic Counseling:
Robi Ingram-Rich, RN

Financial Counseling:
Tammy Vogel

Office Staff:
Amiee Harrison